Search found 179 matches

by Wayne
Sun Jun 07, 2009 12:25 pm
Forum: General Topics: RLS
Topic: What makes your RLS worse?
Replies: 66
Views: 19632

Having had a reminder experience last night: Fevers. Fevers make my RLS suck really badly. Really, really badly. Interesting. My one experience with fever was pretty neutral, I didn't have any increase. Earlier this year (while on a business trip, no less) I had a bad urinary tract infection and wa...
by Wayne
Tue Jun 02, 2009 10:13 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16575

This will be my third day on Neurontin (300mg a day). It's been unpleasant but not unbearable. The first day I was light-headed and fatigued. Last night I made the mistake of taking it an hour before heading upstairs to bed hoping to get a head start, but the dizziness washed over me and I couldn't ...
by Wayne
Thu May 28, 2009 9:09 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16575

I think he's right about the neuropathy. I've experienced other long term side effects of chemo. I can't complain though because I'm still alive. I was 17 when diagnosed with non-Hodgkins lymphoma and the only side effect that really caught my attention back then was the hair loss. The bald look was...
by Wayne
Thu May 28, 2009 7:11 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16575

Update: Saw the neuro today. After the tests, minus the sleep study, he said that I have peripheral neuropathy (nervous system dysfunction) in both legs. He believes that the root cause is probably a long term side effect of the chemotherapy treatments I had over 26 years ago. Since I've never had a...
by Wayne
Thu May 28, 2009 10:35 am
Forum: Prescription Medications
Topic: Asleep at the Wheel
Replies: 6
Views: 735

I've experienced that sleep wave once or twice. The last was maybe 10 years ago which was pre-RLS and pre any medications. I was on business in Miami and wasn't due in the office until mid-afternoon. I arrived the night before, so I slept late at the hotel, had breakfast then watched TV for a while,...
by Wayne
Sun May 17, 2009 12:13 pm
Forum: Physical Treatments
Topic: Essential Oil use
Replies: 12
Views: 2619

Here's my opinion of the site. I took a quick look at the catalog available. It seems to be just an "organic" type store selling herbal oils, soaps (even housecleaning products are mentioned), facial creams, minerals etc. RLS or restless legs is not mentioned anywhere, and I saw no outrage...
by Wayne
Fri May 15, 2009 10:18 pm
Forum: Physical Treatments
Topic: Cold Baths
Replies: 8
Views: 1640

I guess the nickname "Polar Bear" is appropriate :)
by Wayne
Fri May 15, 2009 3:11 pm
Forum: Physical Treatments
Topic: Cold Baths
Replies: 8
Views: 1640

Maybe it's just me, but wouldn't sitting in an icy cold bath or river tend to decrease the circulation and numb the extremity that was in the water (hypothermia)? If you're in long enough to where the numbness sets in I'm sure you're brain isn't worrying about RLS symptoms at that point, so yes you ...
by Wayne
Fri May 08, 2009 5:59 pm
Forum: Prescription Medications
Topic: Methadone Users
Replies: 269
Views: 38839

I've experienced the muscle twitches you describe Mia. I think everyone experiences the occasional random muscle twitch or "tic" as I think they're called. For me, on very rare occasion, the twitch will persist for hours or all day long, not painful, but annoying for sure. Typically it wil...
by Wayne
Tue May 05, 2009 11:54 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16575

Update: Today I had my nerve induction test (I think that's what it was called). It was uncomfortable, you might even say "shocking", but mildly so. Nodes were put on my legs and various electrical shocks were administrated at various points on my legs to measure the response speed. It was...
by Wayne
Fri May 01, 2009 10:30 pm
Forum: Everything Else...just no RLS!
Topic: Cancer Free!
Replies: 7
Views: 1398

Isn't it great. I'm a 26 year survivor
by Wayne
Sun Apr 26, 2009 11:55 pm
Forum: Prescription Medications
Topic: Went away and forgot to take methadone.
Replies: 9
Views: 975

Well, being tall does have many advantages, but when it comes to RLS, it just means I have that much more leg to be creepy crawly :D
by Wayne
Sat Apr 25, 2009 10:33 pm
Forum: Prescription Medications
Topic: Went away and forgot to take methadone.
Replies: 9
Views: 975

Hi Maria. Glad to hear a happy ending. I'm curious. Were you on a long flight? Long being 4+ hours? Flying doesn't seem to aggravate my RLS, probably because I'm more uncomfortable being a 6' 3" guy cramped into a seat/ space that can only be comfortable for slender people 5 feet tall (good thi...
by Wayne
Thu Apr 23, 2009 11:33 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16575

Thanks for all the info. The MRI and blood work, OK, but a sleep study just seemed unnecessary. I already know I'm not sleeping because my legs are crawling all night. I guess if having a medical technician "officially" observe that I'm not sleeping or sleeping restlessly accompanied with ...
by Wayne
Sat Apr 18, 2009 11:48 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16575

According to the info he gave me on the "sleep clinic", it's just one night, with the electrodes and monitors and I leave in the morning. I can bring my computer (no internet connection though) or a movie or whatever to amuse myself. I'm not on Requip or any other RLS specific medication r...