Search found 595 matches

by Betty/WV
Mon Sep 07, 2015 8:21 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Who on here has both RLS/WED and PLMD?
Replies: 23
Views: 9959

Re: Who on here has both RLS/WED and PLMD?

Since 2004, this site has been my shoulder to cry on, friends that encourage me when I am so down that I feel ill never get up again. My source of information about this horrible disease. My place to go to when I have to vent. I am so thankful for you all. But ashamed that there are no people in my ...
by Betty/WV
Sun Sep 06, 2015 5:03 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Who on here has both RLS/WED and PLMD?
Replies: 23
Views: 9959

Re: Who on here has both RLS/WED and PLMD?

I don't think I'm augmenting. No I haven't tried a TENS unit. I can ask my doctor about it. I have sort of given up. I stay home most of the time. And I used to be very active. Its always something new happening to me. This morning I took a shower and discovered a huge bruise on my stomach. About th...
by Betty/WV
Sun Sep 06, 2015 8:24 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Who on here has both RLS/WED and PLMD?
Replies: 23
Views: 9959

Re: Who on here has both RLS/WED and PLMD?

ViewsAskew and Sleepdancer: thank you so much for your input. I did have one sleep study without the mask and went back for one with the mask. They increased my pressure on my CPAP from 6 to9. And I have had my ferritin level checked, haven't got the results yet. Last time I had it checked it was 40...
by Betty/WV
Sat Sep 05, 2015 5:13 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Who on here has both RLS/WED and PLMD?
Replies: 23
Views: 9959

Re: Who on here has both RLS/WED and PLMD?

I have had RLS for years. Just had a sleep study, had 2 before. Have been on a CPAP about 5 years. This sleep study showed that I have SEVERE sleep apnea and VERY severe PLMD. I never thought I had PLMD before. Would like to find information on PLMD. Any advice? BETTY/WV
by Betty/WV
Mon May 25, 2015 5:07 pm
Forum: Prescription Medications
Topic: So many things happening - anyone else feeling this way?
Replies: 7
Views: 923

Re: So many things happening - anyone else feeling this way?

I know there are a lot of things happening in my life, from all directions. But especially health wise. I have had this disease ford as long as I remember and I am 79. I am going to see a new neurologist tomorrow. But I am not to optimistic about it as I have seen many doctors over the years and no ...
by Betty/WV
Mon May 11, 2015 9:22 pm
Forum: Prescription Medications
Topic: So many things happening - anyone else feeling this way?
Replies: 7
Views: 923

Re: So many things happening - anyone else feeling this way?

I have the 1st edition of the book you mentioned. I will have to order the other one. I also have other books by Dr. B and have corresponded with him on the internet. I have had my ferritin level checked in the past. And have a prescription to have it checked again.. It was around 40 or 50 last time...
by Betty/WV
Fri May 08, 2015 6:49 am
Forum: Prescription Medications
Topic: So many things happening - anyone else feeling this way?
Replies: 7
Views: 923

So many things happening - anyone else feeling this way?

I don't know what is happening to me. I am 79, have had rls as long as I can remember. As I aged it got worse. I was put on mirapex about 5 years ago. So many side affects that I am trying to get off it. I cut down from o.25 mg twice a day to half of that twice a day . There are no doctors in this a...
by Betty/WV
Wed May 06, 2015 8:02 pm
Forum: General Topics: RLS/WED
Topic: Haven't been here in awhile
Replies: 2
Views: 511

Haven't been here in awhile

Hi everyone: Haven't been on here for a while. Still suffering though. I'm trying to get off the Mirapex. I've decreased my dose from 0.25 mg. 2 times a day to 0.125 twice a day. Don't hardly sleep. Pain is bad. Forget about finding a doctor to help me through this. There are none in this area....Th...
by Betty/WV
Fri Mar 13, 2015 1:26 am
Forum: Prescription Medications
Topic: Pramipexole Problems
Replies: 87
Views: 13298

Re: Pramipexole Problems

OK, thanks...
by Betty/WV
Thu Mar 12, 2015 8:46 pm
Forum: Prescription Medications
Topic: Pramipexole Problems
Replies: 87
Views: 13298

Re: Pramipexole Problems

I looked her up and one of the ailments listed that she treats is RLS. Even so, she may not know much about it, as I have found out before. I will print the document you sent me. Thanks alot.
by Betty/WV
Thu Mar 12, 2015 12:03 pm
Forum: Prescription Medications
Topic: Pramipexole Problems
Replies: 87
Views: 13298

Re: Pramipexole Problems

I take Vicodin and have for a long time (as needed) I only take it when I am having a difficult time and I also take Mirapex. Which I am starting to wean off it. Dr. B. says that he has many patients who take an opiate and never have any trouble with it. Its when you abuse the drug that you can beco...
by Betty/WV
Thu Mar 12, 2015 1:42 am
Forum: Prescription Medications
Topic: Pramipexole Problems
Replies: 87
Views: 13298

Re: Pramipexole Problems

Thanks, I never heard of the drug you mentioned. Thanks for your concern....I'll keep you all up on my progress. I have no support from family or friends so I will rely on you all, My husband totally ignores that there is any thing wrong with me. No matter how I feel I have to cook meals even if I c...
by Betty/WV
Wed Mar 11, 2015 6:59 pm
Forum: General Topics: RLS/WED
Topic: Venting!
Replies: 62
Views: 10595

Re: Venting!

Efall.....Just had a brilliant idea....By the way, there have been times when I have the same complaints you do...so my idea is this (it could never happen but) all people with WED/RLS. Should be put in the same location, hospital, town,nursing home etc...We understand each other, no one else does. ...
by Betty/WV
Wed Mar 11, 2015 5:34 pm
Forum: Prescription Medications
Topic: Pramipexole Problems
Replies: 87
Views: 13298

Re: Pramipexole Problems

I am so discussed with doctors, especially those that prescribe DA's (Mirapex, Requip, Neuro Patch.) They don't even know anything about these drugs. I don't think I will ever take another drug. I wish I could go to Dr. B or Dr. Early, But I am 79 and can't travel very well. I more or less have to d...
by Betty/WV
Wed Mar 11, 2015 4:45 pm
Forum: Prescription Medications
Topic: Pramipexole Problems
Replies: 87
Views: 13298

Re: Pramipexole Problems

I'm back, I've been gone for a good while. Still on the pramipexole, 0.25 mg. twice aday for about the last 5 years. I've been reading more about augmentation and decided I'm going to get off the pramipexole. I'm going to a new neurologist the 31st of March. This is my 3rd one. the first one didn't ...

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