Restless Legs Syndrome (RLS) Discussion Board

Wednesday 18 September 2024 Welcome today to Needacure who has had RLS since childhood and is looking for more support. I hope you will find much interesting and relevant information here on the discussion board. When you feel like it join a discussion or even better start your own thread. If you wi...

Most opioids will make you sleepy to start with. They can also cause alerting. Perhaps taking it a bit earlier may help. I use Cocodamol at the daily max dose, also pregabalin which is for neuropathy but has the benefit of helping rls, and have no issues. However I've been on them for so long I can'...

Stainless..... Your first sentence says it all. Bliss.

I agree that an aisle seat is important. To be able to get up, and up again repeatedly, without climbing over a stranger, is something less to worry about. Same applies in the theatre, movies etc. (In our local theatre Row F has more legroom. I found this by accident, it is not advertised, and so Ro...

Jul2873 what a wonderful result. To feel normal.

Sunday 15 September 2024 Welcome today to village24 who cannot lie still and sleep. She tears the covers off her bed and loses sleep. RLS is an absolute torture. Are you being prescribed medication from your doctor? Has your doctor checked your Ferritin Serum level and if not please have this done. ...

Thursday 12 September 2024 Welcome today to Jillsyberg who has problems traveling and occasionally forgets to take her afternoon medication which then causes problems catching up with the symptoms. Jillsyberg puts an alarm on my phone to remind her. It is indeed a good idea to use an alarm reminder ...

Thursday 12 September 2024 Welcome today to JLA whose RLS started in pregnancy and worsened badly post-partum due to iron deficiency. JLA has worked her iron stores back up to good levels, and symptoms are improved but not eliminated. Hormones play a role, and JLA notices a correlation between estro...

Thank you for your recommendation, always useful.

You have done well do be taking 0.125mg pramipexole for 15 years and not have any issue, probably because it is a low dose. To take only Gabapentin to treat RLS after weaning off the pramipexole, you would have to titrate upwards until you find the sweet spot where it works for you, or isn't working...

Sunday 8 September 2024 Welcome today to JILL Colorado who is a long time RLS sufferer. Currently experiencing severe symptoms, any time of day or night, and several times during the day and night. There are several reasons why this could be happening to you. It could be just that your RLS is progre...

Well done on facing the challenge of weaning off your pramipexole. You speak of addicition, I prefer to think of it as dependancy. An addicition often means taking more of a drug to seek a 'high' whereas dependency is the need of a drug in order to obtain relief. You plan on weaning off your DA/pram...

28 August 2024 Welcome to Briggs1978 whose Restless leg at times makes life unbearable. There are some evenings when it is difficult to find relief. It can be discouraging since quality of sleep is lessened. Briggs1978I would love to hear other people’s stories of how they have found relief from RLS...

An iron panel checks for all sorts and I personally feel it is worthwhile.
For instance, transferrin saturation could be low despite having a normal Ferritin. Transferrin saturation under 20% is indicative of iron deficiency.

24 August 2024 Welcome today to Mckibbendb who has had restless leg syndrome for over 30 years. Most of the medications lead to augmentation. It is really affecting Mckibbendb's sleep. Sleep issues are what often send an rls sufferer seeking further information. The medications which lead to augment...