Search found 14164 matches

by ViewsAskew
Tue Apr 20, 2021 6:23 pm
Forum: Prescription Medications
Topic: Neupro Side Effect--Gambling?
Replies: 43
Views: 2479

Re: Neupro Side Effect--Gambling?

After the whole side effect from Neupro and visiting his neurologist, he was taken off the DA and is now on the lowest dose of Methadone. We definitely went through a lot, and he admitted to being completely addicted to VGM/slots. He also still take Lyrica. He was very embarrassed by the side effec...
by ViewsAskew
Sat Apr 17, 2021 9:31 pm
Forum: Augmentation
Topic: Augmentation, Low BP, and chronic heart failure
Replies: 2
Views: 50

Re: Augmentation, Low BP, and chronic heart failure

Pramipexole is known to lower BP, if I remember correctly. I wonder if coming off of it would actually help that?

What other things have you tried?
by ViewsAskew
Wed Apr 14, 2021 5:32 am
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 42
Views: 2469

Re: Spinal Stimulator

Spinal Cord Stimulation for Restless Legs Syndrome: Case Series and Mechanistic Hypothesis Abstract Background: Spinal cord stimulation (SCS) is a well-established therapy for chronic pain syndromes, with growing applicability to other conditions. Restless legs syndrome (RLS) is a widespread, chron...
by ViewsAskew
Tue Apr 13, 2021 9:39 pm
Forum: General Topics: RLS
Topic: Resources in Canada
Replies: 1
Views: 49

Re: Resources in Canada

Wish I had an answer for you.

What kind of stuff are you looking for? Might help us help you.
by ViewsAskew
Tue Apr 13, 2021 9:38 pm
Forum: Prescription Medications
Topic: Returning to NeuPro but...
Replies: 1
Views: 35

Re: Returning to NeuPro but...

Just one thought...when we stop opioids, we can have symptoms that feel almost identical to RLS/WED. Because some of them have a long half-life, it can take several weeks to get them out of your system and have the other meds work at the lower dose.
by ViewsAskew
Tue Apr 13, 2021 12:25 am
Forum: General Topics: RLS
Topic: Must I have a sleep study done?
Replies: 9
Views: 291

Re: Must I have a sleep study done?

Yawny: I missed that suggestion you made about contacting Dr. Buchfuhrer, but that's a good idea to ask him if he himself would insist on a sleep study. Thanks! Polar Bear/Betty: good insight about how having active RLS makes it so much easier to talk about the problems. With quite a collection of ...
by ViewsAskew
Wed Apr 07, 2021 7:00 am
Forum: Just Joined?
Topic: RLS and the COVID Vaccine
Replies: 7
Views: 281

Re: RLS and the COVID Vaccine

I got Pfizer last Friday. I had worsened RLS, but I was reducing the opioid at the time - my guess is that the med reduction was the cause.
by ViewsAskew
Sat Apr 03, 2021 12:33 am
Forum: General Topics: RLS
Topic: How many hours do you sleep?
Replies: 16
Views: 251

Re: How many hours do you sleep?

As stjohn noted, you can sleep and not be rested. I was sleeping 12-14 hours around 2000 and was exhausted. The sleep study showed the PLMS in the incredibly high range. I rarely got out of stage 2 sleep and awakened 30 or more times that I was aware of, let alone all I wasn't aware of. When I have ...
by ViewsAskew
Thu Apr 01, 2021 9:52 pm
Forum: Prescription Medications
Topic: Experience of having IV iron
Replies: 9
Views: 1144

Re: Experience of having IV iron

daryl1139 wrote:
Mon Mar 29, 2021 9:21 pm
I was wondering if this iv iron helped with the restless legs at all?
advise,
Daryl
It helps some of us, not others. It helps me - am due for another infusion right now, actually. It reduces my need to take opioids by about 45-50 percent. That really helps.
by ViewsAskew
Thu Apr 01, 2021 9:50 pm
Forum: Just Joined?
Topic: going "cold turkey"
Replies: 36
Views: 1451

Re: going "cold turkey"

Wow, what a rocky few days, culminating with a trip to the ER today. Before I fill you in, please let me know if I should stay where I am or post under another category. Now, here's the story. Wednesday I took my last .25 mg of pramipexole (my friend has the rest of the bottle). Also on Wednesday I...
by ViewsAskew
Thu Apr 01, 2021 9:47 pm
Forum: Physical Treatments
Topic: Spinal Stimulator
Replies: 42
Views: 2469

Re: Spinal Stimulator

I can imagine that getting off the methadone has been a bit troublesome!
by ViewsAskew
Thu Apr 01, 2021 9:46 pm
Forum: Prescription Medications
Topic: Emory Healthcare in Atlanta - Anyone Use?
Replies: 8
Views: 128

Re: Emory Healthcare in Atlanta - Anyone Use?

I have not, but I would. Dr. Rye is there - he has spent a lot of time looking at the genetics of this dratted disease. He has RLS/WED! I really liked him when I met him in person at a Foundation event many years ago.
by ViewsAskew
Sat Mar 27, 2021 10:24 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Stressless Chairs
Replies: 12
Views: 494

Re: Stressless Chairs

For what it's worth, my brother thought he had severe RLS/WED for years. Then he had back surgery - what he thought was RLS was not it at all! Well, part of it was, but a lot of it was not. Now he has very mild symptoms only here and there. Ann, when I read this I wondered if maybe he did have a fo...
by ViewsAskew
Thu Mar 25, 2021 6:50 pm
Forum: Augmentation
Topic: new member - transitioning from ropinirole to gabapentin
Replies: 49
Views: 4907

Re: new member - transitioning from ropinirole to gabapentin

Agreed with both of the above. That is a high dose of ropinerole given what we know today (vs 15 yrs ago when it was approved).
by ViewsAskew
Thu Mar 25, 2021 6:48 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Stressless Chairs
Replies: 12
Views: 494

Re: Stressless Chairs

Thank you, that was helpful! You are very welcome! Over time, we have had a few people here who had RLS/WED and something else...or didn't have RLS/WED at all. There aren't too many things that are confused with it, but any type of neuropathy could be, as well as four or five other conditions, IIRC.