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by ViewsAskew
Tue Aug 22, 2017 2:36 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 175
Views: 8396

Re: What Severe RLS is Like

When I reduce or stop methadone for awhile, it takes about two weeks for me to get back to my regular dose working...
by ViewsAskew
Mon Aug 21, 2017 2:51 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 175
Views: 8396

Re: What Severe RLS is Like

EeFall wrote:Back to "normal" at 2 mg dose. 8 hours and 10 minutes sleep last night. Still a little more tired than usual but I suspect it will be okay tomorrow. Yeah 1/2 meds is a victory, but it shattered my illusion of getting totally well. That's life :lol:


Been there, done that!
by ViewsAskew
Sun Aug 20, 2017 4:58 am
Forum: Just Joined?
Topic: August 2017 - New Members
Replies: 27
Views: 215

Welcome to savagenights

Welcome to savagenights who has RLS and neuropathy. With the opioid crisis in the US, the doc has refused to prescribe and the RLS is back with a vengeance. Working with good doctor, but taking time to get a med that works.
by ViewsAskew
Fri Aug 18, 2017 8:14 pm
Forum: Prescription Medications
Topic: Keeping your prescriptions safe
Replies: 6
Views: 43

Re: Keeping your prescriptions safe

Yikes.
by ViewsAskew
Wed Aug 16, 2017 8:23 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 370
Views: 17562

Re: Medical Marijuana

Whoo-hoo!
by ViewsAskew
Tue Aug 15, 2017 9:11 pm
Forum: Augmentation
Topic: What To Do?
Replies: 29
Views: 1036

Re: What To Do?

Thanks for sharing that. It is indeed miserable, isn't it?
by ViewsAskew
Tue Aug 15, 2017 7:38 pm
Forum: Prescription Medications
Topic: Worried
Replies: 6
Views: 56

Re: Worried

Was at a political training this weekend and heard someone mention it. They must have thought I was crazy when I interrupted and vented my opinion...
by ViewsAskew
Tue Aug 15, 2017 7:37 pm
Forum: General Topics: RLS/WED
Topic: I think I am in remission
Replies: 7
Views: 741

Re: I think I am in remission

I found this old post as I am looking for cause of my RLS appearantly going away and wonder now if it wasn't from the problems I have been having with my feet. The linked articles say that the patients RLS went into remission having foot surgery with injections. I know it is not the same thing but ...
by ViewsAskew
Tue Aug 15, 2017 7:34 pm
Forum: Everything Else...just no RLS/WED!
Topic: Unhappy
Replies: 4
Views: 45

Re: Unhappy

Tell us more about what is happening with you.
by ViewsAskew
Tue Aug 15, 2017 6:28 am
Forum: Prescription Medications
Topic: Worried
Replies: 6
Views: 56

Re: Worried

I do. And, my guess is that others do, too.
by ViewsAskew
Mon Aug 14, 2017 7:10 am
Forum: General Topics: RLS/WED
Topic: Two hours of sleep
Replies: 141
Views: 4454

Re: Two hours of sleep

Good!
by ViewsAskew
Sat Aug 12, 2017 1:58 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 175
Views: 8396

Re: What Severe RLS is Like

So wonderful to hear.
by ViewsAskew
Fri Aug 11, 2017 5:07 pm
Forum: Just Joined?
Topic: RLS only in feet?
Replies: 13
Views: 168

Re: RLS only in feet?

Yes, Yes, Yes, It's the Ferritin test that is important. Ferritin isn’t the same thing as iron in your body. Instead, ferritin is a protein that stores iron, releasing it when your body needs it. can I check if any one (or your doctors) uses more than just ferritin as a guide? I was watching the vi...
by ViewsAskew
Fri Aug 11, 2017 5:03 pm
Forum: Prescription Medications
Topic: Infusion Update
Replies: 68
Views: 4549

Re: Infusion Update

To add to that, some people need a measure of 75, some 100, some 200. At Johns Hopkins, Dr Earley notes the level at which they are diminished and then keeps the ferritin at least that high. For me, this is over 200. hello viewsakew, i don't think I really understand the above very well, do you min...
by ViewsAskew
Fri Aug 11, 2017 2:41 am
Forum: Just Joined?
Topic: greetings so glad I'm not alone!
Replies: 1
Views: 40

Re: greetings so glad I'm not alone!

Hi Libby2 - you are logged in now! Glad to have you here...sorry you need to be.

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