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by ViewsAskew
Sat Nov 18, 2017 7:43 am
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 60
Views: 829

Re: Moving Mayhem

Good heavens - I am so appalled at my writing these days! Missing letters, horrible grammar, egregious syntax...damn RLS, damn lack of sleep, damn drugs....damn, damn, damn!
by ViewsAskew
Sat Nov 18, 2017 7:38 am
Forum: Everything Else...just no RLS/WED!
Topic: Harassed by repair person
Replies: 3
Views: 21

Re: Harassed by repair person

Leggo - crap - meds are working and I am not making sense - had to delete what I wrote. I will leave this page open so I remember to come back when I am awake.

In the meantime - am thinking of you. Hope you can find a way to start letting go of any blaming of yourself. This is about him - not you.
by ViewsAskew
Sat Nov 18, 2017 6:59 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 83
Views: 6885

Re: Infusion Update

Oh - forgot the other part. I am relatively sure he doesn't use the extended versions...but I want to talk to him about that. I did use hydromorphone, but the regular, way back whenever. The odd thing is that almost all of them gave me horrible headaches - from trigger points. I get tense and clench...
by ViewsAskew
Sat Nov 18, 2017 4:57 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 83
Views: 6885

Re: Infusion Update

Beth - I had the same thought. One of the issues last time was that I didn't get enough coverage and was up every 3 hours.l I was thinking that the perfect would likely be to take 5 mg methadone and then the remainder of a short acting opioid. Sadly, Dr B is not much into combining. I swear there wa...
by ViewsAskew
Fri Nov 17, 2017 1:17 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 358
Views: 78916

Re: Published Research - General Sleep and RLS (WED)

Sadly, vitamin D is not a therapy that works on its own...

https://www.healio.com/family-medicine/ ... s-syndrome
by ViewsAskew
Wed Nov 15, 2017 5:22 am
Forum: Just Joined?
Topic: New to Site; hello to all
Replies: 35
Views: 264

Re: New to Site; hello to all

Melatonin does not make me sleep. Valerian actually awakens me- I lucid dream if I sleep at all. Could be that these work differently for you than for other people?
by ViewsAskew
Wed Nov 15, 2017 4:57 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 27
Views: 1729

Re: Rate of Ferritin Decline

Indeed! I need mine closer to 200. And some people get to 300 and still have no relief. One reason may be a missing protein - Steve has written about that - he does not have it. But even with that, there is still a lot of variability. Thanks Ann! I just saw my neurologist who saw the improvement af...
by ViewsAskew
Tue Nov 14, 2017 2:31 am
Forum: General Topics: RLS/WED
Topic: New Doctor
Replies: 8
Views: 110

Re: New Doctor

debbluebird wrote:Saw my primary today and got the referral for Denver. Now, waiting for everything to go through to get appt.


Excellent!
by ViewsAskew
Mon Nov 13, 2017 7:25 pm
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 12
Views: 72

Re: random rant about a doctor

My memory is like Swiss cheese...and the holes are getting larger...
by ViewsAskew
Mon Nov 13, 2017 4:49 am
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 60
Views: 829

Re: Moving Mayhem

debbluebird wrote:I liked California when we lived there, except housing is so expensive.


That definitely is true! We are looking at it as downsizing for retirement a bit early :-).
by ViewsAskew
Mon Nov 13, 2017 4:47 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 83
Views: 6885

Re: Infusion Update

I had my annual visit with Dr. B on Friday. He said he didn't want to check ferritin until things were bad again, so I am guessing I will slowly just need more over time. It is a year since the infusion and 9 months since it started working. Ann, Does it usually take 3 months for the effects of an ...
by ViewsAskew
Mon Nov 13, 2017 2:13 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 83
Views: 6885

Re: Infusion Update

I had my annual visit with Dr. B on Friday. He said he didn't want to check ferritin until things were bad again, so I am guessing I will slowly just need more over time. It is a year since the infusion and 9 months since it started working. When I received it, I needed 35 mg of methadone every 24 h...
by ViewsAskew
Sun Nov 12, 2017 9:34 pm
Forum: Physical Treatments
Topic: Power Plate
Replies: 28
Views: 1104

Re: Power Plate

As all of you have illustrated, video can be powerful when you need to do something you haven't done and text cannot easily capture that. Working on a car, making a complex recipe, fixing something, etc. The rest of the time? Not often the best choice. But tell that to the marketing team!
by ViewsAskew
Sun Nov 12, 2017 9:02 pm
Forum: Help for Relationships
Topic: World War III - I pushed the button
Replies: 51
Views: 10661

Re: World War III - I pushed the button

My first foray into self-help and making my life better was reading the book Codependent No More, by Melody Beattie. I still go back to one of her tenets (EDITED FOR HORRIBLE SPELLING, LOL) when I need to. If possible, detach with love. When that doesn't work, detach however you have to. When we sta...
by ViewsAskew
Sun Nov 12, 2017 8:56 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 27
Views: 1729

Re: Rate of Ferritin Decline

Hi stjohn, are there any other iron indices that will be helpful other than ferritin? or am I just stuck given that they are not going to measure the low iron saturation There are several tests of iron status, however the real problem is not so much the tests that are available, but that the relati...

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