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by ViewsAskew
Sun Sep 23, 2018 6:02 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: something easy that worked for me
Replies: 6
Views: 45

Re: something easy that worked for me

It's great when something like that works for someone. Hope it stays away for a long time.
by ViewsAskew
Thu Sep 20, 2018 10:12 pm
Forum: Prescription Medications
Topic: RLS, Depression and Anti-depressants
Replies: 56
Views: 12258

Re: RLS, Depression and Anti-depressants

However or whyever it works, it works. And, all any of us want is some sleep!
by ViewsAskew
Thu Sep 20, 2018 9:14 pm
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 416
Views: 96568

Re: Published Research - General Sleep and RLS (WED)

Back and forth...another study about a potential relationship between Parkinson's and RLS.

https://parkinsonsnewstoday.com/2018/09 ... ome-study/
by ViewsAskew
Thu Sep 20, 2018 9:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Another year of relief
Replies: 54
Views: 13764

Re: Another year of relief

Thanks for the update. Lots of great info in your posts.
by ViewsAskew
Mon Sep 17, 2018 6:38 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 36
Views: 3824

Re: Changing my diet may have solved my RLS

Well that theory certainly does not work for me, BUT I suspect it's because the iron all at once impacts my digestion. What did work for a while was eating some type of liver or beef heart every day lunch and dinner. I slept like a baby for 8 hours a night and without any meds at all. It was like a...
by ViewsAskew
Mon Sep 17, 2018 6:27 am
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 358

Re: Medication causing Apathy?

I experienced clinical depression that lasted 3 months many years ago and unrelated to drug use. What you've described here sounds to me a lot like a version of clinical depression. That is why my doctor requested that I see a mental health professional, partly because I had a medication induced ev...
by ViewsAskew
Wed Sep 12, 2018 7:10 pm
Forum: Prescription Medications
Topic: How long does it take for Lyrica to start working?
Replies: 39
Views: 1087

Re: How long does it take for Lyrica to start working?

I have been getting pretty good symptom relief lately using Tramadol with a low dose of Ropinirole and Lyrica. I have Hydrocodone on hand for the times that i need more. When i first started Lyrica it really helped me get to sleep quickly. Side affects were..weird dreams and having trouble waking u...
by ViewsAskew
Wed Sep 12, 2018 7:07 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: best iron suppliment to increase ferritin levels?
Replies: 16
Views: 612

Re: best iron suppliment to increase ferritin levels?

Polar Bear wrote:Legs, don't think I've come across iron patches....


Nor have I.
by ViewsAskew
Wed Sep 12, 2018 5:24 pm
Forum: Prescription Medications
Topic: Antipsychotics? Car accedent???
Replies: 7
Views: 118

Re: Antipsychotics? Car accedent???

Either could be the reason. Not sure my story will help at all. I have primary, inherited RLS. It was made much worse, however, by taking a dopamine agonist. In my case, I was able to decrease the RLS some when I stopped taking it, and over years it has slowly decreased a bit at a time, but never cl...
by ViewsAskew
Wed Sep 12, 2018 3:13 am
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 358

Re: Medication causing Apathy?

One of the questions that I may ask at the conference is why there isn't more research done on the treatment of severe RLS. So much research is done on mild to moderate, drug naive patients. That hits the majority of RLS patients and is great for developing new drugs, but what about those of us who...
by ViewsAskew
Wed Sep 12, 2018 1:19 am
Forum: Just Joined?
Topic: SEPTEMBER 2018 - NEW MEMBERS
Replies: 39
Views: 495

Re: SEPTEMBER 2018 - NEW MEMBERS

Tuesday, Sept 11

Welcome to alenrobin, who wants to learn as well as join the discussion.

Start a new topic anytime you are ready, alenrobin. Lots to read and learn.
by ViewsAskew
Tue Sep 11, 2018 10:49 pm
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 358

Re: Medication causing Apathy?

In some ways we already have a long term study in the form of the RLS Opioid Registry that Dr Winkelman is running at Massachusetts General. The idea behind that study is to collect data on opioid use in RLS patients for at least 5 yrs. Hopefully the results will justify continued funding after tha...
by ViewsAskew
Tue Sep 11, 2018 5:41 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 416
Views: 96568

Re: Published Research - General Sleep and RLS (WED)

Rustsmith- I thought of you when I read this. It's not completely new info...and raises so many questions! https://www.neurologyadvisor.com/movement-disorders-advisor/deep-brain-stimulation-restless-leg-syndrome-parkinsons/article/793563/ Restless leg syndrome in individuals with Parkinson disease c...
by ViewsAskew
Tue Sep 11, 2018 5:33 am
Forum: General Topics: RLS/WED
Topic: RLS Foundation hosting a Patient Symposium
Replies: 28
Views: 1023

Re: RLS Foundation hosting a Patient Symposium

@ViewsAskew Do you live in LA now? I hear you about it being hard to plan. @Rustsmith I think I would thoroughly enjoy this meeting. The interactions you describe appeal to me a lot. I have always wished more doctors could know a couple things about my journey, as it could possibly help someone som...
by ViewsAskew
Tue Sep 11, 2018 5:31 am
Forum: Prescription Medications
Topic: Medication causing Apathy?
Replies: 30
Views: 358

Re: Medication causing Apathy?

Fortunately, most people who use methadone are in the lower range - one small study put it around 12-15 mg, if I remember correctly, and most of them had few side effects. But, as is happening with Steve, even those low doses can have side effects. And, it seems that with most pharma options, longev...

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