Search found 4102 matches

by badnights
Fri Mar 30, 2018 8:24 am
Forum: Physical Treatments
Topic: Counterstrain Technique
Replies: 10
Views: 1111

Re: Counterstrain Technique

If anyone finds some information on the "RLS-specific" locations and what to do with them, I'd be interested in seeing it. I couldn't find specifics.
by badnights
Fri Mar 30, 2018 8:23 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 153
Views: 8434

Re: Dipyridamole

little things, like having to keep track of time for my meds (with frequently changing time zones) and regularly having to refuse the wine at meals that I used to love. It has just driven home how much more RLS has taken from me beyond the sleep and movement issues that are a regular part of our da...
by badnights
Fri Mar 30, 2018 3:23 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Ferriton levels/supplements
Replies: 2
Views: 597

Re: Ferriton levels/supplements

If possible, get a lab measure of serum (b lood) ferritin, before and a few months after starting the ferrous sulfate. (Ferrous fumarate is also as good.) Then you can tell how well it's working. If your ferritin is not raising enough, you can try 2 pills. But you should make sure there are no contr...
by badnights
Fri Mar 30, 2018 3:21 am
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Changing my diet may have solved my RLS
Replies: 32
Views: 2473

Re: Changing my diet may have solved my RLS

Sorry Oooz didn't see your post til now but it's as Ann said: The literature said you would go back to your old level of symptoms once the augmentation and withdrawal wore off, but a number of us were convinced that was not the case, that in fact there was a long-term or perhaps permanent worsening....
by badnights
Thu Mar 29, 2018 10:50 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 153
Views: 8434

Re: Dipyridamole

Re methotrexate , and further to Holland's comments, they specifically note the dangers of adenosine agonists in the RLS-adenosine paper (p9). That's why they tried an ENT1 inhibitor - as sort of a work-around. Holland: I know what you mean about second half of day, and not knowing what normal is. I...
by badnights
Thu Mar 29, 2018 10:35 pm
Forum: Prescription Medications
Topic: Great, well sourced article on opioids
Replies: 8
Views: 658

Re: Great, well sourced article on opioids

Thank you Restless Legs Syndrome Foundation for advocating for us in Washington D.C.
Hear, hear.
by badnights
Thu Mar 29, 2018 10:35 pm
Forum: Augmentation
Topic: switching from ropinirole to gabapentin
Replies: 5
Views: 2338

Re: switching from ropinirole to gabapentin

I have no sure solution for medication induced hot flashes, although I like to imagine that my menopause-induced ones improved from evening primrose oil. More importantly, in what way was the ropinirole "not working"? Were your symptoms becoming more intense, were they starting earlier in ...
by badnights
Thu Mar 29, 2018 5:11 am
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 1252

Re: Prescription Refills

Phew.
by badnights
Thu Mar 29, 2018 5:10 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 153
Views: 8434

Re: Dipyridamole

I wasn't thinking of development of a new medication - I was thinking of existing ENT1 inhibitors other than dipyridamole, that could be tested, pick the best one, that sort of thing.
by badnights
Thu Mar 29, 2018 5:08 am
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 153
Views: 8434

Re: Dipyridamole

Oops, you mean ENT1 antagonist (if that sort of terminology is appropriate). It inhibits transport of adenosine into the neuron, thus leaving it to accumulate in the extracellular space, where it can exert its inhibitory effect on glutamate release.
by badnights
Tue Mar 27, 2018 11:32 pm
Forum: Prescription Medications
Topic: Opioid Study at Massachussets General
Replies: 9
Views: 1104

Re: Opioid Study at Massachussets General

Congratulations! If it's Julia who interviews you, she's really nice.
by badnights
Tue Mar 27, 2018 11:31 pm
Forum: Prescription Medications
Topic: Prescription Refills
Replies: 26
Views: 1252

Re: Prescription Refills

Blast it all. I wish people realized how non-productive we are when we can't sleep! And what torture it is to be kept from sleep by those symptoms. It's way worse than just having insomnia.
by badnights
Tue Mar 27, 2018 11:29 pm
Forum: Prescription Medications
Topic: Dipyridamole
Replies: 153
Views: 8434

Re: Dipyridamole

Well, there's part of my answer. I just need to decide when, now.
thanks :)
by badnights
Tue Mar 27, 2018 11:28 pm
Forum: Prescription Medications
Topic: Recovery from augmentation-induced dopamine-system disruption?
Replies: 0
Views: 475

Recovery from augmentation-induced dopamine-system disruption?

I've recently been considering this issue. A lot of us feel that we were permanently or semi-permanently damaged by augmentation on dopamine-type meds. At first the literature told us this was impossbile, but now medical researchers are starting to acknowledge that long-term damage might be caused b...
by badnights
Tue Mar 27, 2018 11:25 pm
Forum: Prescription Medications
Topic: Five Years on Kratom
Replies: 1
Views: 521

Re: Five Years on Kratom

Mary, thanks for this useful summary. It's so valuable to have a synopsis of someone's experience, especially with something like kratom which not a lot of people are using compared to more conventional meds. I had wondered about old kratom losing its effects, because I have some that's years old no...

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