Search found 4447 matches

by badnights
Mon Jun 03, 2019 5:11 am
Forum: General Topics: RLS/WED
Topic: What Calms You in the Night?
Replies: 39
Views: 2870

Re: What Calms You in the Night?

I vaguely recall reading somewhere a post or article explaining how eating carbs might help with RLS symptoms but can’t remember where. Could’ve been posted here somewhere—ring a bell for anyone? I've read that carbs help with sleep by stimulating reward systems in the brain somehow. Sleep, not WED...
by badnights
Mon Jun 03, 2019 4:53 am
Forum: General Topics: RLS/WED
Topic: The Battle
Replies: 19
Views: 269

Re: The Battle

I felt such a sense of familiarity reading your post. For one, your history of never-healing soft-tissue injuries sounds familiar to me, I have been experiencing similar things but luckily nothing that has completely stopped me, Both shoulders, a biceps, a hamstring insertion, tendonitis in both elb...
by badnights
Sat Jun 01, 2019 10:41 pm
Forum: Prescription Medications
Topic: Rotating Meds
Replies: 23
Views: 274

Re: Rotating Meds

I cannot admit to my doctor that I have a stash. Once I did, and I got a lecture and concern and contemplation of reducing my dose - that was a learning experience which I have never repeated. My stash has been chipped away at for a while now, because for the last couple of years I've been taking ex...
by badnights
Sat Jun 01, 2019 10:34 pm
Forum: Prescription Medications
Topic: Weaning off medications
Replies: 25
Views: 392

Re: Weaning off medications

If you're determined to go this route, try some perhaps-drastic dietary changes. Different people find different dietary things trigger their symptoms, and some have found that various dietary approaches will actually improve their symptoms. So, the triggers that have been mentioned on this board - ...
by badnights
Mon May 27, 2019 10:07 pm
Forum: Prescription Medications
Topic: Aimovig
Replies: 9
Views: 298

Re: Aimovig

lol. yes, I'm very curious to hear the answers!
by badnights
Mon May 27, 2019 10:06 pm
Forum: Prescription Medications
Topic: Getting used to Lyrica
Replies: 7
Views: 109

Re: Getting used to Lyrica

I would be very cautious if you consider adding back a tiny pramipexole dose - I would in fact wait longer before trying. As per Holland's note re opioids, I will add to it that the hyperalertness that opioids cause (in WED/RLS patients) might exacerbate your situation - the hyperalertness seems to ...
by badnights
Mon May 27, 2019 8:36 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Medical Marijuana
Replies: 467
Views: 48977

Re: Medical Marijuana

Hi again Jim! I'm pleased to hear you're sleeping so well.

What kind of bud or oil do you buy?
by badnights
Fri May 24, 2019 4:43 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 39
Views: 575

Re: Excellent article on opioids

Everyone is so kind and compassionate, and knowledgeable. Wish my doctors were... :(
A lot of us find ourselves providing information for our doctors, or pointing them to information - educating them, in a sense. If they need it, and are open to it, it might as well be one of us who does it.
by badnights
Thu May 23, 2019 6:18 pm
Forum: Just Joined?
Topic: Travel
Replies: 6
Views: 141

Re: Travel

Some of the airline stewards do understand, some have no clue. For them, it;s a safety thing. I have a note from my doctor saying that I need an aisle seat. I've never had to use it but I always imagine it would be useful if I needed to justify standing up a lot because it says an aisle seat allows ...
by badnights
Thu May 23, 2019 8:25 am
Forum: Everything Else...just no RLS/WED!
Topic: Weight Loss
Replies: 40
Views: 7265

Re: Weight Loss

Wow, how many of your meds had swelling as a possible side effect! Maybe you were getting hit by all of them at once. Your doctor seems to have left no stone unturned.
by badnights
Thu May 23, 2019 7:22 am
Forum: Prescription Medications
Topic: Excellent article on opioids
Replies: 39
Views: 575

Re: Excellent article on opioids

The pain medicine doc even said "They call it restless LEGS, so you CAN'T have it in your arm!" I've had that said to me too, and also "it's only at night, you can't have it in the daytime". Same doctor said both things to me, I corrected her and she seemed to accept it. That's ...
by badnights
Thu May 23, 2019 7:09 am
Forum: Prescription Medications
Topic: New to Forum Need advice about Ropinirole
Replies: 11
Views: 167

Re: New to Forum Need advice about Ropinirole

WED/RLS cannot be detected on a sleep study. The diagnosis can only be made by talking to the patient, because the primary symptom is the un-ignorable urge to move at night when you're resting. Although it's not clear from your description here, let's assume you have WED/RLS. Based on what I know, I...
by badnights
Thu May 23, 2019 5:41 am
Forum: Just Joined?
Topic: New here, just diagnosed but not sure it really is RLS...
Replies: 30
Views: 913

Re: New here, just diagnosed but not sure it really is RLS...

jerry it's ok to be one-sided here. I think almost everyone here started in a desperate state that was necessarily very self-centered. A lot of people interact most during their darkest phase and then we hear less as they get better. That's OK. It's also wonderful to want to give back. But if you do...
by badnights
Wed May 22, 2019 5:05 pm
Forum: Augmentation
Topic: augmentation with lyrica?
Replies: 8
Views: 353

Re: augmentation with lyrica?

James, what were your symptoms like before the Lyrica? Have you ever taken anything else?
by badnights
Tue May 21, 2019 6:52 am
Forum: Prescription Medications
Topic: Aimovig
Replies: 9
Views: 298

Re: Aimovig

Wild. Very encouraging. What is the dosing schedule? How many shots to go ? How far apart are they?

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