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by ViewsAskew
Thu Aug 22, 2019 5:37 am
Forum: Prescription Medications
Topic: Started gabapenten - no relief
Replies: 25
Views: 343

Re: Started gabapenten - no relief

Interesting about the startle response. I came across a study long ago that showed that WED/RLS patients have a heightened startle reflex. I know I do. Its appearance in my life didn't coincide with any med or med withdrawal as far as I recall but it definitely post-dates the time when WED/RLS beca...
by ViewsAskew
Thu Aug 22, 2019 5:35 am
Forum: General Topics: RLS/WED
Topic: Insomnia
Replies: 6
Views: 70

Re: Insomnia

debbluebird wrote:I am finding that hemp oil is helping with my insomnia. It makes me very sleepy. As long as my legs are quiet, then off to sleep I go. I just have to remember to take it if I've been awake more than an hour. Sorry to say, it doesn't seem to help with my legs.


That is great, Deb!
by ViewsAskew
Thu Aug 22, 2019 5:34 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 74
Views: 2732

Re: Experience with Injectafer?

I swear that the second time it took 11 weeks. At 8 weeks, I gave up and was sure it hadn't helped. I don't even remember how I figured out it had helped - likely late taking meds one day and didn't have symptoms or something.
by ViewsAskew
Thu Aug 22, 2019 5:26 am
Forum: Prescription Medications
Topic: Questions re Opioid Withdrawal
Replies: 3
Views: 17

Re: Questions re Opioid Withdrawal

I haven't taken oxy...but I think you are correct. Some of us have issues regardless of dose. I took benzos for such a short time - yet took months withdrawing. But, I stopped methadone (at a lower dose) without issue. Now that is not the case as my dose is much higher. And, other people here have t...
by ViewsAskew
Wed Aug 21, 2019 7:03 pm
Forum: Just Joined?
Topic: Tightening in calf
Replies: 4
Views: 45

Re: Tightening in calf

I get the pre-RLS which is not quite a tightening, but sort of. But, RLS always follows if I don't get up and move around or do something. Does yours follow with RLS-type feelings?
by ViewsAskew
Wed Aug 21, 2019 7:02 pm
Forum: General Topics: RLS/WED
Topic: Urge to get feet wet
Replies: 5
Views: 52

Re: Urge to get feet wet

You know....one thing that we could have missed is augmentation. It is possible that this just was coincidence, that both the antibiotics and the hydroxine, or that it is some other combination. It is rare to augment when having taken ropinerole for only a short time. But, it does happen. Give it a ...
by ViewsAskew
Wed Aug 21, 2019 6:56 pm
Forum: Just Joined?
Topic: Hello
Replies: 5
Views: 62

Re: Hello

Thank you so much for the reply and information stjohnh!! I am having a lot of trouble finding these IRLSSG guidelines you are speaking of though. I have hunted and not had any luck. Could you point me in the right direction? Try this: https://www.sciencedirect.com/science/article/pii/S138994571731...
by ViewsAskew
Wed Aug 21, 2019 6:54 pm
Forum: Prescription Medications
Topic: Tapering clonazepam before methadone treatment
Replies: 7
Views: 44

Re: Tapering clonazepam before methadone treatment

I second QyX's suggestion - I used the Ashton Method and while it took a long time, it worked. I joined their forum and followed suggestions there.
by ViewsAskew
Tue Aug 20, 2019 9:31 pm
Forum: Prescription Medications
Topic: Clonidine
Replies: 5
Views: 82

Re: Clonidine

Well, went to doc the other day for the eczema and my BP was high (often is after caffeine). When she said it was high, I said I knew it was after cofe and she asked, "So, what are you going to do?" I said I could stop coffee...then remembered this. I said, Hey, how about clonidine? I can ...
by ViewsAskew
Tue Aug 20, 2019 9:24 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Infusion #3
Replies: 5
Views: 52

Re: Infusion #3

Oddly, they are covering the LMW iron dextran. The first time I paid out of pocket, it was only $800. At the time, a pharmacy was sending nurses to your home to do it. They stopped doing so; when it came for the second, hubby and I made the decision to move and for me to get insurance here. That tim...
by ViewsAskew
Tue Aug 20, 2019 8:36 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Infusion #3
Replies: 5
Views: 52

Infusion #3

Backstory: Had in infusion and it helped for a short time, had a second infusion a couple years later and it reduced my meds by about 50%, and in the last year, I've been back at my all time high levels of meds. Dr B said to go for an infusion, but I was taking a new anti depressant and wanted to ma...
by ViewsAskew
Sun Aug 18, 2019 1:53 am
Forum: Prescription Medications
Topic: Psychotic withdrawals from Pramipexole?
Replies: 7
Views: 54

Re: Psychotic withdrawals from Pramipexole?

I seem to recall one of the Johns Hopkins doctors asking this question long ago at the first or second RLS patient symposium or whatever it was called - it was 2004, I think. Only one person had. That must have been a very strange experience - and seems very lucky you could tell it was no rational! ...
by ViewsAskew
Fri Aug 16, 2019 8:59 pm
Forum: General Topics: RLS/WED
Topic: Urge to get feet wet
Replies: 5
Views: 52

Re: Urge to get feet wet

it is the hydroxyzine - all older antihistamines (and some newer ones) worsen RLS. And, oddly, many of us find being in a bath, a hot tub, or feet in bucket helps! Glad you are taking the ropinerole as needed...try not to take it daily. Also - have your doc test your serum ferritin and iron levels i...
by ViewsAskew
Fri Aug 16, 2019 9:17 am
Forum: Just Joined?
Topic: Finding a doctor who can prescribe Opiates
Replies: 7
Views: 78

Re: Finding a doctor who can prescribe Opiates

Thank you Ann. Unfortunately, moving is not an option for me since I am a single mother of an autistic young man and a daughter who also has significant issues and is no where near able to support herself. I am trying to get my son placed in group housing but it is a long and difficult process, eve...
by ViewsAskew
Thu Aug 15, 2019 6:38 am
Forum: Prescription Medications
Topic: Effectiveness of Neupro patch
Replies: 12
Views: 161

Re: Effectiveness of Neupro patch

I swear....I REALLY want these doctors to feel what we feel for just a week or so...the chronic lack of sleep, the anxiety, the everything, lol. Do they have ANY idea what a drug holiday means???? And is there ANY reason she will not use an opioid - I realize sometimes they are not an option?

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