Search found 13227 matches

by ViewsAskew
Thu Aug 16, 2018 8:14 pm
Forum: Physical Treatments
Topic: varicose vien removal and rls!!
Replies: 13
Views: 3762

Re: varicose vien removal and rls!!

I have had 2 of 4 needed vein ablutions. Bad circulation especially in my right leg which had the worst RLS. I noticed my RLS symptoms are almost gone. I have reduced my highly augmented mirapex dose of 1 mg to half and plan to wean off the meds. It seems to get better every day and have forgotten ...
by ViewsAskew
Thu Aug 16, 2018 8:13 pm
Forum: Prescription Medications
Topic: How to go off mirapex
Replies: 1
Views: 24

Re: How to go off mirapex

At one mg, some doctors would have you just stop. But, tapering is never a bad idea and because there is a risk - albeit a small one - of problems (DAWS), seem prudent to continue what you are going - once you get to a 1/4, you can see what happens if you stop. You will likely have some side effects...
by ViewsAskew
Thu Aug 16, 2018 8:07 pm
Forum: Prescription Medications
Topic: Neupro
Replies: 8
Views: 74

Re: Neupro

I was put on neupro by my sleep consultant after withdrawing from pramipexole following augmentation. She left a gap of about three months between stopping pramipexole and starting neupro. I never found neupro to be as effective as pramipexole. I also started to augment on neupro quite quickly. I h...
by ViewsAskew
Wed Aug 15, 2018 6:50 am
Forum: Prescription Medications
Topic: How long does it take for Lyrica to start working?
Replies: 13
Views: 163

Re: How long does it take for Lyrica to start working?

I''m in Illinois. Its a little ways to Colorado. But not too bad. Some people think Illinois is close to legalizing it for recreational use. Hope so. I'd much rather use the edibles. Its hard to get the correct dose smoking it. If i don't get enough.. it does nothing. If i get too much it keeps me ...
by ViewsAskew
Tue Aug 14, 2018 5:59 am
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 163

Re: weather

Oh - if you were coming we could have met! I can walk to Dodger Stadium! The weather was SO much better today. We walked to Walgreens around 7 PM and it was glorious out. Glad they are coming now. And, the beach is about 5-10 degrees cooler most times, so highs should be no more than 80 this week.
by ViewsAskew
Tue Aug 14, 2018 5:56 am
Forum: Physical Treatments
Topic: varicose vien removal and rls!!
Replies: 13
Views: 3762

Re: varicose vien removal and rls!!

Irmajs - parts of our stories are identical. No vein issues, but a neuro who assured me he could treat me, increased the DA until I was so augmented I had 24/7 RLS, never tested my ferritin (mine turned out to be 8), and so on. Had another who refused to believe augmentation existed or that opioids ...
by ViewsAskew
Mon Aug 13, 2018 8:22 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 722
Views: 45191

Re: Riding the Big One (RLS 24/7, Hanging Ten)

ly on another thread Trazadone has been mentioned. It would appear to help with sleep, at least initially. Although not without it's negative effects the next day. Or getting used to it. For someone (moi !!) who never sleeps more than a couple of hours continuously, I'm wondering would it be worth ...
by ViewsAskew
Mon Aug 13, 2018 8:19 pm
Forum: Everything Else...just no RLS/WED!
Topic: weather
Replies: 15
Views: 163

Re: weather

We are st 8,100 feet in Colorado. 80 and 90's. It has been warmer this summer, at times. Like Steve said, cools at night, sometimes in the 40's. I like 60's the best. I LOVE the 60s, lol. It's been about 20% hotter in LA this summer than normal and not cooling down at night at all. I am SO tired of...
by ViewsAskew
Mon Aug 13, 2018 8:16 pm
Forum: Prescription Medications
Topic: How long does it take for Lyrica to start working?
Replies: 13
Views: 163

Re: How long does it take for Lyrica to start working?

Yea..i'm gona wait one more week to add it back at a small dose. Hopefully it works and i can get off hydrocodone and THC. I don't qualify in my state for MMJ. So i have to get it the old fashioned way. Which i don't really care to do after getting permanent lung damage from a respiratory infection...
by ViewsAskew
Wed Aug 08, 2018 1:06 am
Forum: General Topics: RLS/WED
Topic: Sleeping position relating to RLS symptoms
Replies: 6
Views: 145

Re: Sleeping position relating to RLS symptoms

if you search on this topic, people have talked about this off and on for 15 years! Clearly some of us find this makes things worse (or better).
by ViewsAskew
Wed Aug 08, 2018 1:05 am
Forum: Just Joined?
Topic: Antidepressants
Replies: 2
Views: 79

Re: Antidepressants

The good news is that many of us find we CAN take an AD. The avg chance they will cause something is relatively low - about 90% of us have no issues. Of course, if you are in the 10%, then it's horrible! As Betty said, trial and error can help you find one that will help. Does the AD help for the pa...
by ViewsAskew
Tue Aug 07, 2018 3:08 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 5
Views: 169

Re: best iron suppliment to increase ferritin levels?

And, if it bothers you, take it with food. Sure, it reduces absorption, but better to get some than none.
by ViewsAskew
Tue Aug 07, 2018 2:43 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 7
Views: 246

Re: Histamine/Tyramine Food Triggers

I was reading this blog about gut health recently and also read a study about weight loss. Both were about gut bacteria. In the weight loss study, they found that people with certain types of bacteria lost less weight - the hypothesis is that the different bacteria are much more efficient. The blog ...
by ViewsAskew
Mon Aug 06, 2018 10:51 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 5
Views: 169

Re: best iron suppliment to increase ferritin levels?

That isn't enough ferritin. What I've read from the RLS experts is to take 65 mg of elemental iron 3 times a day, empty stomach, with an acid, such as orange juice if at all possible. Once every other day is 1/6th of that. Even if you take it this way, there is no guarantee it will work, sadly. Eith...
by ViewsAskew
Sat Aug 04, 2018 8:28 am
Forum: General Topics: RLS/WED
Topic: Need RLS MD in Western Massachusetts
Replies: 2
Views: 82

Re: Need RLS MD in Western Massachusetts

I don't recall anyone ever posting about Western MA. I cannot imagine how you must feel about now.

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