Restless Legs Syndrome (RLS) Discussion Board

Lynne,

I am SO glad to hear that the worst of it is over. Sometimes it's really prolonged- I am relieved to hear that you are on the upswing!

You are in my thoughts. You are very strong. As others have said, thank you for posting this as so many others will learn from it.

Lynne, I know you're probably so sick right now you can barely type, so you may not get this for a while. I'm sorry for what you're going through. Anyone who hasn't been through hard core opiate withdrawal truly has no idea what it's like- the constant hot flashes and cold sweats, insomnia, involunt...

What made your night the worst? Increased rls, methadone withdrawal, or both? I think methadone withdrawal generally starts about 24 hours after the missed dose but I am not sure on this.

I agree 100%! What Lynne said about children feeling the change is true as well. When I was younger and before my health problems started, I never understood why my Grandmother always swore her arthritis got worse with the weather changes- now I understand completely. I personally get worse when it ...

One thing I forgot to mention in my psts is that there are several nerve functions that are measured in those tests. Autonomic, motor, and sensory. Hence, the wacky-sounding procedures that you wouldn't think had anything to do with the nerves (such as the air tube-blowing one!). If your problem is ...

Thanks to everyone for welcoming me. Sorry for the whole Hazel mix-up thing. I hadn't checked back to see if there were any new responses to this thread so I didn't realize what was going on until today. I still can't figure out how that happened but I do know that Hazel is very dear to the board an...

I'm glad this was brought up. I think with RLS and how varied it is, it can be really confusing to sort these symptoms out. But I think it's important to remember that although we have RLS, many of us severely, we still can have other health issues, too. I would highly recommend QST and Autonomic te...

I am currently on neurontin, high dose. It seemed to help with the pain at first and then the effect dwindled over the next few months. However, it is helping me sleep which is great. I also tried Lyrica and found it had no effect whatsoever. The drugs they use as first line treatment for SFN are tr...

I haven't posted in a long time. I'm an old friend of the board but used to go by another nickname. In the time I've been away, I've had many struggles. I found out through extensive testing including QST and autonomic systems testing that I have a small fiber neuropathy in addition to the RLS. This...

Mark, I get something similar. I describe mine as more of a throbbing, though. I get buzzing, pins and needles, hot and freezing sensations, and burning. Oh, and those sudden brief electrical shocks are really enjoyable, too! Just like RLS, I believe that non-length dependent SFSN is very real as I ...

I just had autonomic testing and found out that I have a small fiber neuropathy. Anyone with burning feet or pins and needles might want to check into this possibility. Bad news is that there are no great treatments, kind of like RLS. Here is a link to more info if anyone cares to find out more (I'v...

Hello- I have had a problem with leg/arm/hand/foot/etc jerks for awhile now but they have gotten WAY worse and more frequent since starting Mirapex. Could this problem be related? Is the jerking (while awake) even related to rls? I'm not talking about fasiculations- I'm talking about a limb actually...

Lyrica did nothing for me at 450mg divided into 3 doses. Glad it works for some others, though.

Ann, how is your combo working for you? I got the mirapex up to .5mg doses and it wasn't working. My legs were aching so bad, and I stopped the Mirapex and the aching went back to usual level. I guess it's connected but I'm not sure if this was augmentation or just a side effect of the drug.

Hey Views- I have rls 24/7. It started out mainly as tingling with no pain, but I now have a variety of sensations including aching, burning pain. I have had it for almost two years now. Looking back, I think I had it very mildly for quite some time before it really hit me hard enough to cause probl...