Search found 4168 matches

by badnights
Thu Mar 11, 2010 8:19 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Just eat it...
Replies: 4
Views: 2896

Awesome maybe you know what I've been trying to find out: is it a sativa or an indica strain you using? And even better, you have an edible form - who makes it? I have tried smoking a few times, and it worked a number of times and then 3 times in a row it made the RLS worse so I stopped. I found out...
by badnights
Thu Mar 11, 2010 6:15 am
Forum: General Topics: RLS/WED
Topic: My turn to see Dr. B
Replies: 106
Views: 7501

That breaks my heart, what your son said. So often when I've been up at night the last few months, my son would be coming downstairs to go to the bathroom or look in the fridge. I finally realized it wasn't just coincidence; he was up 4-8 times every night. I asked him about it and he has RLS, he de...
by badnights
Thu Mar 11, 2010 2:11 am
Forum: Prescription Medications
Topic: Misery for the Uninsured (or underinsured)
Replies: 20
Views: 1949

yay! It's so great when there's relief.
by badnights
Sat Mar 06, 2010 10:35 pm
Forum: Prescription Medications
Topic: Number of refills on hand (stashed)?
Replies: 6
Views: 669

I am just new at this, but if I get a prescription before my old one has completely run out, I immediately stash the old pills away and start on the new batch. At some point I should do like Zach and rotate them for freshness. I don't have much of a supply built up and I'm kicking my butt I didn't g...
by badnights
Sat Mar 06, 2010 10:31 pm
Forum: Prescription Medications
Topic: Methadone - Sleep Apnea - pls read
Replies: 40
Views: 3510

You know, you've made me think. It certainly would be great to be in one place together (at times, anyway), all us RLSers. (Maybe that's what support groups are like.) But how terrible it would have been, to be this way before the internet! (some of you were, of course; luckily not me.) At least we ...
by badnights
Sat Mar 06, 2010 10:19 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: update regarding a specific cause of RLS symptoms
Replies: 2
Views: 2515

Interesting. Some people are convinced that toxins cause ALS and other neurological diseases too. Was the Al listed as an ingredient in your vitamin pills? How can you tell what your toothpaste tube is made of? Does Al vaporize at typical oven cooking temperatures - i.e. would you use it to line a d...
by badnights
Sat Mar 06, 2010 6:27 am
Forum: General Topics: RLS/WED
Topic: And, now my turn
Replies: 137
Views: 8151

ann. hang in there. maybe a higher dose will be suggested. or combinations.
by badnights
Sat Mar 06, 2010 6:23 am
Forum: Prescription Medications
Topic: And I thought Hydrocodone was for pain!
Replies: 19
Views: 3342

right now, i just want to get through a night without a 2-hour awake period. I hear you! Maybe you haven't augmented. Here are the criteria: ALL OF: initially positive response to treatment increase in symptom severity on at least 5 days of the last week no other reason for the increased severity P...
by badnights
Sat Mar 06, 2010 3:37 am
Forum: Prescription Medications
Topic: And I thought Hydrocodone was for pain!
Replies: 19
Views: 3342

Ann pretty much explained it. Just one thing I should clarify: the only reason you would have to stop ropinirole completely and get it out of your system, then try it again, is if you were augmenting due a too-high dose of it. That means the dose was higher than your body could handle, which made yo...
by badnights
Sat Mar 06, 2010 12:48 am
Forum: Prescription Medications
Topic: Methadone - Sleep Apnea - pls read
Replies: 40
Views: 3510

You were only on the ropinirole 3 weeks was it? and you've been off about 1 week now...? Give it another week if you feel you must, but don't torture yourself for too long. Don't worry that your doc was hasty in the email, that just means he didn't know the answer right off the bat. You need to sit ...
by badnights
Fri Mar 05, 2010 7:56 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: sativa vs. indica
Replies: 40
Views: 16462

sativa vs. indica

Who can remember if it's sativa or indica marijuana which is good for RLS? One is good and the other makes it worse.
by badnights
Fri Mar 05, 2010 7:56 pm
Forum: Prescription Medications
Topic: Methadone - Sleep Apnea - pls read
Replies: 40
Views: 3510

doety, have you gone back to your doctor? The reuip causes augmentation so it's out of the question to use. Right now you might still be withdrawing, if so time will improve things, but on the other hand this might be your baseline RLS. The methadone depresses your breathing so you can't raise the d...
by badnights
Fri Mar 05, 2010 7:44 pm
Forum: Prescription Medications
Topic: And I thought Hydrocodone was for pain!
Replies: 19
Views: 3342

If you follow the algorithm, the next step would be to try the other approved DA (pramipexole/Mirapex). Then if that doesn't work, move on to anticonvulsants (as Ann said, though, they're not much use for bad RLS except in combination with a DA or opiod), and finally opiods. However, following an al...
by badnights
Thu Mar 04, 2010 10:16 pm
Forum: Just Joined?
Topic: New Member Info
Replies: 17
Views: 2225

I have tried a number of different combinations of things. 10mg oxycodone by itself was nowhere near enough. I am now on nothing but 9 mg hydromorph contin and it's working. I sleep. I am still in the day. But it has only been a week so I am keeping my fingers crossed. 2.5 years ago, before I was fo...
by badnights
Thu Mar 04, 2010 8:25 pm
Forum: Just Joined?
Topic: New Member Info
Replies: 17
Views: 2225

When I was on Neurontin, it had the effect on me of stilling the creepy feelings but leaving the hypervigilance; so I would be wide awake, not kicking but exhausted. There is a component of hypervigilance which goes with the sensory disturbances in RLS, tho I've only seen it mentioned in one paper. ...

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