Restless Legs Syndrome (RLS) Discussion Board

Hi everyone. It's been years since I've joined a discussion on this site. I still have RLS. But after years of ups and downs, I've been forced to try just about everything. I've discovered a connection (for me, at least) betw lactic acid, eating sugar / processed grains / carbs, etc., and RLS sympto...

Thank you both for this amazing information (ViewsAskew and Zach). I do have a copy of the Mayo Clinic algorithm, and just printed out your two replies. You're helping me tremendously. I'm on my way to the hospital minor injury clinic in hopes of a refill; otherwise today will be brutal in the extre...

Thanks ViewsAskew & Zach. Thank you both so much for your insight into the percocet deal. I've been on it for months now, doctor prescribed, for reactive arthritis (brought on by God-knows-what) that I have inexplicably, and have found that percocet works wonders for RLS, and my case is severe. ...

It's been years since I've been online; in fact, I had to re-register. I hope some of you old timers are still around. I still have severe RLS. I live in Oakland, CA, am 49 years old, am a high school teacher, and have tried everything. Problem: Requip makes me feel horrible; I've lessened the dose ...

It's been a while since I was on this site. Since then, I discovered the pain I thought was due to Requip, or some RLS drug, was really due to an autoimmune disorder. Since then, I've had to take pain meds for the autoimmune, and switch RLS meds. But my body is so sensitive to drugs, I have to be ca...

Hi Christy. Sardsy75 is pointing you in great directions. I'd advise you look at that mayclinic algorithm (Sardsy included a link). Sardsy is right that you need to do some at-home research. What works for one person may not work for everyone. I've taken every med for RLS and have now had great succ...

I have been taking Requip and it's given me good relief (although I think I was starting to get a rebound effect with it: RLS waking me up in the morning; my RLS might just be atrociously bad). I'm getting off of Requip, though, to start Neurontin because my doc's and I wonder if Requip is causing s...

Has anyone out there experienced pains with any drugs they've used for RLS? A few months ago I started experiencing pains everywhere--feet, ankles, side of one hand, knees, hip, etc. It was while I was still just taking only Restoril for RLS. When I switched to Sinemet, the pains continued (most day...

Thank you, Sara. I really appreciate it.

Hi Sara. Thanks for the reply! And I will do a google search. That's a good idea. Yes, it has been while since I've been on here. I've gone thru a lot of medical stuff (no surprise to most people on this site!) and have been a bit sidelined. I'm a h.s. teacher, but am out of work all this year with ...

Does anyone out there know where i can find info on neuropathic pain?

I have tried Requip twice, and both times experienced whole-body pains. I had the pains before Requip, but they got very bad when I was on Requip. I was taking about 1-1/2 mg Requip a day. So, doc took a CRP test ("CRP" test, tests inflammation) and I was off the charts, and she and my neuro thought...

Dear Ann: I read your email and know exactly how you feel. I've spent years having doctors not listen to me. Even before RLS, I had years of unrelated problems I'd documented, and doctors didn't know what to do with me. Finally I insisted on switching doctors this year. The new doc immediately ran t...

Hi Jan and Ann. I saw the Medical Alert card, but didn't see the list of meds they say are OK. I probably need to search the site more (I didn't see the info. on the medical alert card). But thanks for the info, both of you! My cold is still really bad, but NyQuil is out of the question. I did rumma...

Earlier this year, the Mayo clinic published a comprehensive algorithm for treatment of RLS. The algorithm is intended for patients to give to their doctors as a guide for treating RLS, but it's also invaluable reading for those of us struggling to understand various meds and treatments. If any of y...