Search found 147 matches

by woodsie357
Tue Feb 10, 2009 5:16 am
Forum: General Topics: RLS
Topic: Sound triggers?
Replies: 38
Views: 4081

Thank you so much for your warm replys. It's refreshing to have a group of people that understand. I was just laughing to myself tonight about the people who find out about my sleep disorder and tell me I should just go to bed. The last neurologist I saw told me to talk to my religious leader. Which...
by woodsie357
Fri Feb 06, 2009 12:22 am
Forum: General Topics: RLS
Topic: Sound triggers?
Replies: 38
Views: 4081

You are totally right!! I've got my homework cut out for me. I just hope I can muster up the energy needed to do it. I recently moved 4 hours away from my old doctors. Darn that hippa they probably won't want to help me out by just faxing it. And I have 2 work days before my appointment. Thank you f...
by woodsie357
Fri Feb 06, 2009 12:16 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Sound triggers my RLS
Replies: 9
Views: 4264

Oh I forgot another trigger for me is being touched. If someone bumps my leg... bam! it starts up, light touches seem to be the worst. Yeah, my wife's feelings used to get routinely hurt when she's give me a little affectionate stroke on my leg or something, and I'd jerk away and say I couldn't be ...
by woodsie357
Thu Feb 05, 2009 5:06 pm
Forum: General Topics: RLS
Topic: Sound triggers?
Replies: 38
Views: 4081

I actually just scheduled it and they got me on next tuesday Feb 10th... they had just had a cancellation WOOT!!! My other Drs were to scared to give an Rx for it. And at the time I was to scared to take it. So it will be nice to meet with someone that knows a lot about it.
by woodsie357
Thu Feb 05, 2009 4:14 pm
Forum: General Topics: RLS
Topic: Sound triggers?
Replies: 38
Views: 4081

Yes its a compile of everything the Doctors have requested I try. For the first 2 years they would all tell me to take benedryl, and tylenol pm, and it did make it 10 times worse it was horrible. So they were discontinued and every thing on my list is discontinued. I took the oxycodone for 30 days, ...
by woodsie357
Thu Feb 05, 2009 7:48 am
Forum: General Topics: RLS
Topic: Success
Replies: 12
Views: 960

I'm saddened by all the Doctors out there that are so terrified of drug users that they treat RLS poorly, not wanting to give us any medications that would help us. Last Feb 08 I was going to end my life, I couldn't take my legs one more day. But then I decided if I left my job instead of dieing I'd...
by woodsie357
Thu Feb 05, 2009 4:32 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Sound triggers my RLS
Replies: 9
Views: 4264

Oh I forgot another trigger for me is being touched. If someone bumps my leg... bam! it starts up, light touches seem to be the worst. Of course it doesn't need to have any triggers to start up, just sound and touch do it every time.
by woodsie357
Thu Feb 05, 2009 4:29 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: RLS deviation
Replies: 8
Views: 6318

I wouldn't wish RLS on anyone, not my worst enemy (as far as I know I don't have any)... But I wish EVERYONE had it for 1 full week every night. I wish this because unless you've experienced it first hand you just can't get it.

Best of luck to you all!!!
by woodsie357
Thu Feb 05, 2009 4:23 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Sound triggers my RLS
Replies: 9
Views: 4264

Yep moving is the ONLY thing that helps. If I move I'm cured. I've just never been able to master sleep walking ... hehehe. LOL I had a sleep study done, it was the most torturous night of my life. I never fell asleep, and ever time I had to get up the tech. had to come in and help me with the wires...
by woodsie357
Thu Feb 05, 2009 4:17 am
Forum: General Topics: RLS
Topic: Sound triggers?
Replies: 38
Views: 4081

Thank you for your reply. I've never found another RLS person with sound triggers either, just me so far. I've had RLS for many many years and been on all the normal meds for it. All the normal things (anti-depressants, etc.) make it worse, much worse. By tracking down whats going on when my symptom...
by woodsie357
Thu Feb 05, 2009 12:48 am
Forum: General Topics: RLS
Topic: Sound triggers?
Replies: 38
Views: 4081

Sound triggers?

Sound triggers my RLS and I'm desperate to find more information about this, or anyone else who has same sound triggers. I have severe RLS no medication has worked, most have made it worse.
by woodsie357
Thu Feb 05, 2009 12:38 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Sound triggers my RLS
Replies: 9
Views: 4264

Sound triggers my RLS

Hi my first post here so forgive me ahead of time. I've found that sound is one of my RLS triggers. Last night my husband was rubbing his arm with a creditcard. The wosh wosh instantly made my legs start going. I've also been triggered by the beeping of setting an alarm clock, or the keys being pres...