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by ViewsAskew
Fri Jul 19, 2019 9:04 am
Forum: Augmentation
Topic: Augmentation again (of course)
Replies: 46
Views: 940

Re: Augmentation again (of course)

Hi Ann and YESSSSS It is too s o FRUSTRATING FOR SURE !!! Thank you for your understanding Grrrrrrrr but what can I do ? I will NOT change anything with my meds for today Will see how I feel next week I did however; call Dr Pawluck's office in Alberta BC and I could see him IF I am able to secure a...
by ViewsAskew
Fri Jul 19, 2019 8:59 am
Forum: Physical Treatments
Topic: Weight loss
Replies: 5
Views: 57

Re: Weight loss

I have been as thin as 120 pounds and as heavy as 250. I have been all over the place in between. Gain, lose, stay the same, doesn't matter.
by ViewsAskew
Fri Jul 19, 2019 8:58 am
Forum: Prescription Medications
Topic: myoclonus
Replies: 6
Views: 38

Re: myoclonus

I find that when I am augmented, I get many more PLMW - periodic limb movements during wakefulness. My legs - and arms - would jerk a lot. Curious. I remember this from augmenting too, but for me it was never periodic, hence I never called it PLMW. Please help me understand...when you say it wasn't...
by ViewsAskew
Fri Jul 19, 2019 12:26 am
Forum: Prescription Medications
Topic: myoclonus
Replies: 6
Views: 38

Re: myoclonus

I find that when I am augmented, I get many more PLMW - periodic limb movements during wakefulness. My legs - and arms - would jerk a lot.
by ViewsAskew
Thu Jul 18, 2019 7:03 am
Forum: Physical Treatments
Topic: BEMER
Replies: 6
Views: 101

Re: BEMER

So confusing, ifs, buts, maybes, whys and wherefores. It leaves us in a spin. But everything and anything is worth a try. It is definitely complex...and it is so hard to know what really helps and what doesn't. I think I have another session tomorrow. We will see! For now, these are free as my frie...
by ViewsAskew
Tue Jul 16, 2019 10:19 pm
Forum: Physical Treatments
Topic: BEMER
Replies: 6
Views: 101

Re: BEMER

Had my second session yesterday. My first session was in the mid afternoon. This one was at 8 PM. I was WAY awake afterward - am not blaming the session, just noting it - and didn't get to sleep until 3 AM. Was awakened at around 5 with strong RLS. Got up, wandered, etc., then sat on the couch to ge...
by ViewsAskew
Tue Jul 16, 2019 10:12 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Poll: Oral iron and ferritin levels
Replies: 8
Views: 139

Re: Poll: Oral iron and ferritin levels

My ferritin was always at a decent 170-ish. Then about six months ago it was 57, no idea why. That was when I started the oral iron. I have a blood test scheduled for Wednesday to have it checked. Just to note..... When I typed this post the predictive text changed ferritin to terrorism..... lol......
by ViewsAskew
Mon Jul 15, 2019 10:10 pm
Forum: Physical Treatments
Topic: BEMER
Replies: 6
Views: 101

Re: BEMER

There is a rental program - very expensive. BUT...if it did work, my guess is that most of us would do just about anything to find/save the money if it actually worked. My RLS was nasty again last night - consistent with the day before I used the machine. My husband, and engineer and true skeptic of...
by ViewsAskew
Sun Jul 14, 2019 11:12 pm
Forum: Physical Treatments
Topic: BEMER
Replies: 6
Views: 101

Re: BEMER

And, just found this:

http://www.bemer3000review.com/
by ViewsAskew
Sun Jul 14, 2019 10:57 pm
Forum: Physical Treatments
Topic: BEMER
Replies: 6
Views: 101

BEMER

So....a friend in my book club PMed me last month after I mentioned fibro. She said she had this machine and it helped pain and if I came over, she'd let me try it. Here is a link about it: https://deutschland.bemergroup.com/en Short hand is BEMER - it used magnetic fields to increase blood flow. I ...
by ViewsAskew
Sun Jul 14, 2019 10:39 pm
Forum: Physical Treatments
Topic: RLS or Inelastic Tendon Syndrome?
Replies: 8
Views: 99

Re: RLS or Inelastic Tendon Syndrome?

Maybe georget could host them on google photos and if we PM them our email, they can give us access.
by ViewsAskew
Fri Jul 12, 2019 11:40 pm
Forum: Physical Treatments
Topic: RLS or Inelastic Tendon Syndrome?
Replies: 8
Views: 99

Re: RLS or Inelastic Tendon Syndrome?

So glad to hear you figured out how to resolve that! What technique do you use, georget?

I think it is independent of RLS. I seem to have similar issues to you (and am interested in learning more!) but it is not a common thing among our members here.
by ViewsAskew
Fri Jul 12, 2019 11:36 pm
Forum: Augmentation
Topic: How long to wean off ropinirole?
Replies: 15
Views: 304

Re: How long to wean off ropinirole?

Thanks Ann! Do you find Yoga helps? I have a neurologist appt. in October (on waitlist), and hemotologist appt. in 2 weeks. Hoping to get iron IV treatment. It helps me be happier, calmer, and more centered. It helps me be more flexible and also to be stronger. When I have RLS, it can help me to su...
by ViewsAskew
Fri Jul 12, 2019 11:15 am
Forum: Prescription Medications
Topic: Propofol
Replies: 3
Views: 64

Re: Propofol

Hi mudslide - did they administer an antihistamine at the same time?
by ViewsAskew
Thu Jul 11, 2019 8:40 pm
Forum: Just Joined?
Topic: Ropinerole dosage
Replies: 12
Views: 276

Re: Ropinerole dosage

Thank you for sharing this information. Although I have been struggling with RLS for years I never took the initiative to learn more about it. I allowed my doctors to dictate what to do. Frankly they were clueless. Now, I believe I have a good neurologist and with all this new information I will be...

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