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by ViewsAskew
Mon Jul 23, 2018 4:51 am
Forum: Just Joined?
Topic: JULY 2018 - NEW MEMBERS
Replies: 36
Views: 528

Welcome to gbrown

22 July, Sunday

gbrown has had RLS for about 15 years and it's getting worse, so will be going to see a doctor soon.

We hope that helps; there is a lot of good info here to help you prepare.
by ViewsAskew
Mon Jul 23, 2018 12:10 am
Forum: Augmentation
Topic: 15 years is way too long
Replies: 9
Views: 38

Re: 15 years is way too long

it follows a circadian rhythm and is worse between 7 or 8 PM and 2-3 AM. Of course, some of us have it most of the day (or all of it), but it's always the worse at night. I am squirming in my chair (5 PM PDT), but can still sit and type. By 8 or 9 I will have to stand and my midnight I won't be able...
by ViewsAskew
Sun Jul 22, 2018 10:47 pm
Forum: Augmentation
Topic: 15 years is way too long
Replies: 9
Views: 38

Re: 15 years is way too long

What i don't quite understand is even tho i am sleep deprived during the day. I can control my symptoms easily. Last night i had taken some kratom around 10 pm and everything was going well even tho i was very tired. I was just starting to get my hopes up that maybe i would sleep. Then around midni...
by ViewsAskew
Sun Jul 22, 2018 7:05 pm
Forum: Just Joined?
Topic: New guy
Replies: 3
Views: 32

Re: New guy

A lot of us who were first on a DA find that gabapentin didn't work next. I have no idea it's because it just isn't for everyone or if the DAs cause changes in our brain chemistry that prevent it from doing do. Stopping was the hardest thing I've done. I know how horrible you are feeling. The only c...
by ViewsAskew
Sun Jul 22, 2018 6:59 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Niacin 100mg.
Replies: 5
Views: 47

Re: Niacin 100mg.

No, not during the day, only starts during that "twilight " time falling asleep, and upon awakening. That is, if I can ever get to sleep. I don't know what happens when I finally fall asleep. As I am single. At times I pace around the house then go back to bed. Whe worse times is when it ...
by ViewsAskew
Sun Jul 22, 2018 6:57 pm
Forum: Augmentation
Topic: 15 years is way too long
Replies: 9
Views: 38

Re: 15 years is way too long

I have been on ropinirol for at least 15 years. After reading the info on this site i realized that i needed to get off this stuff. Finally got up the courage last night. All i can say is wow. Even with opioids i only managed 2 hours sleep last night and tonight is even worse. My legs were even dri...
by ViewsAskew
Sat Jul 21, 2018 5:46 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 3
Views: 112

Re: Histamine/Tyramine Food Triggers

Definitely interesting.
by ViewsAskew
Sat Jul 21, 2018 5:25 pm
Forum: Just Joined?
Topic: Just joined
Replies: 2
Views: 39

Re: Just joined

Welcome, Sleepless. Thanks so much for being part of the community. Together we support each other, learn about new options from each other, and share ways to work with the issues of being in the world with RLS. No question - we care!
by ViewsAskew
Sat Jul 21, 2018 5:21 pm
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 29
Views: 1312

Re: Prescription Refills

Unsettling, indeed.
by ViewsAskew
Sat Jul 21, 2018 5:19 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Niacin 100mg.
Replies: 5
Views: 47

Re: Niacin 100mg.

It's good to hear of things that may help people with symptoms.

If your legs are moving on their own when you are awake, it could be periodic limb movements. Much harder to treat since they haven't studied it all that much.
by ViewsAskew
Wed Jul 18, 2018 8:00 pm
Forum: Prescription Medications
Topic: no prescription for ropinirol
Replies: 5
Views: 80

Re: no prescription for ropinirol

I would ask her why and ask her what she suggests instead. if you will refer you to someone who is more knowledgeable, that might be a good thing. Many primary care docs do not have the experience they need to deal with the potential issues treating RLS. As you noted, you've been stable since 2014. ...
by ViewsAskew
Tue Jul 17, 2018 11:38 am
Forum: Just Joined?
Topic: JULY 2018 - NEW MEMBERS
Replies: 36
Views: 528

Welcome to Gasheadalan

Tuesday, 17 July, 2018

Our newest memeber, Gasheadalan, has had this for the last 30 years and is currently wearing tights which reduces the need for medication for the RLS.

Great to hear! Thanks for sharing and welcome.
by ViewsAskew
Mon Jul 16, 2018 8:27 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Histamine/Tyramine Food Triggers
Replies: 3
Views: 112

Re: Histamine/Tyramine Food Triggers

Hope it continues to work for you.
by ViewsAskew
Fri Jul 13, 2018 7:59 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 717
Views: 43951

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Indeed EeFall, it's really just a way of life for me now. There seems to be nothing in the 'sleep med range' that will work. Haven't tried anything in the herbal range, everything except CBD oil is illegal here and the oil on its own doesn't appear to be a big deal for sleep. So I 'wander lonely as...
by ViewsAskew
Fri Jul 13, 2018 7:59 pm
Forum: Prescription Medications
Topic: TRAZODONE
Replies: 6
Views: 147

Re: TRAZODONE

So sorry about the increase in RLS.

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