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by ViewsAskew
Sun Jun 16, 2019 12:13 am
Forum: Everything Else...just no RLS/WED!
Topic: Weight Loss
Replies: 38
Views: 6713

Re: Weight Loss

I've lost 20 pounds in the last month. The same 20 that I have lost before. I decided to do Keto this time. It's similar to what I have done in the past, just fewer carbs. I will go back to my other plan once I get this weight off. It is a combination of keto and paleo. Keto is just like Atkins. Ju...
by ViewsAskew
Fri Jun 14, 2019 9:48 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 56
Views: 1245

Re: Cannabis

When I received the med marijuana certificate in CA a few years ago, the doc I saw talked about how many properties there were that they still knew nothing about. When there are so many variables and it has been illegal, it only makes sense that we wouldn't be able to tell much just by one variable.
by ViewsAskew
Fri Jun 14, 2019 7:17 pm
Forum: Augmentation
Topic: Suicidal thoughts
Replies: 17
Views: 453

Re: Suicidal thoughts

I’m kinda just putting this out there: for me, I have two types of depression: one is definitely related to opioids and the other is what I call organic—the depression that comes from within, decidedly not from opioids. Both types, if severe enough, lead my thoughts to suicide ideation. I’m in a mi...
by ViewsAskew
Fri Jun 14, 2019 4:58 am
Forum: Augmentation
Topic: Augmentation again (of course)
Replies: 35
Views: 723

Re: Augmentation again (of course)

Well ( *sighs ) back to the long haul of coming off the Ropinirole Went down to 4/day of 0.25 All seemed OK and then after a long while..poof it became worse again :( I didn't want to but I did go back to 5/day of 0.25 It's been a Horror Show but I guess this happens on occasion No doc listens to m...
by ViewsAskew
Fri Jun 14, 2019 4:49 am
Forum: Prescription Medications
Topic: Yoga Helping me so far
Replies: 6
Views: 76

Re: Yoga Helping me so far

As some of you here know, I moved to So Cal specifically to have access to Dr. Buchfuhrer. We started with a friend who lived in San Pedro, then tried Torrance for a few months, and settled on a year in DTLA - hubby loves the energy of the city and we both enjoy art galleries, museums, etc. But, a y...
by ViewsAskew
Thu Jun 13, 2019 7:07 pm
Forum: Prescription Medications
Topic: Methadone adjustment; changing to oxycodone
Replies: 17
Views: 187

Re: Methadone adjustment; changing to oxycodone

QYX - how is the quality of your sleep on opioids? This study http://jcsm.aasm.org/articles/030106.pdf pretty clearly demonstrates they reduce slow wave sleep. I’m so fascinated that a lot of other people here get great sleep on opioids. I’m wondering if it is just good sleep as compared to RLS sle...
by ViewsAskew
Thu Jun 13, 2019 5:47 am
Forum: Prescription Medications
Topic: Weaning off medications
Replies: 22
Views: 280

Re: Weaning off medications

Very helpful topic. I quickly weaned myself off of 6 mg of ropinirole several years ago. It took me a month of sleepless, restless nights to get back to my baseline. Currently I am weaning myself off of 20 mg of methadone due to increments of tolerance to opioids. So far, I have managed to get down...
by ViewsAskew
Thu Jun 13, 2019 12:31 am
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 25
Views: 210

Welcome, DoubleG

Wednesday, 12 of June

Welcome to DoubleG, who has been using ropinerole for awhile and is grateful for it.

Start a new post if you want to tell us more. Otherwise, hope the information here is helpful to you.
by ViewsAskew
Wed Jun 12, 2019 7:59 am
Forum: Augmentation
Topic: Augmentation on Neupro vs augmentation on pramixepole
Replies: 8
Views: 160

Re: Augmentation on Neupro vs augmentation on pramixepole

As much as I hate to admit it I think I'm augmenting on the Neupro Patch. I augmented on the other DA's and Neupro was the last chance. I currently am on 1 mg having come down from 2. I also take oxycodone 7.5 and that helps relieve the symptoms. I have found that OxyContin CR 10mg does very little...
by ViewsAskew
Tue Jun 11, 2019 6:13 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: SIBO - 4 facts from a dietician
Replies: 1
Views: 48

SIBO - 4 facts from a dietician

I have no idea how well versed this dietician is in SIBO; she does mention research but does not cite it (of course, she is writing for an audience that doesn't likely care if they see citations). She seems to believe FODMAP is the only diet that will control the symptoms. https://health.usnews.com/...
by ViewsAskew
Tue Jun 11, 2019 6:00 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 458
Views: 110823

Re: Research on SIBO and RLS

This link goes to a preliminary research finding at Stanford Sleep Center that is starting to look at the relationship between SIBO (gut bacteria overgrowth) and RLS. So far, they only are reporting on seven individuals, but it indicates that recruiting of more test subjects is continuing. https://...
by ViewsAskew
Tue Jun 11, 2019 5:31 pm
Forum: Just Joined?
Topic: JUNE 2019 - New Members
Replies: 25
Views: 210

Welcome, crk

Tuesday 11 of June

Welcome to crk whose life (like so many of us) has been turned upside down because of RLS and its effects. Medications haven't worked and crk is tired all the time.

crk - please start a new post and tell us more. We will help as best we can.
by ViewsAskew
Sat Jun 08, 2019 6:55 pm
Forum: Just Joined?
Topic: New here, complicated story
Replies: 10
Views: 71

Re: New here, complicated story

Hi LauraB - all too many of us here are familiar with the daisychain of one thing leading to another. Not your story, but ones that start with one thing and snowball. We are still in the infancy (I believe) of what we understand about the body as a system and how everything is connected, such as Bet...
by ViewsAskew
Fri Jun 07, 2019 7:48 pm
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 37
Views: 456

Re: Excellent article on opioids

Thank you. I'm a coward when it comes to drugs, so I'll probably start with an 8th tsp. Then if I find it helpful, I'll get the scale. Thanks again! Should work fine. A scale is more accurate, but I find if I measure similarly (pack vs not pack, fluff the material first vs not, etc) that I can be v...

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