Search found 13151 matches

by ViewsAskew
Sat Jun 23, 2018 9:07 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 29
Views: 4068

Re: Rate of Ferritin Decline

Bronwen wrote:file:///C:/Users/user/Documents/Health%20-%20RLS%20-%20Iron%20-%20Consensus%20on%20Teatment.pdf

So, no hard and fast rule.
But you certainly see your doc when everything goes pear-shaped and you're plastered on the kitchen ceiling at two in the morning.


Indeed!
by ViewsAskew
Sat Jun 23, 2018 9:06 pm
Forum: Augmentation
Topic: Brain chemistry or pathways and dopamine agonists
Replies: 1
Views: 25

Re: Brain chemistry or pathways and dopamine agonists

I don't think I have heard that. I don't use it because I need it, rather it helps me reduce the opioid and helps reduce some of the opioid side effects. I am find on the opioid without it in terms of the RLS.

Did the person offer any studies?
by ViewsAskew
Tue Jun 19, 2018 9:59 am
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 594

Re: Hot Tub?

Stainless, I also take a very hot bath. Long ago when doing an internship at a state-run mental health facility, I was housed in a wing that used to be used for residents. The showers had thermostats on them, so you could tell what temp your shower was. I routinely took 112-117 degree showers (it wa...
by ViewsAskew
Mon Jun 18, 2018 3:08 am
Forum: Augmentation
Topic: Atlanta group
Replies: 1
Views: 113

Re: Atlanta group

Is anyone else in the Atlanta vicinity? I go to the Emory sleep center. Really would love a support group type thing. On day 6 with no miripax. Still really struggling. No where close to you, I am afraid. But, Day 6 is great! I mean, not the day, but that you made it that far. It really is hard. Mo...
by ViewsAskew
Sat Jun 16, 2018 12:40 am
Forum: Just Joined?
Topic: Stem Cell Transplant
Replies: 4
Views: 114

Re: Stem Cell Transplant

I appreciate and feel trememdous respect for all the RLS docs out there. But, Dr Rye? He is at at the top of the list. He is such an awesome doc - who has RLS. Knowing your dad is seeing him makes me feel a lot more hopeful for your dad. And, that you are here helping? Your dad is in a good place wi...
by ViewsAskew
Sat Jun 16, 2018 12:35 am
Forum: Prescription Medications
Topic: Desperate
Replies: 27
Views: 509

Re: Desperate

Hello to everyone who has offered advice. Here is an update - I've been taking 5 mg of hydrocodone and .25 mg of Requip every night about 7 pm. It has been miraculous to say the least. I've been sleeping all night, every night. I haven't been battling my legs. I still have RLS earlier in the day, p...
by ViewsAskew
Wed Jun 13, 2018 3:58 am
Forum: Prescription Medications
Topic: Requip & Erectile Dysfunction ???
Replies: 237
Views: 19882

Re: Requip & Erectile Dysfunction ???

When I read your latest post a couple days ago, I was at a loss for words. Still am. I feel exhausted from what so many of us go through, over and over and over. Just wish I saw more change - doesn't seem nearly fast enough.

I empathize and hope it changes soon.
by ViewsAskew
Mon Jun 11, 2018 3:31 pm
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 776

Re: What Calms You in the Night?

I always pee before I go anywhere or do anything, whether I have to or not. The preventative pee, I call it. You have to be SO tired to fall asleep glass of milk in hand. As when I fall to sleep in a yoga pose - we are just not meant to be that tired, yet here we all are! I fell asleep the other ni...
by ViewsAskew
Mon Jun 11, 2018 3:31 pm
Forum: Prescription Medications
Topic: Methadone was working, now it's not
Replies: 5
Views: 135

Re: Methadone was working, now it's not

Methadone definitely can make me very tired. I love to sleep when taking it - but 12 hours of sleep is not a good thing! And, when I reduce it, even a small amount, I have breakthrough RLS and cannot sleep much at all. So, I find I have to use it in combination. As Badnights wrote, I use it with a D...
by ViewsAskew
Fri Jun 08, 2018 3:30 pm
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 776

Re: What Calms You in the Night?

I've done the setting a timer also. Also keeping a chart with times and measured liquid output. I know fine well that it can be done because very often its 3 - 4 hours without difficulty but other times it's only 20 minutes and urgent. The old saying of "never pass a clean toilet" definit...
by ViewsAskew
Fri Jun 08, 2018 3:27 pm
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 594

Re: Hot Tub?

I sold real estate for a while, and made sure I understood the Fair Housing Law. Not only does it deal with non-discrimination issues, it also deals with issues of disability. Generally, a condo has to allow any reasonable accommodation to a unit that helps a person who otherwise cannot live there....
by ViewsAskew
Wed Jun 06, 2018 3:39 pm
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 23
Views: 776

Re: What Calms You in the Night?

I have attended for bladder urgency. Female doctor suggests that when urgency strikes (and we know that the bladder is not full) we should just relax and sing a song to ourselves. Or count backwards from 100 in 7s. Aye... right.... !! I'm happy to hear that you may get a bonus from your medication....
by ViewsAskew
Wed Jun 06, 2018 5:57 am
Forum: Physical Treatments
Topic: Hot Tub?
Replies: 16
Views: 594

Re: Hot Tub?

No idea if there is room for negotiation. I did sneak into the exercise room one night when I had nasty RLS - it's off a large courtyard and I was walking around in circles and decided to ride a bike for awhile. I chickened out after about five minutes - I never turned on a light, so they likely cou...
by ViewsAskew
Mon Jun 04, 2018 8:33 pm
Forum: Everything Else...just no RLS/WED!
Topic: Let's Talk Table Tennis
Replies: 10
Views: 1760

Re: Let's Talk Table Tennis

I grew up in a house with a table in a long narrow sun porch. Needless to say, we had a lot of unique rules. There was a fairly low light with a big glass shade above the middle. Hitting it was called “ringing the doorbell”. Cousins and small children loved playing our version of table tennis. :mrg...

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