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by ViewsAskew
Fri May 25, 2018 4:25 pm
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 15
Views: 227

Re: Recent restrictions on length of opioid prescriptions

Steve, many thanks -- I am inspired by your suggestions. Ann, thanks for explaining the out-of-state process. Sounds like you eventually moved to California to be close to Dr. B. -- ? Wow. I will send up prayers that he won't retire any time soon. I was just reading over your post above, and I'm am...
by ViewsAskew
Fri May 25, 2018 4:14 pm
Forum: Prescription Medications
Topic: Methadone and Gabapentin no longer working well
Replies: 28
Views: 676

Re: Methadone and Gabapentin no longer working well

YAY! Deb, I augmented the first time in less than two weeks. I could easily take it 5 days without issue, even when my ferritin was only around 30. It worked well to take it Sun through Thursday so my week was peretty good, then be off on Friday and Saturday. My ferritin was 8 when I originally augm...
by ViewsAskew
Fri May 25, 2018 3:54 am
Forum: Prescription Medications
Topic: Desperate
Replies: 22
Views: 146

Re: Desperate

I actually use kratom to help me fall to sleep. It makes me sleepy and since I can be stimulated by both dopaminergics and opioids, it can be excellent for me. MM (medical marijuana) also does this for me, as do a few other things. If you continue to have trouble falling to sleep, it may be worth in...
by ViewsAskew
Tue May 22, 2018 8:11 pm
Forum: Everything Else...just no RLS/WED!
Topic: Let's Talk Table Tennis
Replies: 6
Views: 1298

Re: Let's Talk Table Tennis

We just moved into a condo complex that has a table. We haven't tried it, yet....I imagine I will be terrible since I have not played since I was about 7. We have been regularly playing billiards, though.
by ViewsAskew
Tue May 22, 2018 8:09 pm
Forum: Prescription Medications
Topic: Has anyone used Lyrica for RLS
Replies: 3
Views: 74

Re: Has anyone used Lyrica for RLS

drFred, what exactly have you tried - and, if you remember, at what dosages?
by ViewsAskew
Tue May 22, 2018 8:08 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Iron has helped
Replies: 7
Views: 101

Re: Iron has helped

Great news!
by ViewsAskew
Sat May 19, 2018 2:40 am
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 64
Views: 7344

Re: tapering off ropinirole

DAWS is very unlikely with low doses. How much are you taking, Bronwen? Once you get to 1 mg or pramipexole, I do not believe there are issues with stopping it immediately - but check with a pharmacist to be sure. I'd check with Dr. B - email him as somno@verizon.net. He usually says to stop cold tu...
by ViewsAskew
Sat May 19, 2018 2:29 am
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 15
Views: 227

Re: Recent restrictions on length of opioid prescriptions

Oh - forgot to say how it used to work for me. I would fly to CA to see Dr. B. I left with a hard copy script written per CA law. Illinois law differed, so I would have to remind them to write it so it could be filled in IL (they had to write out the word for numbers as well as include the number). ...
by ViewsAskew
Sat May 19, 2018 2:22 am
Forum: Prescription Medications
Topic: Recent restrictions on length of opioid prescriptions
Replies: 15
Views: 227

Re: Recent restrictions on length of opioid prescriptions

So sorry, mudslide. Glad you have some, at least, to keep you going for awhile. I once had a 45 day stash - it was wiped to zero in a heartbeat, it seemed. I like California in some ways, but don't love Los Angeles...but I will stay here as long as I have to. If I have to pay cash for the scripts, s...
by ViewsAskew
Fri May 18, 2018 8:33 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 803

Re: Prescription Refills

If I wake up from RLS, I know it either because 1) I slowly exited deep sleep to stage 1 and in stage 1 could recall the sensations in my body when I awakened completely, or 2) I awakened and thought, gee, I'll go back to sleep only to feel the RLS start building before I could get back to sleep, bu...
by ViewsAskew
Fri May 18, 2018 8:29 am
Forum: General Topics: RLS/WED
Topic: IV iron infusion
Replies: 2
Views: 65

Re: IV iron infusion

Answered the question in other thread where you also asked.
by ViewsAskew
Fri May 18, 2018 8:28 am
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 8
Views: 140

Re: Refractory RLS

I have had it twice in one infusion of 1000 and a third time in two of 750 (mistake by the doctor - but my ferritin is high now!). I think I had InFed - but may be remembering incorrectly. I don't think there are many low molecular weigh formulations, so likely you don't have more than an option or ...
by ViewsAskew
Fri May 18, 2018 8:22 am
Forum: General Topics: RLS/WED
Topic: Frantic...RLS 24/7
Replies: 4
Views: 85

Re: Frantic...RLS 24/7

I love the sleep I get from opioids. But, I have no desire to take MORE opioids. I just want the sleep. Addiction is craving the substance so that you take more and do anything to get more. There is a small chance that you would become addicted. My dad died of alcoholism and abused drugs - it scared...
by ViewsAskew
Mon May 14, 2018 6:39 am
Forum: Prescription Medications
Topic: Uh-oh... methadone hassles?
Replies: 25
Views: 270

Re: Uh-oh... methadone hassles?

Oh, mudslide, what a pickle you are in. And, the record! That must be terrifying!

I am feeling really nasty at the moment and I want to respond. Will come back soon. Hope others chime in and have some ideas.
by ViewsAskew
Sun May 13, 2018 9:00 pm
Forum: General Topics: RLS/WED
Topic: Refractory RLS
Replies: 8
Views: 140

Re: Refractory RLS

When I was augmented and stopped pramipexole, it initially was better when I reduced it, then hit a point where symptoms increased. Given that your husband is taking a relatively small dose of pramipexole by now, I wonder if it might be time to simply stop it - likely no reason to prolong it and as ...

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