Search found 672 matches

by moonlight
Fri Mar 11, 2011 3:56 pm
Forum: General Topics: RLS/WED
Topic: 30hrs sleep in three weeks
Replies: 20
Views: 2107

Wow Dogeyed you are a fighter and an inspiration and of course you can talk about yourself, I believe it helps and I really hope things get easier for you . I have just found out why I feel so awful along with the insomnia I have a virus and a temp.Last night was the worst so little sleep I had lost...
by moonlight
Thu Mar 10, 2011 3:01 am
Forum: General Topics: RLS/WED
Topic: 30hrs sleep in three weeks
Replies: 20
Views: 2107

polar bear.....thats my routine too.I read, then have an under pillow speaker and listen to my music and my relaxation.....now am wearing my battery out on my mp3 player ...still no sleep.
by moonlight
Wed Mar 09, 2011 4:08 pm
Forum: General Topics: RLS/WED
Topic: 30hrs sleep in three weeks
Replies: 20
Views: 2107

last night lay awake till 3.30...I mean totally awake , had taken one codeine at 10pm, amazingly the rls did not kick in at all???? all night. Got up at 7.30 ended up at gp ....have got a virus ....and it will just take time to go...well thats good news :) She wasn't surprised to hear that the sleep...
by moonlight
Tue Mar 08, 2011 9:27 pm
Forum: General Topics: RLS/WED
Topic: 30hrs sleep in three weeks
Replies: 20
Views: 2107

update the sleep meds ...I have had two nites at 2hrs , one nite at 3hrs and one nite at 4 hrs then was awake bright as a button...rls not too bad codeine still works if rls isnt going too crazy. Lack of sleep is mainly due to the bioplar high to get to sleep then the rls to stay asleep. To add insu...
by moonlight
Sat Mar 05, 2011 8:47 pm
Forum: General Topics: RLS/WED
Topic: new here, with question
Replies: 19
Views: 1980

Hi i'd like to add a wee bit too i've not been on any of the rls meds but have rls in my legs , arms and body.it started in my legs when I was about seven years old as crawly feelings with the need to move ....over time it has progressed and is extreme pain and need to move. So does it progress like...
by moonlight
Sat Mar 05, 2011 8:35 pm
Forum: General Topics: RLS/WED
Topic: 30hrs sleep in three weeks
Replies: 20
Views: 2107

Bethf I had three hours sleep last night the rest was messed up by the rls. Am honestly wondering how I'm going to sleep, if the sleep meds can make the rls worse Tonight I've to take two tabs so hopefully will sleep right through...well six hours at least. Up till the afternoon I was like drunk and...
by moonlight
Fri Mar 04, 2011 9:29 pm
Forum: General Topics: RLS/WED
Topic: 30hrs sleep in three weeks
Replies: 20
Views: 2107

30hrs sleep in three weeks

Have been on a high for last three weeks approx 30hrs sleep out of the three weeks....no time for acupuncture :( and the rls is wild, it has been so bad I am scared to go to bed as i sleep an hour wake , then sleep and hour then rls kicks in so am up all night and the high makes my mind race so much...
by moonlight
Fri Mar 04, 2011 9:12 pm
Forum: Prescription Medications
Topic: Nortriptyline........a scary decision...
Replies: 5
Views: 737

Hi well the nortriityline did not last long it deffo put the rls into mega crazy mode and made my tinnitus louder aaarrggh it's horrible.
by moonlight
Fri Mar 04, 2011 9:05 pm
Forum: General Topics: RLS/WED
Topic: Have you we tried NOT to move your legs?
Replies: 26
Views: 2704

Hi have tried on many occasions....don't move the legs ..or arms and the pain builds up so much that I move like I have exploded ...it's horrible. Have often though mind over matter but in the end legs win. I never stay still have noticed no matter what I'm doing I'm moving ...like now at the comp I...
by moonlight
Wed Feb 09, 2011 6:31 pm
Forum: General Topics: RLS/WED
Topic: Tens Machine
Replies: 4
Views: 614

Hi Polar Bear....I have a tens machine for trapped nerve pain , have tried it for rls ....no joy
by moonlight
Mon Jan 31, 2011 10:36 pm
Forum: General Topics: RLS/WED
Topic: This is all getting too much
Replies: 9
Views: 1049

Thanks for your replies..last night I took so much codeine the rls didn't stand a chance ..but yes I know i can't continually do that. I do have a tens machine and use it for the trapped nerve but recently its been weirdly sore on my skin but I should try it again on a very low setting. Have tried i...
by moonlight
Sun Jan 30, 2011 9:17 pm
Forum: General Topics: RLS/WED
Topic: This is all getting too much
Replies: 9
Views: 1049

This is all getting too much

Have been taking nortriptyline for nearly two weeks ..and it was working great with sciatica and trapped nerve pain......then came the time to increase it.....and basically am going thru hell. The rls is the worse it's ever been last night the pain was unbearable and I could not stay still it also s...
by moonlight
Wed Jan 26, 2011 4:26 pm
Forum: Prescription Medications
Topic: Nortriptyline........a scary decision...
Replies: 5
Views: 737

I had another night like the first, 4am up rls in overdrive and hating anything touching me ...I got back to sleep after a bit and woke at 9am .But all day rls has come and gone,have a horrible tiredness , no energy and a weird headache . I hope this is just cos i've never had these meds before....b...
by moonlight
Tue Jan 25, 2011 10:54 am
Forum: Prescription Medications
Topic: Nortriptyline........a scary decision...
Replies: 5
Views: 737

Hi Polar Bear...I understand what you mean ....it can be different for each person, amitryptiline is a no no for me as I reacted badly to it mentally. I went ahead last night and tried the nortryptiline and thru the night the rls went into overdrive and I couldn't bear anything touching me this morn...
by moonlight
Mon Jan 24, 2011 8:04 pm
Forum: Prescription Medications
Topic: Nortriptyline........a scary decision...
Replies: 5
Views: 737

Nortriptyline........a scary decision...

I am paranoid about taking medication for anything, anyhow at the moment have sciatica down my left leg and its excruciating, rls is like electric shocks up my legs staying still is very hard (acupuncture is helping , not been for a while) and my mood is horribly low has been since christmas day. En...

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