Search found 74 matches

by runkrun
Fri Aug 28, 2009 1:09 pm
Forum: Prescription Medications
Topic: Effect of Medications
Replies: 5
Views: 830

Gulliver, I'm sorry I mixed up your meds. You augmented on Mirapex and now on Requip.
by runkrun
Fri Aug 28, 2009 1:00 pm
Forum: Prescription Medications
Topic: Effect of Medications
Replies: 5
Views: 830

I agree with ViewAskew, you could be augmenting on the Mirapex. I also cannot take any of the DA's because of that very reason, I get worse with these drugs. No Requip, Mirapex, or Sinemet for me. I have recently found great relief with Lyrica. My physician substituted that for Neurontin since I had...
by runkrun
Fri Aug 28, 2009 12:37 pm
Forum: Just Joined?
Topic: New guy question about Requip
Replies: 4
Views: 707

My first thought when you mentioned that you "just stood there and stammered", did your physician mention a TIA, or small stroke. I don't know of any medications that would cause a person to be functioning and thinking clearly, but unable to speak. Could this just be a coincidence with you...
by runkrun
Fri Aug 28, 2009 12:16 pm
Forum: Prescription Medications
Topic: Trying to get into John Hopkins
Replies: 20
Views: 2137

Susie, As I sit here and read your physicians response I'm thinking is this guy for real? Unless you have another sleep disorder diagnosis,such as sleep apnea, the CPAP mask will have no effect on RLS. Do you have a copy of Mayo Clinics Algorhythm for RLS to take w/ you to your appt? I'm glad to hea...
by runkrun
Thu Aug 27, 2009 1:58 am
Forum: Prescription Medications
Topic: Trying to get into John Hopkins
Replies: 20
Views: 2137

D4, I'd like to know what medication regimen Dr Silber currently has you on. I suffer from severe RLS and PLMD and am currently on Lyrica,Xanax, and Norco.This combo seems to be working for now. I can't take any of the DA's because I augment on them.I'm very excited to finally see a physician that i...
by runkrun
Wed Aug 26, 2009 12:15 pm
Forum: Prescription Medications
Topic: Trying to get into John Hopkins
Replies: 20
Views: 2137

I live in Michigan and going to Mayo Clinic in Minn. next month. The head of the movement disorder/sleep clinic is Dr. M. Silber. He also helped write Mayo clinics algorhythm for RLS. Anyone w/ RLS should have a copy of this so their primary physician has a guideline for prescription writing. Since ...
by runkrun
Wed Aug 19, 2009 12:53 pm
Forum: Prescription Medications
Topic: Lyrica maybe the answer for me.....
Replies: 30
Views: 5664

I have been on Lyrica now for over a month. This medication replaced Neurontin 600mg(4) at bedtime. I had been on Neurontin for 11 yrs, so it either had just stopped working or my RLS worsened. My neuro recently increased my Lyrica 150 mg 3x/day. This medication has not only helped my RLS, but I con...
by runkrun
Tue Aug 18, 2009 10:59 am
Forum: Just Joined?
Topic: Do your legs sometimes feel heavy in the morning?
Replies: 7
Views: 1032

I can relate to the "heavy legs" feeling in the morning. I also take Xanax at night, but do not believe it is related.I can actually get this feeling any time during the day. I usually take my first dose of medication as soon as I get up.Running, stretching and a hot shower really seem to ...
by runkrun
Tue Aug 04, 2009 10:45 am
Forum: Prescription Medications
Topic: Methadone to Tramadol?
Replies: 12
Views: 940

Tramadol vs Methadone

Maria, I'm doubtful Tramadol will cover you enough after being on Methadone.
by runkrun
Thu Jul 30, 2009 11:36 am
Forum: Prescription Medications
Topic: Neurologist
Replies: 84
Views: 16489

Yes, Neurontin is a great drug for RLS. It helped me for 11 yrs. and max dose @ times of 3600mgs. However, I have recently been switched to Lyrica 150 mg 3 times a day. My insomnia and RLS are under control. I'm very happy to read that another RLS patient is getting RELIEF. Only us sufferers can tru...
by runkrun
Mon Jul 27, 2009 5:12 pm
Forum: Prescription Medications
Topic: Lyrica maybe the answer for me.....
Replies: 30
Views: 5664

I saw the new Neurologist today @ Henry Ford Hospital in Bloomfield Hills,Mi. She was very knowledgable about M.S. but she said she was not a movement disorder specialist for RLS.She did not think I had M.S. but, my MRI(brain)had some increased white plaque areas that I did not have 5 yrs ago. So no...
by runkrun
Sat Jul 25, 2009 11:48 pm
Forum: Prescription Medications
Topic: Lyrica maybe the answer for me.....
Replies: 30
Views: 5664

Lyrica maybe the answer for me.....

I recently commented on my RLS being out of control and my cocktail of meds I must ingest daily just to function.(Norco,Neurontin 600 mg 4 @ night, Xanax 1mg) I'm also seeing a new neuro guy @ Henry Ford for possibe M.S. on Monday. I am currently on sick leave due to all the symptoms, no sleep, and ...
by runkrun
Wed Jul 08, 2009 12:11 am
Forum: Prescription Medications
Topic: Adverse effects.....and possible new diagnosis
Replies: 5
Views: 687

Adverse effects.....and possible new diagnosis

Thanks to everyone for their input regarding my meds. However I was recently in E.R. from what I thought were side effects from my medications.
by runkrun
Thu Jun 25, 2009 11:08 am
Forum: Just Joined?
Topic: Experiencing Augmentation.... Help
Replies: 6
Views: 834

Experiencing Augmentation.... Help

Good morning to everyone! I'm very grateful to have stumbled upon this website...I have found people who "get It". This is my first "venting" blog so it my be lengthy. I have had RLS all my life, however the last 12 yrs I've had to resort to medications.