Search found 13395 matches

by ViewsAskew
Tue Feb 19, 2019 7:10 am
Forum: General Topics: RLS/WED
Topic: A disease by any other name is not the same...
Replies: 11
Views: 638

Re: A disease by any other name is not the same...

Well, you know how I feel...
by ViewsAskew
Thu Feb 14, 2019 11:01 am
Forum: General Topics: RLS/WED
Topic: Describe your RLS symptoms
Replies: 7
Views: 59

Re: Describe your RLS symptoms

Brynmr wrote: I hate it. All I want is to stop it. .


Yup. That is what I describe as the anxiety component. It takes over just about ALL other feelings and I am overwhelmed with a need to MAKE. IT. STOP.
by ViewsAskew
Thu Feb 14, 2019 10:59 am
Forum: General Topics: RLS/WED
Topic: Describe your RLS symptoms
Replies: 7
Views: 59

Re: Describe your RLS symptoms

Like Betty, in the evening mine starts as a warning which tells me to get up, start walking or it will get worse and not go away with walking. But unlike most rls sufferers, mine is pain, not electrical (which I think would be worse). It starts as just a low sensation but can ramp up to about 8 on ...
by ViewsAskew
Thu Feb 14, 2019 10:57 am
Forum: Prescription Medications
Topic: Neupro Cost
Replies: 12
Views: 94

Re: Neupro Cost

Stainless, do you know if they have a program - the company, that is - that provides it at a lower cost? I cannot think of what that is called, but some companies provide lower cost meds to people who need them and cannot afford them. Here - https://www.neupro.com/parkinsons-disease/neupro-savings-c...
by ViewsAskew
Thu Feb 14, 2019 10:47 am
Forum: Help for Relationships
Topic: I'm tired of fighting
Replies: 9
Views: 123

Re: I'm tired of fighting

I do not believe that for some of us that there is a magic bullet. I also don't believe that there is nothing we can do. Am I where I'd prefer to be? Not at all. Am I MUCH better than I was? Oh, yes! Are opioids perfect? Nope. But, over the years, between opioids, iron infusions, alternative such as...
by ViewsAskew
Thu Feb 14, 2019 10:39 am
Forum: Prescription Medications
Topic: It IS about Quality of Life
Replies: 14
Views: 745

Re: It IS about Quality of Life

...I was speaking with my friend and ask her to come up with a better nickname for the three L's. LIFE LONG LEARNER I am a happy student now because this does perfectly describe me. I cannot wait to tell my sister my new acronym. I think that's the correct word. This may be a teachable moment I wil...
by ViewsAskew
Mon Feb 11, 2019 3:05 am
Forum: General Topics: RLS/WED
Topic: Describe your RLS symptoms
Replies: 7
Views: 59

Re: Describe your RLS symptoms

I describe it similarly to Steve. It starts simply as an awareness of the body part - we normally do not think of our body parts unless there is something odd going on. Then there is an uncomfortable anxiety-like feeling. It actually makes me feel anxious in my body and brain. If I do not move (and ...
by ViewsAskew
Sat Feb 09, 2019 7:00 am
Forum: Augmentation
Topic: Vibration helped me through the drug holiday
Replies: 4
Views: 168

Re: Vibration helped me through the drug holiday

I was going to say the same thing that Holland did! Definitely try that out. I definitely believe that there are multiple "types" of RLS, including some people who have something else and are misdiagnosed. With few exceptions, we seem to do well with very different treatments. Then there i...
by ViewsAskew
Sat Feb 09, 2019 6:59 am
Forum: General Topics: RLS/WED
Topic: Is bromine causal?
Replies: 7
Views: 78

Re: Is bromine causal?

I noticed that you mentioned pramipexole...do you still take it? If so, are you familiar with the problems associated with it (and all others in that class)? If not, look up the term augmentation on this website - use the search function. I cannot say I have been in a hot tub more than 5 times in my...
by ViewsAskew
Thu Feb 07, 2019 8:31 am
Forum: Prescription Medications
Topic: It IS about Quality of Life
Replies: 14
Views: 745

Re: It IS about Quality of Life

Your last sentence says SO much. Isn't that what most of us want ? To be seen for who we actually are? Well, at least HERE you are! I use methadone. I don't think it is great for pain. I have fibro, RLS, and a bunch of tendon issues - hips, legs, arms all have chronic tendonitis issues. I currently ...
by ViewsAskew
Thu Feb 07, 2019 8:22 am
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 39
Views: 329

Welcome to BookmanJoe

Thursday, Feb 7th, we also welcome BookmanJoe. BookmanJoe has always had RLS, but it's gotten worse the last few years. It often does get worse as we age. But, other things can cause that and should be looked into. Poke around if you like, or post a new topic in one of the forums and let us know abo...
by ViewsAskew
Thu Feb 07, 2019 8:17 am
Forum: Just Joined?
Topic: FEBRUARY 2019 - New Members
Replies: 39
Views: 329

Welcome to He1ena

Thursday, Feb 7th, our newest member is He1ena. He1ena has been in a very rough patch for a few months; no sleep at all in the last 48 hours! So sorry you are having such a difficult time, He1ena! Hope that you can find some help here. Please do start a new post and let us know about your situation ...
by ViewsAskew
Tue Feb 05, 2019 12:54 am
Forum: General Topics: RLS/WED
Topic: Back Surgery and RLS plus spasms
Replies: 94
Views: 2788

Re: Back Surgery and RLS plus spasms

Over all, sounds like this was a very good thing.

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