Search found 13343 matches

by ViewsAskew
Sun Dec 09, 2018 2:28 am
Forum: Physical Treatments
Topic: Nerve Tension
Replies: 2
Views: 29

Re: Nerve Tension

Looking forward to hearing how this works for you. The description in the study: "Forty-two patients completed VAS scales (0–10) for pain, burning, numbness, tingling, weakness, balance, tightness, aching, pulling, cramping, twitchy/jumpy, uneasy, creepy/crawly, and throbbing, both before and 1...
by ViewsAskew
Sat Dec 08, 2018 5:47 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 10
Views: 839

Re: Experience with Injectafer?

Hope that trend continues!
by ViewsAskew
Sat Dec 08, 2018 5:44 am
Forum: Prescription Medications
Topic: Tramadol
Replies: 9
Views: 1037

Re: Tramadol

I get so dismayed when I see this happening to people. Such a terrifying situation. I wish more doctors understood.
by ViewsAskew
Wed Dec 05, 2018 6:57 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 434
Views: 102364

Re: Published Research - General Sleep and RLS (WED)

Darn. Glad they studied it, even if it was a small group. They need to study other similar substances - vitamins, minerals, etc.
by ViewsAskew
Wed Dec 05, 2018 6:02 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 70
Views: 1780

Re: Back Surgery and RLS plus spasms

That is great to hear!
by ViewsAskew
Sat Dec 01, 2018 1:39 am
Forum: Just Joined?
Topic: New to group.
Replies: 22
Views: 209

Re: New to group.

It is very similar to gabapentin (a sort of similar formula) and there are many studies on it being effective. Most people do not use Lyrica because it is more expensive compared to generic gabapentin and isn't necessarily better.
by ViewsAskew
Sat Dec 01, 2018 1:36 am
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 14
Views: 245

Re: Any luck with a sleep study?

I have had 2 sleep studies,.../ He also said that if the apnea is treated I could see a remarkable lessening of my rls. I am glad that I did the study. Hmmm. I hope he is right, but I think there is not good scientific evidence that treating sleep apnea improves RLS. From what I have read, it doesn...
by ViewsAskew
Thu Nov 29, 2018 8:33 am
Forum: Just Joined?
Topic: Introducing myself
Replies: 32
Views: 2192

Re: Introducing myself

Excellent to hear.

My experience was similar to Steve's. I augmented on one, also on the other.

I cannot remember...how high is your serum ferritin? I found that key for me to not augment as quickly, allowing me to use pramipexole for longer times before I had to stop it.
by ViewsAskew
Thu Nov 29, 2018 8:30 am
Forum: Just Joined?
Topic: New to group.
Replies: 22
Views: 209

Re: New to group.

Yes, you had augmentation. There is a LOT of info here to help you; it is mostly contained within other people's posts, so it means a bit of reading. As you cannot sleep, consider starting to go through older posts and see what you learn. When you have augmented and you are stopping pramipexole, it ...
by ViewsAskew
Thu Nov 29, 2018 8:26 am
Forum: Help for Relationships
Topic: Update, Funny but True
Replies: 6
Views: 148

Re: Update, Funny but True

Funny how things like that happen. Glad you received the ridiculous wage!

I feel for you regarding your son. It must be heartbreaking for you.
by ViewsAskew
Wed Nov 28, 2018 10:49 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 70
Views: 1780

Re: Back Surgery and RLS plus spasms

That is good news!
by ViewsAskew
Wed Nov 28, 2018 10:48 pm
Forum: Just Joined?
Topic: New to group.
Replies: 22
Views: 209

Re: New to group.

Anemia! And low ferritin! Both are linked to RLS. How high does the ferritin get when you get an infusion? Mine is currently over 300 after multiple infusions. This has allowed me to use pramipexole without augmentation - which was horrible for me as I could only take it for a few days without augme...
by ViewsAskew
Tue Nov 27, 2018 10:02 pm
Forum: Prescription Medications
Topic: methadone not working
Replies: 18
Views: 684

Re: methadone not working

For the past ten yrs, I have been taking 2 (two) ten (10) MG hydrocodone daily for my refractive RLS. Two yrs ago I added one 5mg methadone in the eve prior to bed. I do have some nights of sleep/awake, sleep/awake, etc, but generally this program works well. I have had full days where I take metha...
by ViewsAskew
Tue Nov 27, 2018 9:59 pm
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 14
Views: 245

Re: Any luck with a sleep study?

Yes.

As Steve said, it isn't so much about the RLS - that isn't at issue - but about the PLMs and the other sleep issues. It also provides legitimacy to some doctors that you actually DO have an issue.
by ViewsAskew
Mon Nov 19, 2018 7:44 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 34
Views: 2436

Re: What Calms You in the Night?

Yankiwi wrote:Knowing it wouldn't work, I too put a bar of soap in my bed.


My husband put one there years ago...and he is a TOTAL nerd - engineer, sciency-type, who believes only in evidence.

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