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by ViewsAskew
Mon Jun 26, 2017 5:29 pm
Forum: Everything Else...just no RLS/WED!
Topic: Neighbors from you-know-where, anyone?
Replies: 27
Views: 823

Re: Neighbors from you-know-where, anyone?

Sounds like you are doing the best you can to control your part of it. Good to hear.
by ViewsAskew
Mon Jun 26, 2017 3:03 pm
Forum: Physical Treatments
Topic: Anyone Using Hot Tubs as Relief?
Replies: 10
Views: 91

Re: Anyone Using Hot Tubs as Relief?

One of the YMCAs by me has a lap pool that is very chilly - 78 or so - and a family pool that is close to 90. The difference is startling. Since I swim laps, I usually used the cold pool. Sadly, this was quite a distance for me in the city and I prefer to ride my bike, so I rarely went there and it ...
by ViewsAskew
Mon Jun 26, 2017 2:54 pm
Forum: Prescription Medications
Topic: tapering off ropinirole
Replies: 29
Views: 491

Re: tapering off ropinirole

ViewsAskew-- Fuz_Mind I haven't come to the discussion boards for a while because I was working out what to do and my Neurologist made her decision : I was augmenting pretty bad on Ropinirole which I took for maybe 8-9 months (total of 1mg per PM, cut into pieces to spread through early evening). M...
by ViewsAskew
Sun Jun 25, 2017 9:47 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 106
Views: 5363

Re: What Severe RLS is Like

So happy to hear this!!!
by ViewsAskew
Sun Jun 25, 2017 9:25 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Low-Sulfur Diet
Replies: 6
Views: 44

Re: Low-Sulfur Diet

I remember doing elimination diets - eating only chicken and a few veggies, not fruit, no starch. Took months to do. But, I think I always thought I would get back to a more balanced diet eventually, which made it very tolerable to do. And I was very happy to stop eating the things that bothered me!...
by ViewsAskew
Sun Jun 25, 2017 3:15 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Low-Sulfur Diet
Replies: 6
Views: 44

Re: Low-Sulfur Diet

Wow, that would limit my veggies to the point I would only eat lettuce, carrots, squash and sweet potatoes. Beets bother me (I do love them), corn bothers me more and I cannot stand eggplant.

So glad it is helping you and hope it continues.
by ViewsAskew
Sun Jun 25, 2017 2:11 am
Forum: General Topics: RLS/WED
Topic: Our Amazon purchases can support the RLS Foundation
Replies: 5
Views: 44

Re: Our Amazon purchases can support the RLS Foundation

That's disappointing Betty...I'll just step up my purchases to cover your difference. :wink: Ann, it's taken me a few times to remember to sign in to Smile, and not the regular Amazon, and every time I missed I'm like dagnabbit! But the disappointment makes me remember now! So now I'm reminding my ...
by ViewsAskew
Fri Jun 23, 2017 11:50 pm
Forum: General Topics: RLS/WED
Topic: Our Amazon purchases can support the RLS Foundation
Replies: 5
Views: 44

Re: Our Amazon purchases can support the RLS Foundation

Polar Bear wrote:It seems Amazon Smile is not available here in the UK, i.e. on Amazon.co.uk which is rather a shame.



:( :?
by ViewsAskew
Fri Jun 23, 2017 6:44 pm
Forum: General Topics: RLS/WED
Topic: Our Amazon purchases can support the RLS Foundation
Replies: 5
Views: 44

Re: Our Amazon purchases can support the RLS Foundation

One thing to remember - always sign in on the Amazon Smile page....it does not always remind you. I sometimes search for something and open up Amazon from the search. It always defaults to regular Amazon. Sometimes it reminds you to switch. But, not always!
by ViewsAskew
Fri Jun 23, 2017 6:41 pm
Forum: Prescription Medications
Topic: Methadone Side Effects Question
Replies: 8
Views: 66

Re: Methadone Side Effects Question

I do not think that any of us on the more severe end of symptoms are on the same treatment plan - which is somewhat startling when you think about it! Finding what works for each of us can take a lot of resources - mental, physical, monetary, etc. Here's hoping you find the one for you - and sooner ...
by ViewsAskew
Thu Jun 22, 2017 9:19 pm
Forum: Prescription Medications
Topic: Methadone Side Effects Question
Replies: 8
Views: 66

Re: Methadone Side Effects Question

In two ways - methadone alerts me initially. While taking it the way I do reduces it, it still can be an issue. Pramipexole causes me to awaken frequently throughout the night - if I take it alone, I start waking up after about 3 hours with increasing frequency until it is every 5 minutes or so. The...
by ViewsAskew
Thu Jun 22, 2017 7:24 pm
Forum: Prescription Medications
Topic: Methadone Side Effects Question
Replies: 8
Views: 66

Re: Methadone Side Effects Question

I find that timing is SO important on this drug. It takes at least 30 minutes to start to work, but up to 4 hours (depending on the person) to achieve full effect. For me, I take about 1/4 of my dose about 8 hours before I go to sleep, to cover the symptoms in the evening, say 6 PM. Then I take 1/2 ...
by ViewsAskew
Wed Jun 21, 2017 4:52 am
Forum: Physical Treatments
Topic: Elastic support bandages
Replies: 3
Views: 59

Re: Elastic support bandages

Sounds like a less firm solution than the medical grade support hose.
by ViewsAskew
Wed Jun 21, 2017 4:51 am
Forum: General Topics: RLS/WED
Topic: Insomnia Research Findings
Replies: 2
Views: 72

Re: Insomnia Research Findings

Genes can be so cruel. I inherited my father's ability to fall asleep anywhere, any time. Unfortunately, from my mother I got RLS - with a strong insomnia dimension. It's an unfortunate combination. My mom often apologizes that in a couple areas I got the worst from both of them. I figure I got the...

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