Search found 25 matches

by moss
Thu Apr 17, 2008 12:36 am
Forum: Prescription Medications
Topic: Holy Methadone !!!
Replies: 35
Views: 7188

methadone, side effects, and trying, yet, another way.

greetings all, I haven't been on the forum in a while which means my rls has been under control. Under control with 10mg of methadone three times a day. So, I have a question. (actually some new observations and a question) I hope this is the right place to put in these experiences. Now with all of ...
by moss
Mon Dec 10, 2007 10:40 pm
Forum: General Topics: RLS
Topic: Poll series: RLS and Pain
Replies: 13
Views: 2034

I never realized I had rls until I turned 48 and it turned chronic. 24/7. The pain is unlike anything else, right now I'm trying to keep my meds down to the rock bottom and it hurts on my right side form my head to my toes and particularly bad in my leg and foot. The kicking isn't necessarily the pa...
by moss
Mon Dec 10, 2007 1:12 am
Forum: Prescription Medications
Topic: Side effects: Add Yours to Create a Complete List
Replies: 93
Views: 44158

one more for bromocriptine (parlodel), an important one. Heart Damage! Before taking it I had no heart problems. After taking it for two years I had a heart murmur, in other words it looks like parlodel damaged one of my heart valves. Not major damage (but who knows if I had continued taking it as t...
by moss
Sun Dec 09, 2007 6:17 pm
Forum: Prescription Medications
Topic: Side effects: Add Yours to Create a Complete List
Replies: 93
Views: 44158

I'll add something methadone. I've tried about everything and its still the best. side effects low testosterone production shortness of breath when exerting. my all time evil drug (meaning, probably, that I put up with it longer than other da's and therefore suffered more long term side effects). Br...
by moss
Sun Dec 09, 2007 7:17 am
Forum: Prescription Medications
Topic: anyone taking hydromorphone/dilaudid for their rls
Replies: 16
Views: 4018

Going through the Pharma sticky list and down toward the bottom I found an equivalence chart which said that 5 mg of methadone = 20 mg of oxycodone. If true, no wonder the oxycodone at 10 mg qid wasn't working when to have the same effect I would have to be taking 40 mg qid. That seems high but it m...
by moss
Sun Dec 09, 2007 4:34 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Migraine and RLS
Replies: 5
Views: 4733

I had migraines (classic with the aura etc) from age 22 until about 42. I'D have a migraine about once every other month or so, however I found eating oatmeal seemed to set them off more often (stopped eating oatmeal had migraines only very occasionally, once or twice a year). At age 48 my rls turne...
by moss
Sun Dec 09, 2007 3:55 am
Forum: Prescription Medications
Topic: anyone taking hydromorphone/dilaudid for their rls
Replies: 16
Views: 4018

I've stopped methadone now for almost a week and have been taking oxycodone cr 10 mg. First the good. (or I guess its good). It sure appears that methadone caused the shortness of breath/heart problems that was confounding my various doctors. Four days after stopping the methadone I had to get up at...
by moss
Wed Dec 05, 2007 3:09 am
Forum: Prescription Medications
Topic: anyone taking hydromorphone/dilaudid for their rls
Replies: 16
Views: 4018

rls doctor

I had to work a long time to get him to cooperate to this level. I think the most important step was to become a patient up at the Johns Hopkins sleep clinic. They have a number of doctors that specialize on restless legs. After seeing Dr. Earley and his student prescribed and recommended methadone ...
by moss
Tue Dec 04, 2007 3:59 am
Forum: Prescription Medications
Topic: anyone taking hydromorphone/dilaudid for their rls
Replies: 16
Views: 4018

if anyone cares

I did go to my pain management dr today and we had our continuing discussion about rls and methadone. We've been discussing switching off of methadone on a trial basis for maybe a month to see if my breathing/heart events are methadone related. I started this thread because I was considering suggest...
by moss
Sun Dec 02, 2007 4:53 pm
Forum: Prescription Medications
Topic: anyone taking hydromorphone/dilaudid for their rls
Replies: 16
Views: 4018

Do you have experience taking hydromorphone for rls?

Thanks Susan. You said what I feel pretty well. In my case I'm working with a number of different doctors and specialists, some of them close to the top people in their field nationally. For me, as I imagine is true for a number of people on this list, rls is my life, it dictates every thing I do. I...
by moss
Sun Dec 02, 2007 8:29 am
Forum: Prescription Medications
Topic: Methadone, dependence, withdrawal, and more
Replies: 20
Views: 4946

Hello SquirmingSusan, You asked 'Do all opioids suppress testosterone? Or is that specific to methadone?' My understanding (from the hormone specialist at Johns Hopkins) is its only methadone that shuts down testosterone production and not other opioids. She says as little as 5 mg a day will do it. ...
by moss
Sat Dec 01, 2007 5:51 am
Forum: Prescription Medications
Topic: anyone taking hydromorphone/dilaudid for their rls
Replies: 16
Views: 4018

switching

Hey Tunesmith, thanks for the input. I'm truly sorry to hear that dilaudid didn't work in your case. I have heard from several people who had used it successfully. I was wondering what doses they were taking. As far as switching from methadone, there is a lot of mispreceptions out there about 'getti...
by moss
Sat Dec 01, 2007 4:04 am
Forum: Prescription Medications
Topic: anyone taking hydromorphone/dilaudid for their rls
Replies: 16
Views: 4018

anyone taking hydromorphone/dilaudid for their rls

I've heard that some people are taking hydromorphone (Dilaudid) successfully for their rls. I am currently taking methadone and while it works wonders, I've been taking it for several years now and have almost forgotten the horrors rls used to inflict upon me However there are several side effects t...
by moss
Wed Nov 14, 2007 9:24 pm
Forum: Prescription Medications
Topic: One more on Methadone
Replies: 109
Views: 13121

I've been taking 10 mg methadone 3 times a day for several years. At first it made me sleepy but as I got used to it the sleepiness stopped. Recently, though, the dosage didn't seem to be enough but rather than increase I decided to take a vacation using mirapex (which I used about 6-7 years ago). M...
by moss
Sun Jul 22, 2007 4:06 am
Forum: Physical Treatments
Topic: Sam-e
Replies: 5
Views: 2545

Sam-E

I recently came across a webpage where the author claims that using Sam-e along with a combination of Vitamin B, b12, and several other things completely controls his rls. I can't recall the name of the webpage (great?). Something like curerls. But the question is has anyone seen this, seen this com...