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by ViewsAskew
Fri May 24, 2019 4:35 am
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 87
Views: 1044

Re: Very Tired

I am in awe of her! I, too, hope this is helping her. I will make no comment about this - if I do, I will end up on a soapbox. So many issues with our government these days from my perspective. Stopping now before I end up writing a novel. I do hope she can get what is fair.
by ViewsAskew
Fri May 24, 2019 4:32 am
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 27
Views: 419

Re: New here, just diagnosed but not sure it really is RLS...

Aw, I wish I could give you a hug (if you are a person who likes hugs). I almost went to that meeting at Rossmoor! Not that I want you to have something else, but SO glad for you that Dr. B. was there and could give you his medical advice. OMG - when I first came? I was a HOG for information, lol. G...
by ViewsAskew
Wed May 22, 2019 8:41 am
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 87
Views: 1044

Re: Very Tired

https://www.disclose.tv/losing-a-pet-is ... jucXcwaRG8
The above is to an article about how painful it is to lose a pet.
by ViewsAskew
Wed May 22, 2019 8:39 am
Forum: Everything Else...just no RLS/WED!
Topic: Weight Loss
Replies: 35
Views: 6237

Re: Weight Loss

debbluebird wrote:Swelling has been happening for a couple of years. Doctors don't tell me why, so I figure they don't know. Cardiologist says my heart is fine. Actually I think it's my kidneys.


Hmmm.
by ViewsAskew
Mon May 20, 2019 8:38 am
Forum: General Topics: RLS/WED
Topic: Very Tired
Replies: 87
Views: 1044

Re: Very Tired

Here is hoping for a surprise!
by ViewsAskew
Mon May 20, 2019 8:35 am
Forum: Augmentation
Topic: augmentation with lyrica?
Replies: 4
Views: 98

Re: augmentation with lyrica?

I found that when I took that class of drugs, that I had tolerance relatively quickly. A couple weeks, I needed more. A couple more weeks, I needed more. A couple more weeks...well, you get the picture. That was long ago for me. I stopped taking it after the third increase.
by ViewsAskew
Mon May 20, 2019 8:33 am
Forum: Prescription Medications
Topic: New to Forum Need advice about Ropinirole
Replies: 11
Views: 124

Re: New to Forum Need advice about Ropinirole

29 is VERY LOW for people with RLS!!!! Most of the experts suggest at least 75, if not 100 as a minimum. I cannot say about the tingling...but I don't have tingling. Are you familiar with the 4 criteria? Check these out and see what you think: You have an urge to move your legs usually accompanied b...
by ViewsAskew
Mon May 20, 2019 8:28 am
Forum: Everything Else...just no RLS/WED!
Topic: Weight Loss
Replies: 35
Views: 6237

Re: Weight Loss

What do you think is causing the swelling?
by ViewsAskew
Mon May 20, 2019 8:27 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 19
Views: 195

Re: Excellent article on opioids

This article (and the linked articles as well) support everything I told my pain medicine doctor. However, that didn't stop him from cutting off my narcotics (two hydrocodone 5-325 and one ms-contin per day). I'd been taking this dosage safely for over ten years. I was told that I "don't have ...
by ViewsAskew
Mon May 20, 2019 8:03 am
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 40
Views: 311

Welcome, usskywatch

19 May 2019 Welcome to usskywatch, who has had RLS for about 2 years. it has greatly worsened and usskywatch has little sleep and the RLS is really affecting daily life. So sorry to hear that. It sounds as if it may be augmentation. My guess is that the doc prescribed a dopamine agonists - ropinerol...
by ViewsAskew
Sat May 18, 2019 6:46 pm
Forum: Just Joined?
Topic: New to group old acquaintance of RLS
Replies: 4
Views: 76

Re: New to group old acquaintance of RLS

Beth's post was excellent!
by ViewsAskew
Sat May 18, 2019 6:19 pm
Forum: Just Joined?
Topic: MAY 2019 - New Members
Replies: 40
Views: 311

Welcome to Bill123

18 May 2019 Today, we welcome Bill123 whose sleep is a bit disturbed - doesn't open business until noon these days - and even the dogs will not sleep with Bill123. Yeah, when the dogs will not sleep with you, something has to change! Let us know if you have any questions or read existing posts, whic...
by ViewsAskew
Fri May 17, 2019 7:03 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 77
Views: 2295

Re: Attempting to get off Ropinirole - again

Polar Bear wrote:Thank you Beth and Ann.
How I wish I had done it a long time ago..... easy said now,


That is almost always the case, isn't it?
by ViewsAskew
Fri May 17, 2019 7:02 pm
Forum: General Topics: RLS/WED
Topic: scary night time experience
Replies: 3
Views: 41

Re: scary night time experience

That is scary, isn't it? It happens to me when my meds are not enough to cover the symptoms, but the medications I take make my very sleepy/tired. It is like a dream state (nightmare, more like it) and I am sort of aware, but it takes a LONG time for me to wake up. I can tell I am kicking and moving...
by ViewsAskew
Fri May 17, 2019 6:59 pm
Forum: Prescription Medications
Topic: New to Forum Need advice about Ropinirole
Replies: 11
Views: 124

Re: New to Forum Need advice about Ropinirole

Hello and welcome. Tough situation! This is my opinion - based on what we know, it is not a good idea to use any drugs in this class, including ropinerole, until at least your serum ferritin is high enough (though there is debate about what is high enough). Some doctors now believe you should never ...

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