Restless Legs Syndrome (RLS) Discussion Board

She is going to be on .125mg/night. I think that is as low as it can go. She is being treated by a pedi neuro as well as a pedi pulmo/sleep. I just took her for a second opinon last week (before we knew increased doses of Neurontin were a disaster). The other neuro (who has no experience with kids o...

Anyone have experience with mirapex in children? My 8yo is supposed to start taking it in place of the "evil neurontin".

Any info would be great.

T-mom

My 8yo has been on Neurontin for 1 year at 300mg/day for RLS/PLMD. A few weeks ago the neuro increased the neurontin to 900mg/day. I started out giving her 600mg/day to see how she would do. She was like an 8yo w/PMS but not too bad. Last saturday I gave her all 3 doses (900mg total). 1 1/2 hrs afte...

My 7yo DD has been on 100mg iron/day since December. We started giving her "Slow FE". It is an OTC 50mg iron supplement that does not disolve in the stomach but in the small intestine so she has completely avoided all the problems with standard iron supplements (except a little constipation -- no pa...

Thanks for the info. Her neuro says there is a very short list of what could cause her symptoms. Unfortunately the list includes MS (1 in 3million 6yo will get it...that would be a comfort, but she has had a type of cancer that only 4 kids in the country have had) and RLS. When she has these tinglin...

Hi Everyone, I have a 7 yo dd, She is being evaluated for RLS, PLMD and OSA. She has been describing a feeling of a spider walking on her back (but in a confined area)...90% of the time it is on her back above the waist or on her feet, 5% of the time it is on her chest, and the rest is on her face o...