Search found 12835 matches

by ViewsAskew
Mon Oct 23, 2017 9:17 pm
Forum: General Topics: RLS/WED
Topic: RLS or something else? Part 2
Replies: 75
Views: 6968

Re: RLS or something else? Part 2

WOW. That is really incredible. I bet you really do feel better! I wonder if there were any toxins in the fish oil - heavy metals, maybe? - that added to the issue. Funny, I started my journey with an elimination diet. I had no results, so headed down other paths. I am very envious when this works f...
by ViewsAskew
Mon Oct 23, 2017 6:57 am
Forum: General Topics: RLS/WED
Topic: Another dumb pharmacy trip
Replies: 10
Views: 37

Re: Another dumb pharmacy trip

leggo_my_legs wrote:So wait, you gave the pharmacy the research and then your doctor who was prescribing the medication for you fired you?! Bizarre. And awful.


Yup. She was the second doc to fire me and the third who refused to deal with opioids.
by ViewsAskew
Mon Oct 23, 2017 4:54 am
Forum: Augmentation
Topic: Neurologist Has No Clue
Replies: 11
Views: 1439

Re: Neurologist Has No Clue

Hannah, sorry you had to go through with that. Unfortunately, it is a story that many of us can relate to. I found that rather than asking the doctor's receptionist, I asked to speak with the lead nurse. On several occasions the receptionist reported that the doctor treated RLS patients. But I got ...
by ViewsAskew
Sun Oct 22, 2017 11:37 pm
Forum: Everything Else...just no RLS/WED!
Topic: Moving Mayhem
Replies: 32
Views: 373

Re: Moving Mayhem

Mayhem continues. Not sure what I shared...the gist is that we are moving to CA, as many of you know. We own a condo that had been rented for the last 6 years, and were staying at a house that is owned by inlaws. We were going to sell, but a unique storm of factors conspired against us, so we decide...
by ViewsAskew
Sun Oct 22, 2017 9:46 pm
Forum: Augmentation
Topic: Neurologist Has No Clue
Replies: 11
Views: 1439

Re: Neurologist Has No Clue

Hello everyone: I live in NYC and went to see a Neurologist with the best diplomas from the best schools hang in her office. I do believe that she is probably good at treating serious neurologist disorders but she had elementary knowledge about RLS and certainly no knowledge about medications or au...
by ViewsAskew
Sun Oct 22, 2017 6:17 pm
Forum: Help for Relationships
Topic: Outburst at UPS Store Guy
Replies: 13
Views: 94

Re: Outburst at UPS Store Guy

Thanks, leggo. It is good to feel better. I bet my husband is happy, too, lol. I usually am social more on places such as this and less so in person. I need a great deal of personal space and alone time. But, I had gotten so I did not leave the house for weeks at a time and didn't even want to mow t...
by ViewsAskew
Sun Oct 22, 2017 5:59 pm
Forum: General Topics: RLS/WED
Topic: Process for going to a Referral Center
Replies: 10
Views: 30

Re: Process for going to a Referral Center

Thanks. I found him! He is listed as one of the specialists at the Quality Care Center at Emory. I will give him and call. Excellent! The first time I met him was at the first RLS conference. It was in 2005, I think. He and I were both pacing outside the room where someone was speaking. We chatted ...
by ViewsAskew
Sun Oct 22, 2017 5:53 pm
Forum: General Topics: RLS/WED
Topic: Not-so-friendly remimder re unmedicated PMLS
Replies: 6
Views: 14

Re: Not-so-friendly remimder re unmedicated PMLS

It really is amazing how much of a slap we get when we are late or forget! So sorry you had to feel so crappy. For me, it is more like Steve experienced, if I forget an early dose - the icky early withdrawal feeling. At night, if I forget, I am usually eating a late dinner (we eat between 8 and 9 mo...
by ViewsAskew
Sun Oct 22, 2017 4:21 am
Forum: General Topics: RLS/WED
Topic: Process for going to a Referral Center
Replies: 10
Views: 30

Re: Process for going to a Referral Center

I have not been to any of the Quality Care Centers; Dr. Rye is out of Emory and is one of my favorite RLS specialists - because he HAS RLS. He completely gets what happens to us. If I could see him, I would do it in a heartbeat. Not to say other docs there are not likely excellent. I imagine there ...
by ViewsAskew
Sat Oct 21, 2017 10:07 pm
Forum: General Topics: RLS/WED
Topic: Another dumb pharmacy trip
Replies: 10
Views: 37

Re: Another dumb pharmacy trip

One of the RLS specialists - Dr Becker, IIRC - once told us at an RLS conference that it was about 7% that get addicted and that this was controlling the other 93%'s access. The pharmacist - local - called my local doc. She was prescribing while working with Dr. B, so she was NOT at all invested. In...
by ViewsAskew
Sat Oct 21, 2017 9:53 pm
Forum: Help for Relationships
Topic: Outburst at UPS Store Guy
Replies: 13
Views: 94

Re: Outburst at UPS Store Guy

I was lucky to have a small consulting company; I did corporate communications, training, process improvement, quality, and the like. For a few years, I was slightly depressed to quite depressed. In the last year (since the last infusion and a lessening of symptoms, interestingly enough), I realize ...
by ViewsAskew
Sat Oct 21, 2017 8:19 pm
Forum: Just Joined?
Topic: I am Raman - Just joined
Replies: 1
Views: 21

Re: I am Raman - Just joined

Interesting. Hope it continues to work. Please inform us of how it works over time.
by ViewsAskew
Sat Oct 21, 2017 8:18 pm
Forum: General Topics: RLS/WED
Topic: Another dumb pharmacy trip
Replies: 10
Views: 37

Re: Another dumb pharmacy trip

All pharmacies do this - not trying to minimize what you went through! It takes such a psychic toll to be on this rollercoaster, doesn't it? I have stories CVS and Walgreens that would curl your toes, including the time Walgreens made ME prove that opioids are used to treat RLS. With studies. Thanks...
by ViewsAskew
Sat Oct 21, 2017 8:13 pm
Forum: General Topics: RLS/WED
Topic: Process for going to a Referral Center
Replies: 10
Views: 30

Re: Process for going to a Referral Center

I have not been to any of the Quality Care Centers; Dr. Rye is out of Emory and is one of my favorite RLS specialists - because he HAS RLS. He completely gets what happens to us. If I could see him, I would do it in a heartbeat. Not to say other docs there are not likely excellent. I imagine there c...
by ViewsAskew
Fri Oct 20, 2017 4:15 pm
Forum: Just Joined?
Topic: Severity of RLS/WED?
Replies: 3
Views: 29

Re: Severity of RLS/WED?

While I qualify as severe, mine is not as bad as it was - it has been a very slow reversal after augmentation. I used to have it 24/7. Then it was about 18/7. After my third iron infusion, it seems to be about 16/7. Now, every day for more than 50% of the day is not fun, but it is better than the 24...

Go to advanced search