Restless Legs Syndrome (RLS) Discussion Board

I'm with Becat on this one, big time! Just because it suits your doctor to see you in a month or even next week, if you need help (Which you definately do!) then you have every right to call him and demand that he see you. Keep a diary as much as you can of symptoms and what you take, what does and ...

Thanks for your letter. The support I get from this site is just wonderful! My husband really tries to understand but it's like you say, it's not cancer or even something the doctors can get a handle on. He has a disease called CIDP (for short) which RLS is thought to be a distant relative of. He ha...

I'm not sure if you are talking about leg cramps or just a stiffening. I have both. The leg cramps just started about 2 months ago, about the time my symptoms increased. If my legs aren't twitchy, they cramp. What fun! Lots of times while at rest (not sleeping, of course!) my legs will tighten up or...

Eric, I am so sorry you had a need to find us but as you have already discovered, we are a pretty good group. I have had RLS most of my life and hate to tell you but it is a progressive disease. It is getting much more severe in my life but I am so fortunate not to have much pain. Please hang in the...

Jumpy, thanks for the information. For the past three nights I have slept pretty well. So for now, I will stay on my regimen. But I will definately check with my doctor on the opioid family of meds. I am glad you also told me what your wife prefers and what helped or didn't help you. It always helps...

There are some great sites for ways to help with RLS symptoms other than with medicine. There is another thread on this board that has links to very helpful sites. I have decided that a sleep diary would be a good idea for me. Most of us have found that caffeine, alcohol and sometimes dairy products...

I have been on Mirapex (1.0 mg) for about two years and haven't seen any side effects yet. I am also now on Neurontin which mainly seems to have made me gain weight. It's really hard to tell if it helps. But others are right. Keep looking until you find the right doctor and medicine. This site is a ...

Well, against most people's better judgement, I did try Pergolide. I have an on again, off again heart thing where it goes into overdrive. All the tests have shown no major problems. Maybe it was a coincidence, but my heart started doing jumping jacks after two days on Pergolide so I quit taking it....

If I never get another thing from this website, I have received the love, support and guidance of new friends. THANK YOU ALL!!! Maybe someday we will all be able to meet for a giant group hug Wouldn't that be wonderful!!! Anyway, Jumpy, my doctor is quite flexible but she is also very new to me. She...

I am not getting relief from the meds I'm on now. The doctor doesn't want to increase the Mirapex dose and it doesn't seem like the Neurontin increase is helping either. I had just seen news info about Pergolide that said it seemed to help RLS sufferers sleep better. My doctor said we could try it i...

This a a new website I found where you can flag certain items of info you are interested in. When that item comes up in the news, an e-mail with the link comes to you. I have requested info on RLS and it is pretty neat. Of course, not all info really relates to me personally but it is a great way to...

Has anyone heard about or tried this drug? What I've read about it sounds good but I'm not sure. According to what I read, it is in the family of Mirapex (which I now take) and has previously been used mainly to treat Parkinson's. There may be some bad side effects but they weren't covered much in t...

My husband stays up late and gets up early (he has to rest during the day and doesn't need much sleep at night). When my "twitchcritters" (love that phrase!) kick in, it wakes me up and I HAVE to get up and move. So most nights, we just kiss in passing. But if twin beds makes it easier for both of y...

Misty, can you tell us what meds you are taking and when? There are other ways to handle RLS without meds, just check out some of the other threads listed here. Personally, I haven't found anything that helps except walking the floor and a person can't do that all night. Definately check with your d...

Thanks for taking over the rowing, I think I was just taking us in circles anyway! Maybe someday we can afford a boat motor! In the meantime, thank you for the support. I may see if my hubby wants to go with me next time to the doctors. (I go to his with him every time) That was a smart move on your...