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by ViewsAskew
Sun Sep 15, 2019 8:01 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

I also find tai chi more meditative and calming than yoga. I do like yoga, but it is definitely very different. And while I will never complain about yoga 2 blocks from my house every day and free (though they do appreciate donations), I would love tai chi at least two of those days! Angie, our inst...
by ViewsAskew
Sat Sep 14, 2019 11:00 pm
Forum: Just Joined?
Topic: How do you hold down a job?
Replies: 8
Views: 180

Re: How do you hold down a job?

Hey Taco Bill- it’s been a month since you posted; wondering how you are doing? You mentioned having an appointment with Dr B-how did it go?!? Thank you for sharing. A lot of what you wrote resonated with me: the exhaustion, loneliness, feelings of worthlessness and shame, suicide ideation—these ar...
by ViewsAskew
Sat Sep 14, 2019 10:49 pm
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

I was thinking something similar to Holland. Once I have a relationship with the hematologist here, I am sure he will come around completely. He almost is there...and unless something odd happens, it will benefit me and he will definitely be on board. I also did a bit of research and found other pha...
by ViewsAskew
Fri Sep 13, 2019 2:21 am
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

I found this: The results can vary over time depending on a person's overall health. Defined normal levels tend to vary from one lab to another but typically fall within the following ranges: TIBC: 262–474 mcg/dL Total serum iron: 26–170 mcg/dL in women and 76–198 mcg/dL in men Transferrin saturatio...
by ViewsAskew
Fri Sep 13, 2019 1:52 am
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

Yay Beth!!! My Injectafer bill was $2250 EACH for the two infusions. Happily I only had to pay $137 out of pocket (hallelujah). I cannot imagine why hers is so darn high. Yours was just a few months ago. If it works, it is worth it...but still an incredible cost and so out of reach for many on this...
by ViewsAskew
Fri Sep 13, 2019 1:49 am
Forum: Prescription Medications
Topic: I'm finally getting an infusion
Replies: 14
Views: 82

Re: I'm finally getting an infusion

It has been so nice having you near me! Loved the times we were able to see each other. And while the price is truly evil, I am so glad this is happening for you. Whatever happens, I think if we can afford to try these things (emotionally, physically, and financially), it is important to do so. If n...
by ViewsAskew
Fri Sep 13, 2019 1:36 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 143
Views: 3912

Re: Attempting to get off Ropinirole - again

She then advised me that I needed to be on the highest dosage of Ropinirole before anyone could prescribe Opiates? I had been on the highest for a long long time and I am now down to 4 or 5 per day In any event I am shocked This is all becoming even more frusterating :( I am not in the market for i...
by ViewsAskew
Thu Sep 12, 2019 6:18 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Referral to medical marijuana dispensary experts
Replies: 24
Views: 224

Re: Referral to medical marijuana dispensary experts

I was given a sort of medical leave for half a year or a year, I forget how long. I didn't have to pay tuition for that time and it didn;t count toward the max 7 years or whatever it was that I had to be finished in. But there was a limit to how much of that the university would give. The system he...
by ViewsAskew
Thu Sep 12, 2019 6:16 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Problems with Kratom
Replies: 16
Views: 227

Re: Problems with Kratom

Polar Bear wrote:Debs, I didn't realize you have had 5 joints replaced. I hope it settled very soon.


I did not, either! Deb is the Bionic Woman!
by ViewsAskew
Thu Sep 12, 2019 6:15 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Problems with Kratom
Replies: 16
Views: 227

Re: Problems with Kratom

I wouldn't think they would...but I do not know. Hmmm. It isn't illegal where you are, right? if not, not sure how they could stop you.
by ViewsAskew
Wed Sep 11, 2019 8:21 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 302

Re: Infusion #3

As an update, I had my first infusion yesterday. The clinic is an oncology clinic and the area for the infusions has about 15 chairs. When I went, about ten were occupied...by people getting chemotherapy and their partners or children. I chatted with two women, one of whom had breast cancer. They we...
by ViewsAskew
Wed Sep 11, 2019 8:16 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 302

Re: Infusion #3

I can emphatically say that handing it TO the doctor is the best option. I emailed it, too, but no one gave it to him (imagine that, lol). So, I had it ready. He was reluctant, but I had the salient part identified and suggested he start there. He literally went from skeptical to OK in about 30 seco...
by ViewsAskew
Tue Sep 10, 2019 5:30 pm
Forum: Everything Else...just no RLS/WED!
Topic: Gmail and Calendar - Security Risk!
Replies: 0
Views: 46

Gmail and Calendar - Security Risk!

Just in case someone here is one of the 1.5 billion users of Gmail and also uses the calendar, there is a known security risk. Need to check and then potentially change your settings ASAP. https://www.forbes.com/sites/daveywinder/2019/06/11/new-security-warning-issued-for-googles-1-5-billion-gmail-a...
by ViewsAskew
Sat Sep 07, 2019 6:18 pm
Forum: Prescription Medications
Topic: Infusion #3
Replies: 20
Views: 302

Re: Infusion #3

My first is scheduled for next Tuesday. Hurray! I wonder if Beth is getting some soon... My doctor has me getting them once a month for 3 months, and then getting labwork. Strange scheduling, but sitting in the infusion center once a month is better than every week. Beth is still waiting, I think. ...
by ViewsAskew
Fri Sep 06, 2019 11:15 pm
Forum: Prescription Medications
Topic: Help finding good RLS doctor in North Carolina
Replies: 1
Views: 31

Re: Help finding good RLS doctor in North Carolina

I hope you find someone, Winifred. It seems there aren't enough of us posting when we have doctors who are willing.

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