Search found 992 matches

by Rubyslipper
Wed Nov 23, 2011 6:15 pm
Forum: Prescription Medications
Topic: Savella
Replies: 4
Views: 1291

Thanks! I did take it last night and this morning. Feel okay right now but also realize might take awhile before the side effects make themselves known. I do know that until a couple of hours ago, my fibro pain was still with me.
by Rubyslipper
Tue Nov 22, 2011 11:29 pm
Forum: Prescription Medications
Topic: Savella
Replies: 4
Views: 1291

Just did a search on here and found a little information but nothing too recent.
by Rubyslipper
Tue Nov 22, 2011 11:27 pm
Forum: Prescription Medications
Topic: Savella
Replies: 4
Views: 1291

Savella

I know some people have posted before about having fibromyalgia along with their RLS. I have had it for several years but seldom took anything for the pain. Just this week I broke down and asked the doctor for something besides the Tramadol I have used in the past. It just didn't work. So today I pi...
by Rubyslipper
Tue Nov 22, 2011 11:50 am
Forum: Everything Else...just no RLS!
Topic: How to find??
Replies: 41
Views: 10141

Let's hope now that we can finish it up and make the updates we need! I give full credit to the moderators for all their hard work on this board. You guys are the best!
by Rubyslipper
Mon Nov 07, 2011 7:41 pm
Forum: General Topics: RLS
Topic: Just one more thing
Replies: 6
Views: 1011

What little I have found on this confuses me because I don't have any of the problems that seem to cause it. I've been tested for many of them and don't have the symptoms for the rest. I don't have tenderness too bad, just bad body aches especially in my hands and legs and they are worse when the we...
by Rubyslipper
Mon Nov 07, 2011 7:36 pm
Forum: General Topics: RLS
Topic: Our active membership
Replies: 19
Views: 4542

What's the point of a dicsussion board if you can't discuss! I don't understand not wanting to get info out to people. Maybe they just felt threatened! I even got my hands slapped for mentioning RLS Awareness Week!
by Rubyslipper
Mon Nov 07, 2011 6:40 pm
Forum: General Topics: RLS
Topic: Just one more thing
Replies: 6
Views: 1011

Just one more thing

Test results back from a skin biopsy I had done which shows small fiber neuropathy. Still trying to research that but at least the doctor seems to think the Horizant he just put me on will help. Has anyone else heard of this? It may also explain my "fibro" problems although what I have fou...
by Rubyslipper
Mon Nov 07, 2011 6:36 pm
Forum: General Topics: RLS
Topic: Name change
Replies: 32
Views: 6207

That's why it is so important to know what you are looking for and make sure your info is from a reputable source. So many got horribly upset when they typed in Ekbom and got the information about Syndrome instead of Disease. And it's not only us that suffer with it, it's doctors trying to research ...
by Rubyslipper
Mon Nov 07, 2011 6:31 pm
Forum: General Topics: RLS
Topic: Our active membership
Replies: 19
Views: 4542

I was on a discussion board that slapped my wrist because I gave the website address for the RLS Foundation. NOT allowed to give out any information on other websites there so I don't go there anymore. There were some great people on there so it is a shame.
by Rubyslipper
Mon Nov 07, 2011 6:27 pm
Forum: General Topics: RLS
Topic: DISEASE
Replies: 9
Views: 1508

It is so nice to know that people are beginning to understand! I agree, nice answer!
by Rubyslipper
Mon Nov 07, 2011 6:24 pm
Forum: General Topics: RLS
Topic: Name change
Replies: 32
Views: 6207

There was an Ekbom Syndrome and then we were going to change the name to Ekbom Disease. Since then, we have decided that name was not a good one for various reasons. (Confused with Ekbom Syndrome, the acronym ED is usually associated with Erectile Dysfunction, etc.)
by Rubyslipper
Fri Oct 21, 2011 2:14 pm
Forum: Prescription Medications
Topic: Horizant
Replies: 9
Views: 1896

Thanks for the support! Yes, I've been through this sort of thing before and it isn't a good time. So I will muddle through!
by Rubyslipper
Wed Oct 19, 2011 9:30 pm
Forum: Prescription Medications
Topic: Horizant
Replies: 9
Views: 1896

Knowing that someone else has had relief helps quite a bit. It is info I can take to the new doctor and see what he has to say. Something has to give, that's for sure.
by Rubyslipper
Wed Oct 19, 2011 7:59 pm
Forum: Everything Else...just no RLS!
Topic: Pain Relief generally
Replies: 7
Views: 1840

Polar Bear--my doctor won't prescribe anything for my fibro pain except Tramadol which does NOTHING to help. I can take Excedrin Back & Body and get better relief. So what gives? Chipmunk--another doctor has taken me off Wellbutrin because I get these weird tingles at different times in differen...
by Rubyslipper
Wed Oct 19, 2011 7:49 pm
Forum: General Topics: RLS
Topic: Every little thing helps
Replies: 5
Views: 826

We used that for quite awhile but it didn't seem to catch on. I hadn't thought about the "many legs" part of it.