Search found 992 matches

by Rubyslipper
Sun May 23, 2004 2:58 am
Forum: Just Joined?
Topic: Help me!
Replies: 2
Views: 2021

None of us are experts so even after checking out the info here, please find a doctor to help out. Some of us have pain, of many types. You might check out peripheral neuropathy on the web also before going to the doctor. I am lucky enough not to have pain associated with the RLS. Jumpy has a daught...
by Rubyslipper
Sun May 23, 2004 2:36 am
Forum: Just Joined?
Topic: When Did RLS Rear Its Ugly Legs For You?
Replies: 2
Views: 2123

Congrats on the baby! When are you due? I'm sure that you have already cut out caffeine but some of us also have problems with dairy products. Warm baths seem to help some of us. Make sure to take all your info on RLS to your doctor, sleepless nights are not good for mommies now because you sure wil...
by Rubyslipper
Sun May 23, 2004 2:17 am
Forum: General Topics: RLS
Topic: Need to Vent
Replies: 33
Views: 12930

Thanks for listening and understanding Things aren't any better with the legs but I think maybe hubby is starting to understand that there just might be something really wrong here. I mean, no one in their right mind will walk the floor until 1-2:00 am just for sympathy. He still thinks losing weigh...
by Rubyslipper
Sun May 23, 2004 2:07 am
Forum: General Topics: RLS
Topic: Daily roll call journal?
Replies: 7
Views: 3292

Julie, could you explain a little more about what you mean? I am a little groggy a lot of the time seems like so I haven't caught what you would like to do for sure. I don't log on everyday but if this is something others would like to be involved with and we think it might help, then sure, I'm in.
by Rubyslipper
Sun May 23, 2004 2:01 am
Forum: General Topics: RLS
Topic: shaky legs
Replies: 2
Views: 2488

I haven't had a problem with shakey legs but as any of us can tell you, RLS hits everyone differently. I have had weakness come and go in my right arm mostly but I am right handed so maybe I just notice it more there. I will have one leg drag a little at times and it varies from side to side. RLS li...
by Rubyslipper
Sun May 23, 2004 1:51 am
Forum: Prescription Medications
Topic: nuerontin
Replies: 15
Views: 9519

Just in case you want my 2 cents worth I have had two sleep studies and maybe if the doctor had any intelligence at all, I might have gained from them. As it was, I don't have sleep apnea although I do snore a little if I am on my back (I rarely sleep on my back). My oxygen levels drop during the ni...
by Rubyslipper
Fri May 21, 2004 1:46 pm
Forum: Just Joined?
Topic: Self-diagnosed
Replies: 169
Views: 43918

First, Jumpy, let me give you my thoughts on hugs. If I were to meet you in person, I would give you the biggest all-around bear hug ever because you have become not only our greatest researcher, but because you have become a very dear friend. We may never meet but believe me, you and Nadia are my s...
by Rubyslipper
Fri May 21, 2004 1:27 pm
Forum: Just Joined?
Topic: Is this RLS???
Replies: 6
Views: 3793

We're glad you found us but sorry there was a need to. Listen to Jumpy and check out other related sites here on the RLS website. There is lots of info on this site but some of the best is on this discussion board. Jumpy has become our resident information guru. We are so fortunate that he found us....
by Rubyslipper
Wed May 19, 2004 1:34 am
Forum: General Topics: RLS
Topic: Need to Vent
Replies: 33
Views: 12930

Thank you so very much. Sometimes, the only thing that keeps me sane is being able to talk to my new friends here. My husband should understand; he is disabled due to a neurological disease called CIDP. Sometimes I think he gets scared to think I might have to stop work too and then where would we b...
by Rubyslipper
Sun May 16, 2004 6:58 pm
Forum: General Topics: RLS
Topic: Need to Vent
Replies: 33
Views: 12930

Well, Nadia, it's my turn. I am in the need not only of venting but I need and ear from those who understand. I am not sleeping and my legs have decided to do the rumba all the time. I just realized that my husband really has no clue as to what I go through. He is pretty supportive and usually knows...
by Rubyslipper
Sun May 16, 2004 6:46 pm
Forum: Prescription Medications
Topic: nuerontin
Replies: 15
Views: 9519

Sweetheart, I am SO with you!! I have had two decent (not great) nights' sleep in the past two weeks. I have increased my Neurontin to 300 mg in morning and evening. So far, all I have gotten out of it is a bad groggy feeling during the day. I am walking the floors until 1-2:00 a.m. and I have to ge...
by Rubyslipper
Fri May 14, 2004 1:21 am
Forum: General Topics: RLS
Topic: RLS LIFE: Drugs, Side Effects & Everything Else
Replies: 650
Views: 214130

Girlfriend, what are we going to do with you? I just wish I was there to give you a hug and a shoulder. This stuff is a nightmare isn't it? If you have to go to the doctor's everyday, do so until he gets you some help. And if you get the results of your B12, iron, etc. tests back as normal, don't ta...
by Rubyslipper
Fri May 14, 2004 12:56 am
Forum: Just Joined?
Topic: New to Board!
Replies: 8
Views: 4377

Julie, this is a great board with caring people. We are all glad to tell about our successes and failures with meds and doctors. I take Mirapex and Neurontin. I have had RLS for years but recently it has taken a definite turn for the worse. I don't sleep at night and have started having RLS symptoms...
by Rubyslipper
Fri May 14, 2004 12:43 am
Forum: Physical Treatments
Topic: rls
Replies: 4
Views: 3639

A questionaire or survey is a great idea. Anyone know a doctor who might be interested? In the meantime, please go to a doctor and try some of the medicines that have helped others. I personally have not found anything over the counter, exercises, cremes, soaks, etc., that have helped me in the leas...
by Rubyslipper
Sun May 09, 2004 9:50 pm
Forum: Just Joined?
Topic: RLS symptoms
Replies: 6
Views: 3522

Glad you found us but sorry you had a need to. You sound like you have typical RLS symptoms. You should really see a doctor, one who will work with you and take you and your symptoms seriously. Keep looking until you find one who will. Most of us have had RLS problems for a long time, have tried lot...