Search found 13980 matches

by ViewsAskew
Mon Jul 13, 2020 12:53 am
Forum: Just Joined?
Topic: Hopeful RLS wife
Replies: 7
Views: 62

Re: Hopeful RLS wife

Thank you all for your responses. My husband is taking about 2 mg pramipexole a day. And yes, resistance implies fear. The fear of being without his medication is real. He is not being followed by his GP very well at all and has never seen a neurologist. I do not even want to start with a local neu...
by ViewsAskew
Sun Jul 12, 2020 1:34 am
Forum: Just Joined?
Topic: Hopeful RLS wife
Replies: 7
Views: 62

Re: Hopeful RLS wife

Dr. Buchfuhrer also sees patients at the Stanford Sleep center in Redwood City, if you live in northern California. There are 3 or 4 other docs there. Do you think they are not worth seeing, Holland? I doubt you know them all...just wondering if you've heard anything about them. I know one of the L...
by ViewsAskew
Sat Jul 11, 2020 9:53 pm
Forum: Just Joined?
Topic: Hopeful RLS wife
Replies: 7
Views: 62

Re: Hopeful RLS wife

Hello, This is my first post. My husband has RLS and has been on pramipexole for 25+ years, now 1 mg pills (I don't know how many he takes a day). RLS runs in his family in mother, siblings, now 2 of our children. Augmentation and the medication side-effects are both huge problems. I want desperate...
by ViewsAskew
Wed Jul 08, 2020 7:26 pm
Forum: Everything Else...just no RLS!
Topic: Crocheting!
Replies: 27
Views: 5464

Re: Crocheting!

I had to look up brioche crotchet. The only brioche I know if is bread ! Brioche Crochet is much more sophisticated than what I meant. My Crochet square starts in the centre and works round. It's what you get in the easy beginner instructions. :) LOL - I knew the granny squares were relatively easy...
by ViewsAskew
Wed Jul 08, 2020 1:59 am
Forum: Everything Else...just no RLS!
Topic: Crocheting!
Replies: 27
Views: 5464

Re: Crocheting!

Polar Bear wrote:
Wed Jul 08, 2020 12:08 am
Oh... that is something else. Best I ever managed in crochet was the granny squares made from left over yarn and stitched together.
I didn't even know you could do Brioche with crochet! I may have to learn how to do that!
by ViewsAskew
Tue Jul 07, 2020 8:40 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 175
Views: 7632

Re: Cannabis

badnights wrote:
Tue Jul 07, 2020 6:49 am
THanks for the info Ann. It will be useful, all this info helps me make decisions. Did you mean CBD, or CBN?
CBD
by ViewsAskew
Tue Jul 07, 2020 7:37 pm
Forum: Everything Else...just no RLS!
Topic: Crocheting!
Replies: 27
Views: 5464

Re: Crocheting!

Oh - speaking of crocheting...LOOOK at this patternwork!

https://intwined.blog/2020/06/10/croche ... ry-afghan/
by ViewsAskew
Tue Jul 07, 2020 7:29 pm
Forum: Everything Else...just no RLS!
Topic: Crocheting!
Replies: 27
Views: 5464

Re: Crocheting!

Fair Isle seems terrifying to me! Then again, I haven't done cables, yet, either. Still quite new to it all things considered. Am doing my first garment now - a simple sweater. I am doing three strands together, but that is easy :-). Yankiwi, I can imagine how much you love that fragment. What a lov...
by ViewsAskew
Mon Jul 06, 2020 6:58 am
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Hi, SpoffardTex

Sunday, 5th of July - we welcome SpoffardTex. Spoffard joins us with 4 decades of RLS and all the things that go with that - trial and error of meds, anxiety, and the impact on health, marriage, career, etc. I hear you. I really do. My guess is that most of us will recognize ourselves in that statem...
by ViewsAskew
Sun Jul 05, 2020 9:01 pm
Forum: Just Joined?
Topic: JULY 2020 - New Members
Replies: 18
Views: 220

Welcome, Zeke

Sunday - 5th of July - welcome, Zeke. Zeke has insomnia, RLS, and PLMD, and recently was diagnosed with peripheral neuropathy and obstructive sleep apnea. Zeke's neurologist He recommended RLS Foundation and is quoted in some of the books he's reading about RLS/PLMD. Sounds like you are in good hand...
by ViewsAskew
Sun Jul 05, 2020 1:16 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 175
Views: 7632

Re: Cannabis

For what it's worth...I recently bought "Camino" by Kiva. It is for sleep. It is 5 to 1 THC to CBN. Prior, I used Kanha Tranquility, which was a 1 to 1. I am able to cut both in quarters. Am not at all using for movement issues, just to stay asleep. Both do keep me asleep much better. But, I like th...
by ViewsAskew
Sat Jul 04, 2020 8:01 pm
Forum: Augmentation
Topic: How long to wean off ropinirole?
Replies: 20
Views: 1227

Re: How long to wean off ropinirole?

I would say the weaning of ropinorole should be under the doctors direction. I was told to take low dose oxycodone for 2 weeks while weaning off. It was difficult the first 2 days, then I did very well for 2 weeks. But now he put me back on ropinorole again plus gabapentin, augmentation is starting...
by ViewsAskew
Sat Jul 04, 2020 6:57 am
Forum: Physical Treatments
Topic: Keto & RLS
Replies: 3
Views: 61

Re: Keto & RLS

Welcome M@rg!&. There is a post from years ago about how sugar could theoretically trigger RLS/WED. It was so long ago, I am not even sure how you'd find it in a search - do not remember any specific search words. At any rate, there was someone who - for some reason - ended up following a low-carb d...
by ViewsAskew
Wed Jul 01, 2020 5:49 am
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 97
Views: 5121

Re: 1st post after 24 years of RLS

I read a book quite awhile ago called How Doctors Think. One of the takeaways is that when doctors don't have success, they start pulling away. They like healthy patients better - no challenge to their self-worth. It must be very hard to have difficult patients and not feel like a failure that you c...