Restless Legs Syndrome (RLS) Discussion Board

We wish you didn't need to be here, but are glad we can support and help you.

My story is similar - since I was a toddler, no one would sleep with me. I woke up upside down, covers all over the place, etc. That, I believe, is the periodic limb movement. I often feel that the PLMs and the RLS are ...

Please welcome Doria to the board.

RLS/WED has completely disrupted sleep and life for Doria. Augmented on pramipexole, Doria is in the process of weaning off of pramixpexole and am now taking Lyrica and in the care of a sleep specialist. The results have been that Lyrica makes me sleepy, but the ...

The main problem is there needs to be incentives for people to choose to research these topics, and the Foundation is the only funder I know of that specifies that research be focused on WED/RLS. But the Foundation only gets a small amount of money from memberships and donations, and has to ...

To add to what Betty said, I actually need my ferritin over 200, and preferably over 300, to get any additional iron into my brain, which then helps reduce symptoms. That is beyond what is considered "normal" for people, however.

Some of us find that we have RLS/WED as well as something else that feels similar. For example, one person here had RLS/WED, but she also had a small fiber neuropathy and they seemed similar enough that she couldn't distinguish.

I wonder if that could be happening with you? It is SO hard to ...

Article about France's updates to its treatment algorithm:

https://www.medscape.com/viewarticle/ir ... 25a1000ekh

I have not had that issue with pregabalin, but have with other medicines - where side effects get worse later on and the doctors say it cannot happen. Well, it can!

Frustrating for you, I would guess!

For you, do your RLS/WED symptoms get better if you walk around or are busy?

It is an embarrassment to see such an article. The writer letting themselves down with their lack of research. Not the first time i have made a written complaint to the respective newspaper/magazine/journal.with regard to such disrespect to their readers. I never get a response but i do get it off ...

Gabapentin - you are still taking it, yes? - is known to cause depressive symptoms. Methadone also can, as you noted. It is an incredible feeling when the symptoms are gone (like you, I augmented and pramipexole and eventually got to methadone, so I remember what that was like).

I know a few ...

I get a Google Alert for anything related to RLS/WED. Today's? This one from Yorkshire Live, what I assume is the online version of the newspaper(s) serving the Yorkshire area in England. The title was, "Symptoms in your legs and arms that are worse at night linked to rare condition."

RARE ...

Well the 22nd of this month marked (1) year since I stopped taking all dopamine agonist medications..Its remarkable how much better I feel today and the misery I was going through 12-months ago. The DAWS symptoms which usually last approx. 14-16 months (according to my neurologist and all the ...

Hello. I have suffered with RLS for about 40 years only diagnosed in the past 5-6 years. I have finally found a combination that seems to work for me in the past year. I used to suffer nightly, up and down , pacing in the house and walking the driveway all hours of the night. Many nights of no ...

Well, I just filled out the paperwork. We will see if Medicare will pay. There is a code for it, now, so maybe. If it doesn't pay, I won't get it. If it does, then I will.


I hope they will pay for it! I will be there shortly, and with the cost, I cannot afford it!

Lissa

Just got on ...

Steve: I may have mentioned this before but my Neurologist has a mild case of RLS. On my first appointment I told him my GP was uncomfortable about increasing my opioid dose. He told me opioids are the best drug for treating RLS like mine. After he spoke to my GP, my GP immediately upped my ...

tried taking all 7.5mg at 9pm but did not get an effect until midnight or 1am. Miserable up until then. Will try tonight to take it at 6pm and see how that works out.


I could have sworn I replied! Huhn. Likely did it while medicated and using a different device and never hit enter.

I take ...