Search found 672 matches

by moonlight
Wed Jan 04, 2012 3:30 pm
Forum: General Topics: RLS/WED
Topic: more pain , more tears.....
Replies: 46
Views: 10588

Re: more pain , more tears.....

so far so good......but the iron I've had to reduce a bit so it will just be for a longer time
by moonlight
Fri Dec 23, 2011 11:06 am
Forum: Everything Else...just no RLS/WED!
Topic: Merry Christmas Everyone
Replies: 7
Views: 1830

Merry Christmas Everyone

I just want to wish everyone a Merry Christmas and a Happy new Year
and thank everyone for the wonderful and much appreciated support
that everyone has given me.

I hope that our rls behaves and allows us to eat SLEEP and be merry :-)

cheers moonlight x
by moonlight
Fri Dec 23, 2011 10:58 am
Forum: General Topics: RLS/WED
Topic: more pain , more tears.....
Replies: 46
Views: 10588

Re: more pain , more tears.....

Am glad to say have had several good nights and some bearable ones too. my blood tests showed everything as ok apart from the ferritin at 23 so am on iron for a while so will see how i get on , havent taken any codeine for several nights :-) and don't really want to go onto anything stronger >>>>yet
by moonlight
Sat Dec 17, 2011 8:59 pm
Forum: General Topics: RLS/WED
Topic: more pain , more tears.....
Replies: 46
Views: 10588

ha well i thought the other night was the worst ever......I take that back as last night was worse , had extreme electric shocks going up my legs and in my arms weird thing was it was mainly my left side and I just couldn't stay still ended up with tripling my codeine and eventually got relief. Am t...
by moonlight
Fri Dec 16, 2011 4:24 pm
Forum: General Topics: RLS/WED
Topic: more pain , more tears.....
Replies: 46
Views: 10588

been to gp and she said my ferritin is 24 which is too low... I asked about what id found on .nhs inform about different tests ,she told me that these tests are used of the rls is secondary to another condition. She took blood and is checking ferritin, magnesium, b12, thyroid and kidney function, so...
by moonlight
Sat Dec 10, 2011 3:00 pm
Forum: General Topics: RLS/WED
Topic: more pain , more tears.....
Replies: 46
Views: 10588

Hi guys ...fortunately am a lot better getting acupuncture twice a week now and its helping. Helen I too walk every day for miles always have so don't know if that was the culprit or not. I've got a gp appt on Friday so am going to mention everything to her.....now also including the fact that my ch...
by moonlight
Sat Dec 03, 2011 4:13 pm
Forum: General Topics: RLS/WED
Topic: more pain , more tears.....
Replies: 46
Views: 10588

more pain , more tears.....

my rls is taking its toll on me. its much worse , the pain is reducing me to tears added to the trapped nerve pain which is 24/7. today my muscles are really painful when i move and when i touch my legs, i dont understand why this is happening apart from me tensing my muscles up and jerking about to...
by moonlight
Tue Nov 29, 2011 12:48 am
Forum: Everything Else...just no RLS/WED!
Topic: respite
Replies: 3
Views: 1314

'hear' a smile , I like that.....yes we were up till three in the morning ! having fun and rls only reared its ugly head once. I was in Edinburgh it's such a lovely city amazing architecture and such open spaces for a city. The respite house is a terraced Victorian (i think) house with big rooms , o...
by moonlight
Mon Nov 28, 2011 9:09 pm
Forum: Everything Else...just no RLS/WED!
Topic: respite
Replies: 3
Views: 1314

respite

Hi folks am just back from respite and had a great time . there were five of us there and i've never laughed so much for ages, this time I was well when I went and really enjoyed it.
by moonlight
Sun Nov 13, 2011 10:07 pm
Forum: Prescription Medications
Topic: WED MEDS: LIST OF ALL YOUR WED MEDS FROM DAY 1 TO PRESENT
Replies: 22
Views: 5975

codeine for around 2yrs works well take at night

diazepam
temazepam both for mh illness but use for rls to knock maself out
when the rls is too much
by moonlight
Sun Nov 13, 2011 9:59 pm
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 52
Views: 22348

polar bear do you not get your tens and pads issued free by your pain clinic?
I do I feel pretty lucky as nobody here seems to get that
by moonlight
Sun Nov 13, 2011 9:53 pm
Forum: General Topics: RLS/WED
Topic: Our Medical History
Replies: 25
Views: 5629

rls over 30yrs tinnitus 25% hearing loss arthritis, hips , fingers, back bones out of synch on let side of back, lots of pain trapped nerve right thigh, excruciating pain and also pain to touch skin bipolar...being reassessed for borderline personality disorder, also have anxiety and panic attacks m...
by moonlight
Thu Nov 10, 2011 4:53 pm
Forum: Physical Treatments
Topic: Latest on TENS Unit Use for Nighttime Symptoms
Replies: 52
Views: 22348

sleepdancer how come you only get three uses out of your electrodes.......do you mean the pads....i use mine for months......i was told to keep them in the fridge , it seems to keep them sticky. i dont get any relief from rls with the tens but i do for my trapped nerve, thats what the tens was issue...
by moonlight
Thu Nov 10, 2011 4:45 pm
Forum: Help for Relationships
Topic: rls is a sad condition
Replies: 35
Views: 18919

I see am not really alone on this one.Beth your not alone I too must have my space at all times to the extent if i am out and people are too close I ask them to give me my space and as for people sitting against me eg in the bus i have to get up and move away, but this isnt due to the rls its cos of...
by moonlight
Wed Nov 09, 2011 8:47 pm
Forum: Help for Relationships
Topic: rls is a sad condition
Replies: 35
Views: 18919

rls is a sad condition

I'd love to cuddle my husband and let him touch me whenever but its impossible the rls seems to make my entire body actually hurt and feel like electric shocks and feels like my nerves are on fire when touched ,even the covers cause probs. I feel sorry for hubby as it must be awful for him to be con...

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