Search found 13324 matches

by ViewsAskew
Tue Nov 13, 2018 10:04 pm
Forum: General Topics: RLS/WED
Topic: central sensitivity
Replies: 2
Views: 29

Re: central sensitivity

Very interesting. Are you recently diagnosed? Doc diagnosed me with fibro, but it doesn't seen right to me. Not sure this is, but it may be closer. Myofascial pain syndrome is another I have looked at. My hubbie and I both have times that a simply stroke on the skin can be painful. That is such an o...
by ViewsAskew
Tue Nov 13, 2018 9:59 pm
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 44
Views: 1211

Re: Back Surgery and RLS plus spasms

Deb - so, so, so, sorry to hear this. I know you were so hopeful. This is the worst, to me. To be let down, once again.

Hope your doc can figure out something to help.
by ViewsAskew
Tue Nov 13, 2018 6:57 am
Forum: Prescription Medications
Topic: methadone not working
Replies: 12
Views: 482

Re: methadone not working

2restless, what is his ferritin? I augmented terribly in about a week on DAs. But, since I have had three infusions and the ferritin is over 300, I can take the DA for much, much longer. I am up to three months without issue. I never could do that! Dr B still practices - he is my doc. I see him in D...
by ViewsAskew
Tue Nov 13, 2018 6:54 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Melatonin
Replies: 5
Views: 61

Re: Melatonin

Others have tried it without help. Valerian hasn't been all that effective for some of us, either. (if you use the search function, top right, you will find older posts about both) I cannot begin to guess how many of these I have tried. Basically, opioids and dopamine agonists are all that have help...
by ViewsAskew
Tue Nov 13, 2018 12:04 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Kratom and insomnia
Replies: 7
Views: 100

Re: Kratom and insomnia

I found that taking the methadone earlier helped a lot. If I want to sleep by midnight, say, I take the first methadone at 4-5 PM - say 1/4 of it. Then again at 8 PM - 1/2 of it. Then the remaining 1/4 just as I go to sleep. But that was a LOT of trial and error on my part to get to something that w...
by ViewsAskew
Sat Nov 10, 2018 12:42 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 44
Views: 1211

Re: Back Surgery and RLS plus spasms

I can empathize. :-(.
by ViewsAskew
Sat Nov 10, 2018 12:41 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1607

Re: Social Security - US

stjohnh wrote:Well, I am getting the second, even though I felt badly the day after. Shingles is very common and very nasty. I too think it is worth the day of feeling badly.


I watched my great aunt suffer horribly! I will take feeling badly for a day or so, too!
by ViewsAskew
Sat Nov 10, 2018 12:07 am
Forum: General Topics: RLS/WED
Topic: Characteristics of PLMD/PLMs
Replies: 7
Views: 112

Re: Characteristics of PLMD/PLMs

In the past, I read the same as sleepdancer noted - it must be a joint - toe, ankle, knee, hip are most common, but can be wrist, elbow or shoulder.
by ViewsAskew
Mon Nov 05, 2018 8:26 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1607

Re: Social Security - US

I am waiting for a vaccine - Shingrix - to be delivered to the doctor's office. Ann, Be sure you don't have plans for the day after your Shingrix shot. They have a VERY high rate of flu-like symptoms (headache, tiredness, muscle aches and fever). Shingrix is actually 2 injections months apart. Ther...
by ViewsAskew
Sat Nov 03, 2018 9:50 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1607

Re: Social Security - US

I definitely don't have fibroids that are of any size, thankfully. My last exam was a couple months before my periods stopped; I never had excess bleeding, clotting, or the typical issues of someone with them and the gynecologist said there were a few small ones, but no big deal. I guess they could ...
by ViewsAskew
Sat Nov 03, 2018 8:56 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1607

Re: Social Security - US

I did some research after the initial diagnosis. The consensus seemed to be that you should always get a fibro dx from a rheumatologist. I figure I will push that sometime in the future. My body is doing such odd things lately. I had a sinus infection - haven't had one in 20 years. That was fun...no...
by ViewsAskew
Thu Nov 01, 2018 9:44 pm
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1607

Re: Social Security - US

debbluebird wrote:Fibro can be very painful. My Doc says I have fibro.

My husband, SIL, and niece all have been diagnosed. Which is part of the reason I am skeptical. Can that many people really have it? Or is it being used when docs really don't know what the problem might be?
by ViewsAskew
Tue Oct 30, 2018 12:04 am
Forum: Just Joined?
Topic: Specialist to see?
Replies: 13
Views: 1206

Re: Specialist to see?

Audreylovescolor wrote:I'm not a member of RLS. Are most of you? And should I join?


I am for one reasons - no one else is trying to help us. THEY ARE! If a few dollars from me can combine with a few dollars from you and others, we can actually be part of the solution.
by ViewsAskew
Tue Oct 30, 2018 12:02 am
Forum: General Topics: RLS/WED
Topic: Just a rant
Replies: 5
Views: 270

Re: Just a rant

So sorry it is such a problem for you right now. I hope you find some way to improve it.
by ViewsAskew
Tue Oct 30, 2018 12:01 am
Forum: General Topics: RLS/WED
Topic: Social Security - US
Replies: 36
Views: 1607

Re: Social Security - US

debbluebird wrote:I always figured it was inflammation that makes mine high. Especially since I have really bad osteoarthritis.


I have no inflammatory issues that we can find. I have the pain, but if it is fibro, it isn't inflammatory. Who knows. The ANA wasn't high before, but this is going back years ago.

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