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by badnights
Fri Jan 11, 2019 2:50 am
Forum: Prescription Medications
Topic: What DA to take
Replies: 12
Views: 314

Re: What DA to take

If you can get by without raising it to 0.5 .... I hate to see you augment after being stable for so long.
by badnights
Fri Jan 11, 2019 2:48 am
Forum: Prescription Medications
Topic: Experience with Injectafer?
Replies: 42
Views: 1818

Re: Experience with Injectafer?

Oh Holland, I'm crying. I don't know if it's because I'm happy for you or sad for myself! Both, I guess. I hope the benefits for you last a long time!
by badnights
Fri Jan 11, 2019 2:44 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 72
Views: 2140

Re: Attempting to get off Ropinirole - again

The reason to do it cold turkey is so that it hurts for less time. Remember that if the taper becomes too agonizingly everlasting.
by badnights
Fri Jan 11, 2019 2:28 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Proferrin/Iron Heme Polypeptide Tablet
Replies: 19
Views: 436

Re: Proferrin/Iron Heme Polypeptide Tablet

lol. Let us know how it goes!
by badnights
Thu Jan 10, 2019 8:02 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Proferrin/Iron Heme Polypeptide Tablet
Replies: 19
Views: 436

Re: Proferrin/Iron Heme Polypeptide Tablet

I currently take 3 tablets of sulfate or fumarate with 60 mg iron in each, or 180 mg elemental iron. (And I notice within a few weeks if I drop down to 2 tablets.) Each heme tablet (Proferrin brand) has 11 mg. That would be over 16 tablets to get an equivalent dose. Presumably, it is more efficientl...
by badnights
Thu Jan 10, 2019 7:01 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: desiccated liver powder
Replies: 8
Views: 418

Re: desiccated liver powder

peanut1 wrote: if I take too many iron pills it impacts my digestion which kicks in the RLS. What is the relation between digestion & RLS? There is probably a closer relationship than we know for sure right now, in that the gut microbiota (the bugs that live in our guts) can have far-reaching e...
by badnights
Thu Jan 10, 2019 6:55 am
Forum: Physical Treatments
Topic: Any luck with a sleep study?
Replies: 20
Views: 769

Re: Any luck with a sleep study?

Hi bjoyful. Your dose of Requip/ropinirole is already the maximum recommended for WED/RLS (though Parkinson's patients can go much higher). There are two things for you to be aware of : one is that you may need iron, which may improve your symtoms and enable you to lower your dose of Requip. The oth...
by badnights
Sun Jan 06, 2019 7:49 am
Forum: General Topics: RLS/WED
Topic: RLS and Adrenaline - it's an ill wind ...
Replies: 4
Views: 183

Re: RLS and Adrenaline - it's an ill wind ...

It's interesting that your symptoms stop when you're upset like that. There might be no real correlation, since your symptoms have been improving for the last while. Or it might be another example of how distraction blocks the WED/RLS signals somehow.
by badnights
Sun Jan 06, 2019 7:41 am
Forum: Help for Relationships
Topic: What Relationships?
Replies: 38
Views: 3788

Re: What Relationships?

restlessknight, thank you so much for sharing your thoughts and your wonderful attitude. You made me cry :) Remind your doctor that in WED/RLS, iron in the blood may be fine, while at the same time there is a deficiency of iron in the brain. There is no direct way to check for iron in the brain so t...
by badnights
Sun Jan 06, 2019 7:22 am
Forum: Prescription Medications
Topic: Cannabis
Replies: 38
Views: 720

Re: Cannabis

My prescribed buccal spray contains 2.5 mg CBD and 2.7 mg THC per dose. I use 2-3 sprays a night, so about 7.5 mg CBD. I don't notice any difference in the quality of my sleep. When I was travelling last September, I tried a similar product, a non-prescribed water-based tincture, and I was able to s...
by badnights
Sun Jan 06, 2019 5:22 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 72
Views: 2140

Re: Attempting to get off Ropinirole - again

How fast..... I don't know. And certainly my GP doesn't really know, trial and error I think.... playing it by ear. Which will likely mean very slowly. It has crossed my mind to email Dr B, providing my medication details and asking for his opinion on how to approach the Withdrawal. I think that's ...
by badnights
Sun Dec 30, 2018 6:37 am
Forum: Just Joined?
Topic: introducing myself. very much in crisis
Replies: 7
Views: 281

Re: introducing myself. very much in crisis

I don't know how to navigate this.....Is there a relatively normal life and adulthood after Mirapex, or am I looking at a profound disability? Does cognitive therapy help with compulsive/impulsive disorders when they are caused by dopamine agonists? I won't beat it to death, since Steve and Holland...
by badnights
Sun Dec 30, 2018 6:11 am
Forum: General Topics: RLS/WED
Topic: Published Research - General Sleep and RLS (WED)
Replies: 447
Views: 107437

The impact of the use of amalgam in dental treatment on the prevalence of restless legs syndrome in older people

Yikes. I have often wondered about this. 104 people were questioned about their dental fillings and RLS/WED symptoms: http://medpr.imp.lodz.pl/The-impact-of-the-use-of-amalgam-in-dental-treatment-on-the-prevalence-of-restless,93602,0,2.html Results: Subjects who answered “yes” (indicating presence o...
by badnights
Thu Dec 27, 2018 6:43 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 72
Views: 2140

Re: Attempting to get off Ropinirole - again

I don't have a follow up GP appointment, I ring the medical practice and make an appointment, or ask for a call back telephone appt, to confirm how it's going and up the gabapentin. If it is too difficult in the meantime I would ring sooner and ask to up the gabapentin. Sorry if you already mention...
by badnights
Wed Dec 26, 2018 6:34 am
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 72
Views: 2140

Re: Attempting to get off Ropinirole - again

I am only on 1mg Ropinirole per day, so I could easily get off it. Problem is, then my RLS symptoms are unmanageable and I'm walking the floors all night. Hi java Becuase you mentioned that your symptoms are unmanageable when you try to get off ropinirole (and you've been thru this 4 times) I think...

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