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by Polar Bear
Tue May 21, 2019 10:06 pm
Forum: Prescription Medications
Topic: New to Forum Need advice about Ropinirole
Replies: 8
Views: 85

Re: New to Forum Need advice about Ropinirole

dsrouillard - you say that while in bed or just sitting you have to move your legs because they are uncomfortable.

But, do you have to actually get up and walk about?
And if you do so does this eventually relieve your symptoms?
by Polar Bear
Tue May 21, 2019 2:13 am
Forum: Just Joined?
Topic: New Member
Replies: 4
Views: 58

Re: New Member

Doug, even your initial starting dose of .5mg was too high as a starter dose. Over the last 6 months I have reduced my ropinerole from 5 mg daily down to 1.5mg daily. The reduction was by .5mg every few weeks. More recently it has been by .25mg every few weeks. The reduction had been supported by Co...
by Polar Bear
Mon May 20, 2019 2:33 pm
Forum: Just Joined?
Topic: Travel
Replies: 3
Views: 39

Re: Travel

On my last 11hour flight I pretty much doubled up on medications. Made sure I had a dose 90 minutes before take off and sit at the back of the plane beside the toilets. These are considered the worst seats. Not for me. I can get up and walk circles in the little space between the toilets and the gal...
by Polar Bear
Sun May 19, 2019 11:18 am
Forum: Augmentation
Topic: augmentation with lyrica?
Replies: 3
Views: 41

Re: augmentation with lyrica?

I have found Lyrica to be useful when used in combination with another medication, don't think it works so well as monotherapy. I'd think that the Lyrica is just not sufficient on its own to control your symptoms even though you feel it worked for the first 6 days. Are you taking the 300mg as one do...
by Polar Bear
Sun May 19, 2019 11:03 am
Forum: Everything Else...just no RLS/WED!
Topic: Weight Loss
Replies: 31
Views: 6091

Re: Weight Loss

Deb, if your legs are swollen could some of the weight be fluid? When I started on a medication for blood pressure my feet and lower legs got swollen. Happily my doctor changed to another (more expensive) medication and the swelling has almost disappeared. Not noticable to see but I can feel it. It ...
by Polar Bear
Fri May 17, 2019 8:29 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 83
Views: 887

Re: Very Tired

I had put on weight gradually with ropinerole, it was as if the compulsion to eat was impossible to ignore.

Then six months ago I started on Lyrica. Cue another 10 lbs. I'm trying very hard to do something about it. Dr wants to increase the lyrica but I'm saying no at present.
by Polar Bear
Fri May 17, 2019 9:22 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 77
Views: 2293

Re: Attempting to get off Ropinirole - again

Thank you Beth and Ann.
How I wish I had done it a long time ago..... easy said now,
by Polar Bear
Thu May 16, 2019 8:18 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 77
Views: 2293

Re: Attempting to get off Ropinirole - again

I can't believe it, done it again. I typed a very long and detailed post to find that I was timed out and lost it all !! I won't let that happen again, it'll be a Word Document and then copy and paste. So here goes, again... :crazy: As it's been two months since my last post on the Ropinerole reduct...
by Polar Bear
Thu May 16, 2019 5:52 pm
Forum: Prescription Medications
Topic: QUALITY CENTERS: HOW DOES IT WORK
Replies: 4
Views: 56

Re: QUALITY CENTERS: HOW DOES IT WORK

I am in the UK and have no personal experience of the Quality Centres. I hope someone comes along soon who does have experience and can answer your questions. In the meantime, please know that at Quality Care Centres you will without doubt see RLS Experts who are at the top of their field. Regarding...
by Polar Bear
Thu May 16, 2019 12:46 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 83
Views: 887

Re: Very Tired

Deb - don't forget that as well as the loss of your son-in-law and the death of your dog, you also have the awfulness of watching your daughter suffer. You are living at a distance away from her and are likely feeling the frustration of helplessness. As Ann says, it would be no wonder if you are dep...
by Polar Bear
Tue May 14, 2019 1:47 pm
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 83
Views: 887

Re: Very Tired

deb, you sound so sad. I hope you manage to get back to a better time.
by Polar Bear
Mon May 13, 2019 5:21 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 6
Views: 91

Re: Rotating Meds

Stainless - Knock Knock
by Polar Bear
Mon May 13, 2019 5:20 pm
Forum: Prescription Medications
Topic: Lyrica
Replies: 2
Views: 50

Re: Lyrica

It is wonderful to hear that you benefitted from the information here on our Discussion Board. It sounds like you stopped your Ropinerole cold turkey. Well done. How to you take your Lyrica, is it one dose or two doses. Thank you so much for coming back and telling us of your success, it gives hope ...
by Polar Bear
Sun May 12, 2019 12:57 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 35
Views: 242

uglydarknite

12 May 2019 Welcome to: uglydarknite - who says this condition has taken over his/her life. Has tried countless prescribed medications and over the counter supplements. Please do read through the posts, you will relate to what people say and know that we understand how difficult this is. When you fe...
by Polar Bear
Sun May 12, 2019 12:42 pm
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 22
Views: 298

Re: New here, just diagnosed but not sure it really is RLS...

Since I have been having ferritin checks, about 8 years, my ferritin was around 160/170. Three monhs ago approximately it dropped to around 50 with no ideas why from my GP. For 3 months I've been taking oral iron and am due to have a ferritin check so no idea yet if the oral iron has done any good, ...

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