Search found 40 matches

by sarahjj
Sat Apr 23, 2011 2:48 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy Journal
Replies: 57
Views: 27712

I had my ultrasound with my ob/gyn on Tuesday this week. My due date is December 13th! In the meantime, Dr. Frye has been absolutely awesome about working with me on almost a daily basis tweaking my dosage on the oxycodone. The last time we spoke on the phone, she had pulled in the other doctors in ...
by sarahjj
Sat Apr 09, 2011 5:21 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy Journal
Replies: 57
Views: 27712

Well, its been a long week to say the least. I misunderstood Dr. Frye about the Methodone. She wants to use it as a back up. So we are sticking with the double dose of Oxycodone now and it is working very well. It is a short acting drug, so it wears off after 4-5 hours. At first, my husband was waki...
by sarahjj
Sat Apr 09, 2011 5:11 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnant and Miserable - Back to Methadone??
Replies: 66
Views: 31044

Such Excellent news, Julie! Congratulations! Welcome, baby Jaxon!! Julie, you made excellent, well informed decisions throughout your pregnancy and it all paid off. I am inspired now for my own pregnancy. THANK YOU for sharing so much of your personal story with us! Take care of yourself and baby Ja...
by sarahjj
Wed Apr 06, 2011 2:25 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnancy Journal
Replies: 57
Views: 27712

Pregnancy Journal

Hey All~ Because there is such little information on RLS sufferers and pregnancy, I thought I would use this forum as a journal of my experience as I go through it. Just like every other topic on this forum, I hope someone will find it useful. If that's ok with y'all, here we go: I am currently 9 we...
by sarahjj
Sat Apr 02, 2011 6:10 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnant and Miserable - Back to Methadone??
Replies: 66
Views: 31044

Wow, am I happy to read this 3 page post! I am at the very beginning stage of all of this. I am 8 weeks pregnant, trying to wean off Requip (as this whole thing was a total surprise) and trying to get some help on what to go on instead. It is now 2am and I have been up since 4am yesterday morning. S...
by sarahjj
Sun Feb 20, 2011 5:43 am
Forum: General Topics: RLS/WED
Topic: PA RLS Sufferers
Replies: 12
Views: 1695

Thanks everyone. @PolarBear - that is exactly why I am posting this. I just hope some of you can benefit from what happened with me. But please remember, this was just my first visit. I'm thrilled so far, but I need to see her in action to make sure she lives up to her promises. :? @Betty - Dr. Frye...
by sarahjj
Sat Feb 19, 2011 6:07 am
Forum: General Topics: RLS/WED
Topic: PA RLS Sufferers
Replies: 12
Views: 1695

Well, I am full of grins! :D :D :D I went to see Dr. Frye on Tuesday February 15th. She spent over an hour with me. Because I called and interviewed the nurse over the phone before I made an appointment (highly recommended if you are looking for a new doctor), Dr. Frye was well aware of my concerns ...
by sarahjj
Tue Feb 15, 2011 2:15 am
Forum: General Topics: RLS/WED
Topic: PA RLS Sufferers
Replies: 12
Views: 1695

PA RLS Sufferers

Hello Friends Its been quite awhile since I've been around these boards. I got so disgusted with this ridiculous RLS that I didn't want to talk about it. I'm so glad to be back and catching up with what's going on. Its been a tough year so here's what I'm up to. After a ton of research and phone int...
by sarahjj
Thu Mar 11, 2010 8:49 pm
Forum: Prescription Medications
Topic: Misery for the Uninsured (or underinsured)
Replies: 20
Views: 2031

Runkrun....doesn't the combination of Lyrica and Oxycodone make you really drowsy? Does that combination really take care of your daytime symptoms? How much Oxy do you take? Just curious because I would like to consult my doc with this. I do see improvement with the Lyrica, which tells me that there...
by sarahjj
Thu Mar 11, 2010 1:42 am
Forum: Prescription Medications
Topic: Misery for the Uninsured (or underinsured)
Replies: 20
Views: 2031

So amazing! I had my Lyrica dose upped to 150mg 2x/day last week. This past Monday, I went the ENTIRE day without an RLS attack. I haven't done that in at least 5 years!!!! WOW!! It felt so good!! So, what did I do? - I sat on the couch and read a book for 20 minutes - I sat on the floor and played ...
by sarahjj
Mon Mar 01, 2010 3:12 am
Forum: Prescription Medications
Topic: Misery for the Uninsured (or underinsured)
Replies: 20
Views: 2031

You all are full of lots of great information. Thank you! To answer some of your questions....I have been taking Requip for the past 3 years with success. I am up to 2mg at night. It makes me so tired, I can't take any of it during the day and still have enough coverage at night. I also take Zoloft ...
by sarahjj
Fri Feb 26, 2010 5:35 pm
Forum: Prescription Medications
Topic: Misery for the Uninsured (or underinsured)
Replies: 20
Views: 2031

Misery for the Uninsured (or underinsured)

It is so true that we are guinnea pigs. It is also so true that quality of life has been severely compromised. This is what I have been reduced to: My doc prescribed Lyrica. I can't afford to buy the pills because one month supply costs me $327.75. Obviously, I am uninsured. My father-in-law takes L...
by sarahjj
Thu Feb 11, 2010 10:31 pm
Forum: General Topics: RLS/WED
Topic: RLS Interview
Replies: 28
Views: 2215

Juls....I emailed you that I couldn't open your attachment but not sure that you got it. Can you please try resending when you get a chance?? Thanks!
by sarahjj
Wed Feb 03, 2010 3:45 am
Forum: General Topics: RLS/WED
Topic: RLS, Hard core Medications, living strategies, + conditions
Replies: 9
Views: 845

James, you are echoing exactly the same things I have been saying this whole week. I fear where my rls will be in 5 years, 10 years....what will they do with me when I'm 50 or 60 and that much worse off than now at 40? And DRIVING!!!! OMG driving is SO BAD! Every time I get in the car I have an rls ...
by sarahjj
Fri Aug 21, 2009 11:01 pm
Forum: Prescription Medications
Topic: Great Dr in NEPA!
Replies: 5
Views: 522

Well, Zack, you didn't ruffle my feathers!! But thanks for trying. I have a history of panic attacks. They didn't start with the Requip. So I don't think they are a result of it now. At least, I'm going to go on that assumption and see what happens with the new meds. I've been taking Requip for 2 ye...

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