Search found 595 matches

by Betty/WV
Tue May 19, 2009 7:45 am
Forum: Just Joined?
Topic: RLS Pain, where do you get it?
Replies: 7
Views: 1601

Re: Pain where do you get it?

Hi: My pain is in my knees, calves and top of my feet. I have artheritis in my knees, which hurts when I am on my feet. The RLS sets in when I am trying to rest. Sometimes the artheritis and the RLS kick in both at the same time, talk about fun!!!! I can't even begin to describe the pain. I have tho...
by Betty/WV
Mon May 18, 2009 6:09 pm
Forum: Prescription Medications
Topic: Not Taking Any Meds?
Replies: 29
Views: 7770

Re: mirapex & what is normal?

Hi Dale: In my previous post I mention, being normal?????
I just read a quote in a post that I thought was cute, it said "Normal, is just a setting on a washing machine:" BETTY/WV
by Betty/WV
Mon May 18, 2009 11:51 am
Forum: Prescription Medications
Topic: Not Taking Any Meds?
Replies: 29
Views: 7770

Re: Not taking any meds

Hi Dale: I'm not sure about the blurred vision, never heard of that side affect. I've never been constipated from the Mirapex but once in a while I also take tramadol for pain, and that will constipate me. No fun. And I do have trouble with depression at times, but don't connect it to the Mirapex, t...
by Betty/WV
Sun May 17, 2009 3:14 pm
Forum: Prescription Medications
Topic: Not Taking Any Meds?
Replies: 29
Views: 7770

re: not taking any meds.

Hi Dale: I've been reading your posts and the replys. I feel so bad for what you are going through and I think the friends here have given you some good and caring advise. We have all been through similar trials. I too was afraid to take the mirapex but was desperate. At first I was put on .25 mgs. ...
by Betty/WV
Fri May 15, 2009 2:45 am
Forum: Physical Treatments
Topic: Cold Baths
Replies: 8
Views: 2080

Re: Cold baths

Hi: At times when I was desperate, and ready to scream, I would run the bath tub full of water as hot as I could stand it and sit in it. It would relieve my RLS and I would be able to go to sleep. Sometimes I would be sitting in the tub at 3 or 4 am. At first my husband thought I must be a "nea...
by Betty/WV
Thu May 14, 2009 11:40 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferritin and iron
Replies: 28
Views: 12198

Re: Doctor started me at .25mg Mirapex

My doctor also started me at .25mg Mirapex at 9 PM. Then when I started having symptoms earlier in the day, he told me to take .25 mg also at 11am. After that I heard that Dr. B said always start at .125 mg., so what do I do now.??? Go back to .125 mg. or stay with what I am doing? It works pretty w...
by Betty/WV
Tue May 12, 2009 9:43 pm
Forum: Physical Treatments
Topic: I found something that works for me!!! YIPPY!!!
Replies: 18
Views: 10655

Re: Oil for RLS

Hi All: I think I have become a skeptic about alot of things because of all the scams out there. As for the oil for RLS, if it helps someone that is wonderful. But recently I overheard a conversation, a lady with leukemia was talking with another lady, the lady was telling her of a cure for cancer, ...
by Betty/WV
Fri May 08, 2009 10:12 pm
Forum: General Topics: RLS
Topic: i dont know what else to do!
Replies: 8
Views: 1557

Re: Eli

Eli: You just received some excellent advice from dogeyed and ViewsAskew. But I just wanted to say I'm sorry for your pain. And I hope you get some help. All of us here understand how miserable RLS can make you. Don't give up, keep on trying. I wish you the best. BETTY/WV
by Betty/WV
Fri May 08, 2009 12:46 am
Forum: Just Joined?
Topic: Just Benadryl...?
Replies: 5
Views: 1007

Re: Benedryl

I was given benedryl before a heart cath and it drove me crazy for hours after. Never will I take it again, in fact, when I fill out papers for a doctor I put it down as something I am allergic too. I also carry the card Medical Alert for RLS. And you have to stress over and over again when dealing ...
by Betty/WV
Tue May 05, 2009 10:18 am
Forum: Help for Relationships
Topic: Explaining RLS to your family
Replies: 59
Views: 90411

Re: Falling asleep around 5am

Hey: Just read your posts about RLS hitting early evening and not being able to sleep until early morning. Same with me, I always said, "I fall asleep when the birds sing". One of the parts of RLS where we are all the same. Weird thing this RLS. When I started coming to this site is when I...
by Betty/WV
Thu Apr 30, 2009 12:27 pm
Forum: Everything Else...just no RLS!
Topic: Cancer Free!
Replies: 7
Views: 1918

Re: Cancer free

Dear HeatherB: So happy for you and your Dad. Wonderful news. I wish you much more happiness. Its always nice to hear good news. We are so used to all the bad news. Like it says in Isaiah, there will be a time when "no resident will say I am sick". What a blessed time that will be. Love, B...
by Betty/WV
Wed Apr 29, 2009 10:17 pm
Forum: Prescription Medications
Topic: I'm CURED!!!
Replies: 10
Views: 1854

Re: "I'm cured"

Amazing!!! I have never heard of anyone being cured of RLS. If it worked for you , more power to you. Has anyone else out there got rid of their RLS???? If so I would like to hear from you. BETTY/WV
by Betty/WV
Sat Mar 28, 2009 10:55 am
Forum: Prescription Medications
Topic: Mirapex to Neurontin
Replies: 7
Views: 986

Re: Tapering off Mirapex???

Hi Metabolic Wreck: I recently just finished reading Dr. B's book, and I'm pretty sure he said in it, thats its not necessary to wean off it. That you can just stop it. But if I were you I would write him and double check or maybe someone else can put their 2cents in. Dr. B's new email address is so...
by Betty/WV
Sat Mar 28, 2009 10:46 am
Forum: Everything Else...just no RLS!
Topic: 5 Years!
Replies: 18
Views: 5688

Re: 5 years

November 2004, is when I joined. At my age 5 years seems very short. Seems impossible that it has been that long. I sure have learned alot about RLS, and received alot of encouragement. When I first joined I knew so little, except that I was SO miserable and didn't know what to do about it. Thanks t...
by Betty/WV
Sat Mar 21, 2009 1:02 pm
Forum: Prescription Medications
Topic: Re: side affects of Mirapex and Klonopin
Replies: 2
Views: 378

Re: side affects of Mirapex and Klonopin

I am on .25mg of Mirapex twice a day and Klonopin .5mg at bedtime. Along with high blood pressure, high cholestrol meds.etc. I also have a stent in my right coronary artherie from having a heart attack in 2002. Recently I started having shortness of breath and am undergoing tests to find out why. Ha...