Search found 12898 matches

by ViewsAskew
Tue Nov 21, 2017 7:23 am
Forum: Prescription Medications
Topic: Requip & Erectile Dysfunction ???
Replies: 220
Views: 10344

Re: Requip & Erectile Dysfunction ???

dboy - the first thing I noticed about your post is that part where you are increasing the dose and your symptoms are worse, now starting in mid afternoon. Definitely signs of augmentation - if you are not familiar with it, please read about it. My meds are working and I am unlikely to be very helpf...
by ViewsAskew
Tue Nov 21, 2017 7:20 am
Forum: Prescription Medications
Topic: Two very different doctors' visits
Replies: 19
Views: 135

Re: Two very different doctors' visits

I am so grateful for the folks here who share their time, information, empathy, and ideas. Not sure if I ever would have figured out some of the things I have. As many people have found, opioids are terribly alerting for me, but only initially. When I take them earlier than I would - and I mean WAY ...
by ViewsAskew
Sun Nov 19, 2017 1:41 pm
Forum: Prescription Medications
Topic: Two very different doctors' visits
Replies: 19
Views: 135

Re: Two very different doctors' visits

I plan to join the RLS Foundation. The publication will be worth it. I feel that my doctor doesn't see the need to research the meds and that I don't have any credibility. Tuesday I have an appointment with the PA for my pain management doctor. They have decided to wean me off of opioids slowly but...
by ViewsAskew
Sun Nov 19, 2017 9:45 am
Forum: Everything Else...just no RLS/WED!
Topic: Harassed by repair person
Replies: 9
Views: 62

Re: Harassed by repair person

Crap - same again tonight....except tonight legs are bothering me while my eyes are barely open. See if I can write this.... I was emancipated from my parents and on my own at 17. So, summers during college I would stay with whomever would have me. One year a college friend, one year my closest frie...
by ViewsAskew
Sat Nov 18, 2017 7:43 am
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 62
Views: 921

Re: Moving Mayhem

Good heavens - I am so appalled at my writing these days! Missing letters, horrible grammar, egregious syntax...damn RLS, damn lack of sleep, damn drugs....damn, damn, damn!
by ViewsAskew
Sat Nov 18, 2017 7:38 am
Forum: Everything Else...just no RLS/WED!
Topic: Harassed by repair person
Replies: 9
Views: 62

Re: Harassed by repair person

Leggo - crap - meds are working and I am not making sense - had to delete what I wrote. I will leave this page open so I remember to come back when I am awake.

In the meantime - am thinking of you. Hope you can find a way to start letting go of any blaming of yourself. This is about him - not you.
by ViewsAskew
Sat Nov 18, 2017 6:59 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 7014

Re: Infusion Update

Oh - forgot the other part. I am relatively sure he doesn't use the extended versions...but I want to talk to him about that. I did use hydromorphone, but the regular, way back whenever. The odd thing is that almost all of them gave me horrible headaches - from trigger points. I get tense and clench...
by ViewsAskew
Sat Nov 18, 2017 4:57 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 7014

Re: Infusion Update

Beth - I had the same thought. One of the issues last time was that I didn't get enough coverage and was up every 3 hours.l I was thinking that the perfect would likely be to take 5 mg methadone and then the remainder of a short acting opioid. Sadly, Dr B is not much into combining. I swear there wa...
by ViewsAskew
Fri Nov 17, 2017 1:17 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 358
Views: 79186

Re: Published Research - General Sleep and RLS (WED)

Sadly, vitamin D is not a therapy that works on its own...

https://www.healio.com/family-medicine/ ... s-syndrome
by ViewsAskew
Wed Nov 15, 2017 5:22 am
Forum: Just Joined?
Topic: New to Site; hello to all
Replies: 35
Views: 328

Re: New to Site; hello to all

Melatonin does not make me sleep. Valerian actually awakens me- I lucid dream if I sleep at all. Could be that these work differently for you than for other people?
by ViewsAskew
Wed Nov 15, 2017 4:57 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Rate of Ferritin Decline
Replies: 27
Views: 1783

Re: Rate of Ferritin Decline

Indeed! I need mine closer to 200. And some people get to 300 and still have no relief. One reason may be a missing protein - Steve has written about that - he does not have it. But even with that, there is still a lot of variability. Thanks Ann! I just saw my neurologist who saw the improvement af...
by ViewsAskew
Tue Nov 14, 2017 2:31 am
Forum: General Topics: RLS/WED
Topic: New Doctor
Replies: 8
Views: 124

Re: New Doctor

debbluebird wrote:Saw my primary today and got the referral for Denver. Now, waiting for everything to go through to get appt.


Excellent!
by ViewsAskew
Mon Nov 13, 2017 7:25 pm
Forum: General Topics: RLS/WED
Topic: random rant about a doctor
Replies: 12
Views: 89

Re: random rant about a doctor

My memory is like Swiss cheese...and the holes are getting larger...
by ViewsAskew
Mon Nov 13, 2017 4:49 am
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 62
Views: 921

Re: Moving Mayhem

debbluebird wrote:I liked California when we lived there, except housing is so expensive.


That definitely is true! We are looking at it as downsizing for retirement a bit early :-).
by ViewsAskew
Mon Nov 13, 2017 4:47 am
Forum: Prescription Medications
Topic: Infusion Update
Replies: 84
Views: 7014

Re: Infusion Update

I had my annual visit with Dr. B on Friday. He said he didn't want to check ferritin until things were bad again, so I am guessing I will slowly just need more over time. It is a year since the infusion and 9 months since it started working. Ann, Does it usually take 3 months for the effects of an ...

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