Restless Legs Syndrome (RLS) Discussion Board

Zach: Please explain about "Spam Bots", I am not very good at this computer lingo. What are we to look for., so as to know not to reply to them. Why would anyone post false registerations? What is their purpose? Just to cause confusion and trouble???? I am not to computer literate, but I j...

This forum is like a port in a storm, Terese. I have had RLS forever, it seems. Tried everything, now I am getting some relief from Mirapex and Klonopin. Don't know how long it will last. But I just find it great to be able to sleep. Some of the friends were saying how they kneel or lay on their st...

My doctor prescribed Ambien for me, (I have tried everything). The first night I took it I sleep walked. I ate a large piece of ice cream cake that was in the freezer and blamed my husband. I didn't remember doing it until much later. I literally bounced off the walls in the hallway. It was the wors...

Hi Edd: Before I started taken Mirapex, which has helped. When I got desperate, I would sit in a tub of hot water. That was the only thing that gave me any relief. My husband would find me in the tub at all hours. Sometimes I would even fall asleep. But cold never helped. BETTY/WV

Hi James: I feel so bad for the experience you had, a friend calling you a scammer. I totally understand your position. I know my friends and family don't understand what I am dealing with. The RLS takes away our quality of life. If we said we had cancer or a bad heart etc. they would feel different...

Hi Charlene: Me again! I take 1 mg. clonazepam at bedtime, and 100 mg. neurontin in the morning and same at noon and 800 mg. at bedtime. Plus my other meds for high blood pressure, and cholestrol. My primary doctor treats me. I went to a neurologist, but I don't see any need to go back anymore. I d...

Hi Again Charlene: Yes I will let you know what happens when I go for my tests. Thanks for caring. BETTY/WV

Hi Charlene: So glad to hear from you so soon. The doctor wasn't really being mean when he told me I needed to lose weight. He was very kind about it. I know I need to lose weight. Anyway, I just looked at a copy of my blood work, and it said my creatine level was 1.3 and normal was from 0.5 to 1.5...

Hi: Just read your post about your kidneys. My doctor just sent me to a kidney specialist and I go on May 9th for an ultrasound on my kidneys. I have had high blood pressure for years but it is controlled. My primary said that the kidney problem could be from that or also I am over weight and the sp...

Hi: I love this idea. It is so interesting to read about you all. But computer illiterate as I am, I can't figure out how to do it. u But I love reading all your stories. BETTY?WV [/b]

Hi Everyone: Haven't been on for ages. I have tried to get on the Chat Line and never can. I don't know what the problem is. I do just as it tells you. I have been doing better. Still on the same meds. Clonazapam and Neurontin. But if I do to much or it seems if I am around alot of people, that nigh...

Hi Everyone: Just finished reading some of the posts. And I am so CONFUSED!!!! The more I read the more confused I get. I have had rls forever. Now it seems to effect my knees most. When I get rls, it seems to be there. I also have artheritis, (back, knees, hand) plus several other things, high bloo...

Hi All: Its so nice to read your posts. Its good to know someone understands. About the ice cream, is it a food allergy or what.? Sugar doesn't bother me, and milk doesn't bother me so I'm wondering if it could be some of the chemicals they put in the ice cream. And like one of you said " we are mor...

Hi: Just read your posts about going to "experts" who weren't "experts". I have seen my share of them. One, years ago, laughed at me and ask me where I heard of rls, "on Oprah Winfrey"? I was so taken aback that I was speechless. But I did send him a letter marked "personal", with copies of informat...

Hi Josh and Andy: Strange that I just went to a neurologist for my rls. And she found these sore spots in my hips. Of course I knew they were there. But didn't connect them with the rls. But if I don't wake up with rls, I wake up with pain in these areas. Then I connected to this site and saw your p...