Search found 25 matches
- Thu Apr 17, 2008 12:36 am
- Forum: Prescription Medications
- Topic: Holy Methadone !!!
- Replies: 35
- Views: 7188
methadone, side effects, and trying, yet, another way.
greetings all, I haven't been on the forum in a while which means my rls has been under control. Under control with 10mg of methadone three times a day. So, I have a question. (actually some new observations and a question) I hope this is the right place to put in these experiences. Now with all of ...
- Mon Dec 10, 2007 10:40 pm
- Forum: General Topics: RLS
- Topic: Poll series: RLS and Pain
- Replies: 13
- Views: 2034
I never realized I had rls until I turned 48 and it turned chronic. 24/7. The pain is unlike anything else, right now I'm trying to keep my meds down to the rock bottom and it hurts on my right side form my head to my toes and particularly bad in my leg and foot. The kicking isn't necessarily the pa...
- Mon Dec 10, 2007 1:12 am
- Forum: Prescription Medications
- Topic: Side effects: Add Yours to Create a Complete List
- Replies: 93
- Views: 44158
one more for bromocriptine (parlodel), an important one. Heart Damage! Before taking it I had no heart problems. After taking it for two years I had a heart murmur, in other words it looks like parlodel damaged one of my heart valves. Not major damage (but who knows if I had continued taking it as t...
- Sun Dec 09, 2007 6:17 pm
- Forum: Prescription Medications
- Topic: Side effects: Add Yours to Create a Complete List
- Replies: 93
- Views: 44158
I'll add something methadone. I've tried about everything and its still the best. side effects low testosterone production shortness of breath when exerting. my all time evil drug (meaning, probably, that I put up with it longer than other da's and therefore suffered more long term side effects). Br...
- Sun Dec 09, 2007 7:17 am
- Forum: Prescription Medications
- Topic: anyone taking hydromorphone/dilaudid for their rls
- Replies: 16
- Views: 4018
Going through the Pharma sticky list and down toward the bottom I found an equivalence chart which said that 5 mg of methadone = 20 mg of oxycodone. If true, no wonder the oxycodone at 10 mg qid wasn't working when to have the same effect I would have to be taking 40 mg qid. That seems high but it m...
- Sun Dec 09, 2007 4:34 am
- Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
- Topic: Migraine and RLS
- Replies: 5
- Views: 4733
I had migraines (classic with the aura etc) from age 22 until about 42. I'D have a migraine about once every other month or so, however I found eating oatmeal seemed to set them off more often (stopped eating oatmeal had migraines only very occasionally, once or twice a year). At age 48 my rls turne...
- Sun Dec 09, 2007 3:55 am
- Forum: Prescription Medications
- Topic: anyone taking hydromorphone/dilaudid for their rls
- Replies: 16
- Views: 4018
I've stopped methadone now for almost a week and have been taking oxycodone cr 10 mg. First the good. (or I guess its good). It sure appears that methadone caused the shortness of breath/heart problems that was confounding my various doctors. Four days after stopping the methadone I had to get up at...
- Wed Dec 05, 2007 3:09 am
- Forum: Prescription Medications
- Topic: anyone taking hydromorphone/dilaudid for their rls
- Replies: 16
- Views: 4018
rls doctor
I had to work a long time to get him to cooperate to this level. I think the most important step was to become a patient up at the Johns Hopkins sleep clinic. They have a number of doctors that specialize on restless legs. After seeing Dr. Earley and his student prescribed and recommended methadone ...
- Tue Dec 04, 2007 3:59 am
- Forum: Prescription Medications
- Topic: anyone taking hydromorphone/dilaudid for their rls
- Replies: 16
- Views: 4018
if anyone cares
I did go to my pain management dr today and we had our continuing discussion about rls and methadone. We've been discussing switching off of methadone on a trial basis for maybe a month to see if my breathing/heart events are methadone related. I started this thread because I was considering suggest...
- Sun Dec 02, 2007 4:53 pm
- Forum: Prescription Medications
- Topic: anyone taking hydromorphone/dilaudid for their rls
- Replies: 16
- Views: 4018
Do you have experience taking hydromorphone for rls?
Thanks Susan. You said what I feel pretty well. In my case I'm working with a number of different doctors and specialists, some of them close to the top people in their field nationally. For me, as I imagine is true for a number of people on this list, rls is my life, it dictates every thing I do. I...
- Sun Dec 02, 2007 8:29 am
- Forum: Prescription Medications
- Topic: Methadone, dependence, withdrawal, and more
- Replies: 20
- Views: 4946
Hello SquirmingSusan, You asked 'Do all opioids suppress testosterone? Or is that specific to methadone?' My understanding (from the hormone specialist at Johns Hopkins) is its only methadone that shuts down testosterone production and not other opioids. She says as little as 5 mg a day will do it. ...
- Sat Dec 01, 2007 5:51 am
- Forum: Prescription Medications
- Topic: anyone taking hydromorphone/dilaudid for their rls
- Replies: 16
- Views: 4018
switching
Hey Tunesmith, thanks for the input. I'm truly sorry to hear that dilaudid didn't work in your case. I have heard from several people who had used it successfully. I was wondering what doses they were taking. As far as switching from methadone, there is a lot of mispreceptions out there about 'getti...
- Sat Dec 01, 2007 4:04 am
- Forum: Prescription Medications
- Topic: anyone taking hydromorphone/dilaudid for their rls
- Replies: 16
- Views: 4018
anyone taking hydromorphone/dilaudid for their rls
I've heard that some people are taking hydromorphone (Dilaudid) successfully for their rls. I am currently taking methadone and while it works wonders, I've been taking it for several years now and have almost forgotten the horrors rls used to inflict upon me However there are several side effects t...
- Wed Nov 14, 2007 9:24 pm
- Forum: Prescription Medications
- Topic: One more on Methadone
- Replies: 109
- Views: 13121
I've been taking 10 mg methadone 3 times a day for several years. At first it made me sleepy but as I got used to it the sleepiness stopped. Recently, though, the dosage didn't seem to be enough but rather than increase I decided to take a vacation using mirapex (which I used about 6-7 years ago). M...
- Sun Jul 22, 2007 4:06 am
- Forum: Physical Treatments
- Topic: Sam-e
- Replies: 5
- Views: 2545
Sam-E
I recently came across a webpage where the author claims that using Sam-e along with a combination of Vitamin B, b12, and several other things completely controls his rls. I can't recall the name of the webpage (great?). Something like curerls. But the question is has anyone seen this, seen this com...