Search found 74 matches

by runkrun
Fri Oct 02, 2009 10:51 am
Forum: Just Joined?
Topic: My first post...
Replies: 10
Views: 1346

Tedzbear,Welcome to your new RLS family. This is a great place to discuss our frustrations and bounce ideas off of others. There is also so many knowledgable individuals and health care professionals that know this disorder inside and out. Since you have kidney disease you may want to get your ferri...
by runkrun
Mon Sep 28, 2009 11:03 am
Forum: General Topics: RLS
Topic: When is the last time anyone here had.......
Replies: 23
Views: 2484

I'm also finally getting naps again, and I believe it's the opiates. The medication allows me to get adequate rest and relieves me of any symptoms.
by runkrun
Mon Sep 28, 2009 10:51 am
Forum: Physical Treatments
Topic: Soap in the bed? can someone explain?
Replies: 17
Views: 4976

If I hear one more person say "Put a bar of soap under your sheets " for my RLS I'll scream.Been there ,tried that! It just does'nt work! But then again, people just don't understand the severity of our disorder. I believe that alot of these home remedies and old wives tales for cure alls ...
by runkrun
Sat Sep 26, 2009 10:20 pm
Forum: Just Joined?
Topic: New here, not to RLS
Replies: 3
Views: 549

Welcome to your new RLS family. Sorry to hear that your in so much discomfort and having to sit during your shift. That can be a form of torture for us sufferers. Since I work in the healthcare profession I can relate to your woes of cost with medications, office visits, etc. However, you've got to ...
by runkrun
Sat Sep 26, 2009 12:14 pm
Forum: General Topics: RLS
Topic: Mayo Clinic consultation cost
Replies: 8
Views: 1045

Mayo Clinic consultation cost

I just received my statement from my insurance company regarding the cost of a consultation with Dr Silber at Mayo Clinic. For the consultation only it was $ 465.00.(my sleep study was canceled)That does'nt include my flight, hotel and food. Even if I would of had to pay the consult out of pocket, i...
by runkrun
Sat Sep 26, 2009 11:28 am
Forum: Prescription Medications
Topic: I am going to seriously go CRAZY soon!!
Replies: 10
Views: 1173

If your augmenting you should not be taking Sinemet! It will just make you worse! It has been my experience that I augmented on Sinemet, Requip and Mirapex. My physician from Mayo said no DA's if augmentation happens with each medication. How high of a dose of Neurontin are you on? 3600 mgs is the m...
by runkrun
Wed Sep 23, 2009 10:57 am
Forum: General Topics: RLS
Topic: Henry Waxman....boo!
Replies: 5
Views: 490

I'm sorry but it's people like that I would like to give them my RLS,regime of medications, side effects, frequent physician appointments, sleepless nights,etc.,then see what comments they have to say!
by runkrun
Wed Sep 23, 2009 1:23 am
Forum: General Topics: RLS
Topic: Saw consultant today
Replies: 1
Views: 247

I recently switched from Gabapentin 3000mgs to Lyrica 150 mgs three times a day,Norco, and a benzo.! I'm finallly sleeping great and RLS is under control. Don't be afraid of the RLS meds. Believe me they are or will be your friend, especially if your disorder progresses like mine. I don't know why y...
by runkrun
Fri Sep 18, 2009 12:03 am
Forum: General Topics: RLS
Topic: Mayo Clinic...Dr Silber appointment...Great experience!
Replies: 6
Views: 2901

I have no idea how much my appt cost with Dr Silber. However, when I get the insurance forms in the mail that show what was covered, I will let you know.
by runkrun
Thu Sep 17, 2009 10:48 am
Forum: Prescription Medications
Topic: Codeine withdrawl
Replies: 13
Views: 1504

Does'nt your physician know you will go with terrible withdrawls if you don't wean slowly off of Opiates? Does he care? This seems very cruel and inhumane to me! Have you printed the Mayo Clinics Algorhythm (from Zach's signature) and taken it to him. I always think it's good to create a plan WITH y...
by runkrun
Thu Sep 17, 2009 2:15 am
Forum: Prescription Medications
Topic: Has anyone had any success with Lyrica?
Replies: 7
Views: 797

Sorry, I missed it that your the one in recovery! This is how I did it early on. I have mentioned in other posts that I had opiate/alcohol addiction after a back injury 17-18 yrs ago. I finally hit bottom, asked for help and went to treatment for 5 months. That truly was a gift from God. I have cont...
by runkrun
Thu Sep 17, 2009 1:51 am
Forum: General Topics: RLS
Topic: Mayo Clinic...Dr Silber appointment...Great experience!
Replies: 6
Views: 2901

Mayo Clinic...Dr Silber appointment...Great experience!

Well I just returned from Mayo Clinic and had an appointment with Dr Silber, one of the physicians that wrote the Mayo Clinic Algorhythm for RLS sufferers. I traveled from Michigan, but it was well worth the trip! Dr. Silber spent 1 1/2 hrs with me going over all my past history, wrote out a time li...
by runkrun
Wed Sep 16, 2009 9:18 pm
Forum: Prescription Medications
Topic: Has anyone had any success with Lyrica?
Replies: 7
Views: 797

If I were you I would definately give it a try! I was absolutely miserable for several months until I stopped the Neurontin and started Lyrica. Of course, I had to be patient and let my physician gradually increase the dose to get relief. But that is different with everyone. I understand that you do...
by runkrun
Wed Sep 16, 2009 5:45 pm
Forum: General Topics: RLS
Topic: RLS starting to become painful
Replies: 2
Views: 342

I was also augmenting from the DA's Requip/Mirapex. So it was necessary for me to come off both of these medications as soon as possible.Tried one and did'nt work,then the next same story. I was also having deep muscle pain in my legs along with the creepy crawlies. Again, Lyrica took the place of t...
by runkrun
Wed Sep 16, 2009 5:30 pm
Forum: Prescription Medications
Topic: Has anyone had any success with Lyrica?
Replies: 7
Views: 797

jy13131, Yes, I'm currently on Lyrica 150 mg 3 times/day, and it was a life saver. I have been medicated for RLS for the past 11 yrs. and probably have tried at least 14-15 meds. Prior to the Lyrica (started about 6 wks ago) I was taking Neurontin 3000mg/day. I had been on that for 11 yrs. I think i...