Search found 179 matches

by Wayne
Fri Oct 28, 2011 9:40 pm
Forum: General Topics: RLS
Topic: Neuropathy?
Replies: 10
Views: 1715

Re: Neurologist? Maybe it's not RLS.....neuropathy?

My doctor said I will go and the Neurologist is going to do an thoracic and cervial MRI and possibly my ?Brain?.....what in the world? When I was first diagnosed and referred to a neurologist, he had me get an MRI on the brain also, thinking it might be a tumor or something (eliminating possibiliti...
by Wayne
Fri Oct 28, 2011 9:31 pm
Forum: General Topics: RLS
Topic: Our active membership
Replies: 19
Views: 4593

I'm a "gent" and I researched it about as far as I could when I was first diagnosed, mostly seeing that there is no cure or even a successful treatment for a majority of patients, beyond the anecdotal posts here about methadone being the most effective (with a few detractors also). Found t...
by Wayne
Thu Oct 13, 2011 1:43 pm
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 12130

Maybe you and I have a back related condition that aggrevates RLS. Have you had your back examined lately? No I haven't. But I don't have any back problems. On three rare occasions that I can remember over the last 20 years, I have pulled a muscle in my back or something that left me in pain for a ...
by Wayne
Wed Oct 12, 2011 9:41 pm
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 12130

It's been over a year since I first posted about being able to fall asleep lying on my stomach even with my legs buzzing. I'd just like to report that it still seems to be working and is actually getting easier to fall asleep. My gabapetin was cut from 300mg 3 times a day to just one in the late eve...
by Wayne
Thu Sep 08, 2011 1:08 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Coffee, including "decaf", seems to cause/worsen R
Replies: 19
Views: 8866

I don't drink any caffeine at all now and I rarely did when younger (pre RLS) and I still have RLS issues.
by Wayne
Tue Aug 30, 2011 10:58 pm
Forum: Physical Treatments
Topic: Soap in bed
Replies: 6
Views: 1928

Came across the "soap in the bed" thing on snopes.com (a website that debunks or confirms myths, legends, or rumors). It talks about leg cramps, not RLS/WED, but still amusing and comes to essentially the same conclusions stated here. The odd thing is that it usually classifies lore/legend...
by Wayne
Tue Aug 23, 2011 12:57 am
Forum: Prescription Medications
Topic: nausea and RLS
Replies: 8
Views: 2057

I'm not taking anything much for the RLS. Was on gabapentin which helped but they took me off it to see if that was the cause of my vertigo. Now I'm starting it up again. So far just 100 mg. So far the RLS is manageable without meds but I don't want to take anything that could make it worse. They d...
by Wayne
Sun Aug 21, 2011 11:22 am
Forum: General Topics: RLS
Topic: AC not working!
Replies: 2
Views: 408

Thankfully no. Hot or cold doesn't seem to be a factor for me. The window AC keeps my room cool but it's noisy, so I don't like using it. It has to be really hot for me to use it. Typically I turn it on a few hours before bed to (after the sun goes down) to cool off the upper floor and then turn it ...
by Wayne
Sun Aug 21, 2011 11:16 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: sativa vs. indica
Replies: 40
Views: 17387

Opioids - any - will definitely cause constipation! Most of us increase fiber, and try all kinds of things to help. You're the first person that I've heard, besides me, who has reflux from them! Glad to hear I'm not crazy. I had to start using an acid controller when I take opioids. The nights I ta...
by Wayne
Sun Aug 21, 2011 1:17 am
Forum: General Topics: RLS
Topic: AC not working!
Replies: 2
Views: 408

AC not working!

My central AC stopped working! Less than two weeks of hot weather left and it decides to crap out now. Happened at just a perfect time. I just finished a session on my exercise bike and was all hot and sweaty and my AC tried to come on and all I heard was a lot buzzing/grinding coming from the blowe...
by Wayne
Sun Aug 21, 2011 1:08 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: sativa vs. indica
Replies: 40
Views: 17387

I stopped worrying about addiction or dependency two years into RLS. If it works I'll stick with it, unless it's causing some other intolerable problem. Recently I was prescribed codeine (in place of gabapentin) which I took for two weeks and then stopped. It was causing reflux and gave me cramped b...
by Wayne
Sun Aug 14, 2011 11:43 am
Forum: Prescription Medications
Topic: Antidepressant that doesn't make EkD worse?
Replies: 18
Views: 4660

Hi Tracy, From what I understand, gabapentin seems to work best for people who have painful WED. It works less well for people with the creepy-crawly-sensation WED. True for me, a creepy-crawly sufferer. When I first started the gabapentin it worked great for the first month then stopped being effe...
by Wayne
Wed Jul 20, 2011 9:31 pm
Forum: Prescription Medications
Topic: Advice needed
Replies: 25
Views: 4912

Yes, the weather there is about the same as back home. I'll be inside most of the time so should be okay. Thanks for the support! You know I just noticed your locality (when you said "home"). What a coincidence, I was born and raised in Kansas City MO. Still have relatives there, but don'...
by Wayne
Tue Jul 19, 2011 10:41 pm
Forum: Prescription Medications
Topic: Advice needed
Replies: 25
Views: 4912

Rubyslipper wrote:I don't really know if I am supposed to broadcast this but I am flying out to DC later this


Hey your in my area! Watch out for the heat and good luck with your presentation!
by Wayne
Sun Jul 17, 2011 11:14 am
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16481

Side note about the acid reflux side effect: I can't take codeine because it makes me vomit. However, it sort of moves progressively from acid reflux and nausea with the first dose to full-on vomiting a few doses later. I've read that it has something to do with how I metabolize the drug and that i...