Search found 179 matches

by Wayne
Fri Feb 18, 2011 10:53 pm
Forum: General Topics: RLS
Topic: sleep
Replies: 27
Views: 2624

What dose were you on and how long were you on it. I'm sorry PB I don't remember the precise details or dosage. It was a very long time ago for me (28 yrs) I believe the steroid was prescribed to help build my strength, energy and appetite, and had nothing to do with killing cancer cells. I was on ...
by Wayne
Mon Feb 14, 2011 10:36 am
Forum: General Topics: RLS
Topic: sleep
Replies: 27
Views: 2624

Polar Bear wrote:... it could be another 8 months if all goes smoothly.....


8 months? I was weened off it in the space of about 6 weeks. Maybe your doc thinks you need it, and is just slowly reducing it, but I'm not a doctor so don't go by me
by Wayne
Sat Jan 08, 2011 1:19 am
Forum: General Topics: RLS
Topic: RANT: I *hate* my new doctor
Replies: 24
Views: 2244

I chipped a tooth on a Dorito. Luckily it didn't expose a nerve. Did freak me out though since that has never happened to me before. I have felt your pain on the teeth. I have two implants in my lower jaw holding a three tooth bridge. That was a long 6 months between the oral surgery and when the br...
by Wayne
Mon Dec 27, 2010 3:49 pm
Forum: Prescription Medications
Topic: Lyrica extreme sleepiness - does it go away?
Replies: 7
Views: 817

I took Lyrica for a week and my experience was somewhat different. I didn't get any drowsiness at all (not even good for a sleeping pill) It did absolutely nothing for the RLS, in fact, the RLS seem to intensify, making me a nervous wreck. After a week I stopped it and notified my neuro, he had me r...
by Wayne
Tue Dec 14, 2010 12:47 am
Forum: Prescription Medications
Topic: Taking Xanax - worried about addiction
Replies: 39
Views: 7405

Wayne-- Glad you have something that works for you. If you're comfortable with your one-a-day schedule, I wouldn't expect you to develop a significant tolerance. Xanax comes and goes the quickest of all of the benzos, so with one dose a day you're probably avoiding the extended/continuous exposure ...
by Wayne
Mon Nov 08, 2010 12:36 am
Forum: General Topics: RLS
Topic: So upset
Replies: 17
Views: 1768

I'm like Zach. If I tell people at all, I tell them I have a neurological disorder in the leg nerves, that it disrupts my sleep and leave it at that. I only go into details if they ask. You won't get much sympathy if at all from casual acquaintances. That's reserved for those scary fatal conditions ...
by Wayne
Mon Oct 25, 2010 10:01 pm
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 12129

So on my left side, I wrap my right leg over my left, and tuck my left foot under my right knee, pressing my toes into a point. I usually wedge a small pillow under my right knee. Then I twist my left leg (outstretched) around, so although my knee is on its side, the top of my foot is mushed into t...
by Wayne
Wed Oct 20, 2010 1:20 am
Forum: Physical Treatments
Topic: Sleep Study and RLS
Replies: 16
Views: 4606

Restrained? What do you mean by restrained, were you strapped into the bed? That's sounds awful if that's the case. I've had two studies, the wires are annoying but they could be connected to a portable device that you can carry with you. At least this was how it was for me. All I had to do was summ...
by Wayne
Tue Sep 28, 2010 9:23 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16481

Was the neurologist helpful? I am seeing a GP and wondering if i should be under the care of Neurologist. Yes. Your experience may be different though. I'd research the Neuro and find out if they have any experience treating RLS and if they are willing and licensed to prescribe medications up to th...
by Wayne
Tue Sep 07, 2010 8:58 pm
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16481

Hello. Been a while for me. Saw my neurologist today. Will now be trying Lyrica, and stopping the gabapentin. I've read here that Lyrica seems to be the next drug when gabapentin is not or no longer effective. Be glad to be off it as it seems to have little effect anymore, and the side effects are b...
by Wayne
Sun Aug 22, 2010 12:34 am
Forum: Physical Treatments
Topic: Hot Yoga
Replies: 6
Views: 1483

I've been trying Wii Fit yoga on and off, maybe I should shut off the AC and open some windows. :lol:
by Wayne
Thu Jul 22, 2010 9:44 pm
Forum: Everything Else...just no RLS!
Topic: Does anyone know anything about steroids medication
Replies: 5
Views: 1117

Wayne - when you mention having had chemo as a teenager it kinda puts a bit of weight gain into perspective. Trust you are now well. I am thank you. I would do another round of chemo if it was discovered to cure RLS! But that's what steroids do, they build/bulk you up and give you energy, which is ...
by Wayne
Thu Jul 22, 2010 7:34 pm
Forum: Everything Else...just no RLS!
Topic: Does anyone know anything about steroids medication
Replies: 5
Views: 1117

I took prednistone for about 6 weeks when I started chemo (this was almost 30 yrs ago when I was a teenager). I experienced all the symptoms that you describe. The weight gain and appetite increase was a good thing for me, because prior to my chemo treatments I had lost about 35-40 pounds, I was way...
by Wayne
Thu Jul 22, 2010 3:59 pm
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 12129

On my tummy with legs bent at the knee and feet in the air. If you shuffle down the sofa until your knees touch the arm rest, the arm rest helps to prop up the knees. Not great for sleeping, but helps when lying on the sofa to watch tv. I do that on the couch too. But I don't have to shuffle. I can...
by Wayne
Thu Jul 22, 2010 1:15 am
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 12129

Sleep position

Not really a remedy at all, just something happening to me and thought I'd share. Lately I've been going to bed with my legs buzzing as usual and yet falling asleep anyway while lying on my stomach (without taking the bedtime dose of Xanax). I awake 1-3 hours later, without the buzzing, hit the bath...