Search found 179 matches

by Wayne
Thu Oct 01, 2009 6:51 pm
Forum: Physical Treatments
Topic: Soap in the bed? can someone explain?
Replies: 17
Views: 4987

Old wive's tale, placebo effect, whatever. Home remedies are (mostly) harmless/cheap and you'll never know that it doesn't work until you try. I myself was delighted to find that I get some temporary relief with the vibrating pad on my recliner (which I read on this forum somewhere). As jy13131 said...
by Wayne
Mon Sep 28, 2009 9:37 pm
Forum: General Topics: RLS
Topic: Neuropathy....
Replies: 3
Views: 353

I failed my "tuning fork" test also. Which led to an MRI and a "nerve conduction test". MRI was OK, nerve conduction, not so good. I have a thread with the entire chronology, if you're interested Neurologist My RLS turned out to be neuropathy, most likely caused by chemo treatmen...
by Wayne
Mon Sep 28, 2009 3:04 pm
Forum: General Topics: RLS
Topic: flu and RLS
Replies: 20
Views: 1634

Unless you are constantly vomiting, like every 15-30 mins. I would say that your meds should stay down long enough to be absorbed. I have never been THAT bad off with flu, or food poisoning. There was always an interval of an hour or two and usually only when I tried to eat something. Got my general...
by Wayne
Thu Sep 17, 2009 12:31 am
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16574

After six weeks of feeling good, the Neurontin has lost it's effectiveness. The last week has been just miserable. I've resorted to taking a Xanax at bedtime again to be able to sleep. It's such a let-down after the initial success. I had hoped that the relief would have a longer duration. Called th...
by Wayne
Wed Sep 02, 2009 3:41 pm
Forum: Prescription Medications
Topic: Trying to get into John Hopkins
Replies: 20
Views: 2156

Re: Chemo and it's relation to RLS

Have you or anyone else ever heard that can happen from the chemo? Let me know if you have. I had chemo treatments for non-hodgkins lymphoma 25 years ago, long before I had any RLS/neuropathy problems. I went through 10 chemo treatments over a period of 6 months. All I can say is it didn't cause an...
by Wayne
Sun Aug 23, 2009 2:29 pm
Forum: Prescription Medications
Topic: Great Dr in NEPA!
Replies: 5
Views: 575

Ditto what Zach said. Be careful of where and when you are taking it until you know how it will affect you and how long those effects last. I nearly nodded off while at the wheel a couple times. When I first started, I ended up missing a couple days work because of the dizziness and drowsiness, but ...
by Wayne
Fri Aug 21, 2009 10:35 pm
Forum: Prescription Medications
Topic: Great Dr in NEPA!
Replies: 5
Views: 575

Hi Sarah.

I have been taking Gabepentin for about 3 months now and it's working out good for me both day and more importantly the night.

For me it was pretty rocky at first as it makes you light-headed, dizzy when you first start.

Good luck.
by Wayne
Tue Aug 18, 2009 3:49 pm
Forum: Just Joined?
Topic: Do your legs sometimes feel heavy in the morning?
Replies: 7
Views: 1038

I get the heavy legs (no pain) from time to time also. This phenomenon started with the Neurontin. Maybe I'm retaining water or something. At least when they're heavy they're not creepy crawly. It won't last long though once I'm up and about. Before the Neurontin, I used to take Xanax at night, but ...
by Wayne
Sun Aug 16, 2009 10:45 pm
Forum: Everything Else...just no RLS!
Topic: Facebook
Replies: 1
Views: 794

Hi waterloo.

I have a Facebook. I don't update too much and have only 4 friends, one of which is my sister.

What do you have in mind?
by Wayne
Sat Aug 15, 2009 2:58 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Hawthorn Berry
Replies: 2
Views: 2633

The top Google search result says that it's main benefit is as an antioxidant and can be a natural remedy or supplement for cardiovascular diseases. I found a few links where it was used for RLS, but they sounded very much like a snake-oil, wonder drug scams, complete with personal experiences where...
by Wayne
Tue Aug 11, 2009 9:01 pm
Forum: General Topics: RLS
Topic: Published Research - General Sleep and RLS (WED)
Replies: 492
Views: 139404

That is interesting. I don't have irritable bowels or any other gastro problem that I know of.

However, I can remember my 10 day Cipro antibiotic treatment in which for 2 days I didn't take any med to fall asleep.
by Wayne
Thu Aug 06, 2009 6:09 pm
Forum: Prescription Medications
Topic: Requip/Tramadol (Ultram)
Replies: 55
Views: 8950

Funny you mentioned beans, that didn't occur to me earlier. I eat a lot of Pork & Beans because I like them, and, they have a high fiber content to help you stay "regular" (as my grandma used to say).

Whatever works.

Kind of an odd topic drift.
by Wayne
Wed Aug 05, 2009 10:48 pm
Forum: Prescription Medications
Topic: Requip/Tramadol (Ultram)
Replies: 55
Views: 8950

Tramadol can be pretty constipating as well. I think for me it ranks up there with Methadone. "An apple a day..." As the doctors say, but it works. When I get constipated from meds or just naturally, I start eating apples. Works 95% of the time, for that other 5% there's laxatives.
by Wayne
Thu Jul 30, 2009 11:32 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16574

Do you at all get the urge to move, and get relief when you do? That's a tough one to answer. I'm going to say no. I could sit or lay still without having an obsessive compulsive need to move. I chose to move because I knew I would get some temporary relief by walking around a bit. Hard to differen...
by Wayne
Thu Jul 30, 2009 5:40 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16574

Thank you all for the well-wishes. I'm not totally symptom free, I still feel it a little bit in the evenings. But they fade away as the evening continues and are pretty much gone when I go to bed at around 10. I asked the neuro why it was in such a regular time frame, he said it could be the stress...