Search found 645 matches

by ksxroads
Wed Sep 06, 2006 8:08 pm
Forum: General Topics: RLS/WED
Topic: Some days you row, others you float...
Replies: 78
Views: 21426

So sorry to have not been here much lately. I have been doing good to crawl my way through the day, manage to come to work though I have had to use leave here and there ... and often times I wonder if I am even a productive person any more, though I know I accomplish things, I worry in the fog and h...
by ksxroads
Wed Sep 06, 2006 7:27 pm
Forum: General Topics: RLS/WED
Topic: SURGERY DATE SCHEDULED -- MEDICAL ALERT CARD
Replies: 35
Views: 6670

Dear Jan,

Keeping you in my thoughts and prayers. Will be thinking of you and holding you close to my heart. Howling at the moon every night along with the others. ((((((((((BIG HUG))))))))))))))) *************Positive Energy************ Love Hazey
by ksxroads
Wed Sep 06, 2006 7:20 pm
Forum: General Topics: RLS/WED
Topic: RLS info and Studies
Replies: 22
Views: 8557

Please if you haven't done so, take the time right now and go to the above link... Don't think it might be silly or won't help. It really does count for something, even if it is only one letter or hundreds. Speak up, stand up, let them know we are out there! It is important for us to get the word ou...
by ksxroads
Wed Sep 06, 2006 6:59 pm
Forum: General Topics: RLS/WED
Topic: Back again
Replies: 12
Views: 3324

Ahhhhhhhhhh dear Ruby, misery loves company... and I won't get that dang song out of my mind either thanks Fidget............ Trying to discern between fibro and RLS is the pits and I don't even bother these days. Since we are from generally the same area... our symptoms and cycles certainly seem cl...
by ksxroads
Wed Sep 06, 2006 6:43 pm
Forum: Everything Else...just no RLS/WED!
Topic: whole body jerking
Replies: 3
Views: 2160

Dear Earline, Just came from a new hairdresser, and after flinching a couple times, I had to tell her that if I jerk it has nothing to do with her... just my ole body. It has to be from the RLS as they have ruled out about everything else! Wierd I know yet that is me. It is something I am not aware ...
by ksxroads
Wed Sep 06, 2006 3:52 pm
Forum: General Topics: RLS/WED
Topic: Quality of life 2006
Replies: 22
Views: 5080

A year ago I was so relieved to know that there was a name for my physical problems. It could only get better. Yet like Lynne mentions there are times when meds stop working, need tweaking etc. It is so frustrating... overhwelming at times. I am a RLS infant. I get so tired of dealing with my dr who...
by ksxroads
Thu Aug 24, 2006 8:53 pm
Forum: General Topics: RLS/WED
Topic: more questions....
Replies: 5
Views: 2273

Dear A

In the New to RLS section there are lists of medications which have proven to be helpful to RLS... check out the Mayo Clinic Algorithm. There is also a listing of medications know to cause worsening of RLS.

If you need more help finding this information, let me know. Hazel
by ksxroads
Thu Aug 24, 2006 8:50 pm
Forum: Just Joined?
Topic: Newbie with RLS
Replies: 1
Views: 1042

Dear Diane, So sorry to hear of your problems, sending you *****many positive thougts of energy*********... RLS can be secondary to spinal injuries... there is a lot of good informaiton on what you can do to help aleviate some of the discomfort and pain you experience by reading the New to RLS secti...
by ksxroads
Thu Aug 24, 2006 8:48 pm
Forum: General Topics: RLS/WED
Topic: Something that might be useful when picking a doctor
Replies: 1
Views: 1081

Agreeable, I believe that some of our problems with finding appropriate diagnosis, treatment and drs is due to the fact of their unfavorable experiences with other patients. It is a good thing to have this wonderful group, so we ourselves do not become jaded and cynical in our search for proper trea...
by ksxroads
Thu Aug 24, 2006 8:44 pm
Forum: Just Joined?
Topic: Am I a RLS patient?
Replies: 3
Views: 1442

The following is the criteria to determine if what you experience is RLS. Many of us do have painful RLS especially so when we have over exerted our bodies. If it reduces pain and sensations by movement, you can be fairly certain that it may be RLS. Read through the New to RLS section, it is filled ...
by ksxroads
Tue Aug 22, 2006 9:03 pm
Forum: General Topics: RLS/WED
Topic: Some days you row, others you float...
Replies: 78
Views: 21426

I can remember those blackened feet ... hadn't thought of that in years... then the stains from climbing for mulberries... ahhh good summer memories... It has been one of the worst August I have ever experienced... Normally it is full of happiness and laughter as two of my children are born this mon...
by ksxroads
Tue Aug 08, 2006 10:13 pm
Forum: Help for Relationships
Topic: Happy Birthday thread
Replies: 18
Views: 12164

Happy Birthday Jan, you share the same date as my son and grandson! What a special day this is! Love Hazey
by ksxroads
Tue Aug 08, 2006 10:11 pm
Forum: General Topics: RLS/WED
Topic: Does Anyone Else Squeeze their Legs This Hard??
Replies: 24
Views: 5616

Dear Kwarner... Don't think I have ever flexed hard enough to cause a charlie horse, yet I do flex the muscles in my legs to help relieve the RLS, and use massage on a regular basis. The deeper the better! Many also use stretch bands for flexing their legs during periods of inactivity, like plane/ca...
by ksxroads
Mon Aug 07, 2006 10:07 pm
Forum: General Topics: RLS/WED
Topic: RLS or Fibro?
Replies: 7
Views: 2067

Dear Steelergal...

There is a wonderful support group here. Lots of good information in the New to RLS section, it is a MUST read.

Hope to get to know you better, Hazel

Em,

that is my feeling too... it is more RLS.... Hazel
by ksxroads
Mon Aug 07, 2006 10:03 pm
Forum: Prescription Medications
Topic: Marinol (Synthetic THC)
Replies: 12
Views: 4597

Dear Em, While I don't have any info on this... I just wanted to say keep asking away, as I learn a lot from others responses. You are helping out in many ways, just wish you didn't feel so rotten. Keeping you in my thoughts and meditations... sending you as much ******Positive Energy******* as I ca...

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