Search found 59 matches

by fraujoolie
Thu Nov 11, 2010 8:04 pm
Forum: General Topics: RLS
Topic: So upset
Replies: 17
Views: 1714

I would've introduced him to my "restless fist." :lol:

Hang in there!
by fraujoolie
Sun Oct 31, 2010 6:16 am
Forum: Prescription Medications
Topic: Hate the downs of the ups and downs
Replies: 52
Views: 8647

Hi Ann, I'm sorry you're so miserable with the meds! It sounds really frustrating. If it's any consolation, it took me a good two or three weeks to adjust to taking Methadone. I felt like Death-Warmed-Over at first. I was amazed at how horrible I felt in the morning. I can't imagine how horrible a h...
by fraujoolie
Sun Oct 31, 2010 5:39 am
Forum: Prescription Medications
Topic: My Dr. vs Dr. B
Replies: 18
Views: 3475

Hi Kicky, I've had a GP tell me that RLS was phony, and show me the door. I've had a sleep specialist keep on ramping up my Mirapex, similar to your situation, and I had augmentation up the wazoo. That sleep specialist (in Michigan) told me nothing could be done, and that there were no other medicat...
by fraujoolie
Sun Oct 31, 2010 4:53 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnant and Miserable - Back to Methadone??
Replies: 66
Views: 33225

Well, I met with Dr. B on Friday and had a good conversation with him. I love how this doc never makes you feel rushed, when asking questions. Anyways -- here is where I'm at. I'm back on Methadone. 5mg. As he sees it, we have to weigh the risks between a mother on a low-dose, which doesn't put the ...
by fraujoolie
Thu Oct 28, 2010 4:41 am
Forum: General Topics: RLS
Topic: RLS info and Studies
Replies: 22
Views: 8918

Theophylline?! Oh dear, that's in old-skool asthma medicines. It's a horrible stimulant. I was given theophylline as a child, and would stay up for days, edgy and hallucinating. I don't think it was until I was 10 or 12, when I was able to refuse and properly explain why I didn't "like" th...
by fraujoolie
Thu Oct 28, 2010 2:01 am
Forum: Physical Treatments
Topic: stockings
Replies: 51
Views: 11740

I recently got a pair of light compression stockings, and have given them a try for a few nights. It seems to help my symptoms when I'm still awake, but has done nothing to improve my legs when asleep. Doggonit, I was hoping for better results... I have really wide ACE wraps (6"), and they don'...
by fraujoolie
Tue Oct 26, 2010 11:23 pm
Forum: General Topics: RLS
Topic: I want to swear and hurt someone
Replies: 23
Views: 2518

Beth,

Please let me be the self-appointed ambassador to Dr. B. :) I live in Los Angeles, and could help make your visit pleasant, if you want to come down and consult with him.

I wish you the best!
by fraujoolie
Mon Oct 25, 2010 6:27 am
Forum: Physical Treatments
Topic: Sleep position
Replies: 34
Views: 11916

I do the hurdler stretch, too. But sometimes my back hurts too much to sleep on my back, and now that I'm pregnant, you're supposed to lay on your left side starting second trimester. So on my left side, I wrap my right leg over my left, and tuck my left foot under my right knee, pressing my toes in...
by fraujoolie
Mon Oct 25, 2010 4:46 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnant and Miserable - Back to Methadone??
Replies: 66
Views: 33225

Thanks for the article, Zach. I'm going to see if I can access the original studies to the sleep specialist and OB, and see what they have to say. So far, my sleep specialist was most comfortable with the low dose of Methadone. Something to do with it burning more cleanly in the body, slower metabol...
by fraujoolie
Mon Oct 25, 2010 4:34 am
Forum: Just Joined?
Topic: Not New to RLS, but Very New to Group
Replies: 11
Views: 1326

I'm currently pregnant and tapering off a low dose of Methadone. It is the gold standard for pregnant women, used for many years. But it does come with its drawbacks, namely having a baby with NAS (infant withdrawls), which will require a minimum of 5 days observation in the NICU, possibly weeks of ...
by fraujoolie
Sat Oct 23, 2010 10:43 pm
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnant and Miserable - Back to Methadone??
Replies: 66
Views: 33225

I can say there is a light at the end of the tunnel --- APA says Methadone in low doses *is* compatible with breastfeeding. It only comes through in minute doses. Methadone vs. Suboxone -- the docs agree that Methadone is the gold standard for necessity-in-pregnancy. It's been around a very long tim...
by fraujoolie
Sat Oct 23, 2010 6:01 am
Forum: Special Populations: Pediatric, Pregnancy, Secondary, etc.
Topic: Pregnant and Miserable - Back to Methadone??
Replies: 66
Views: 33225

Pregnant and Miserable - Back to Methadone??

Hi everyone, I am a 34 y/o woman, and have had RLS for a long time now. I finally got it diagnosed in 2004, treated with Mirapex. After augmentation, and a switch of doctors (I'm in LA now, and fortunate to have Dr. Buchfuhrer), we've tried a cocktail of different opiods, and settled on a low dose o...
by fraujoolie
Sat Oct 23, 2010 5:50 am
Forum: Just Joined?
Topic: Greetings from the New Gal
Replies: 1
Views: 416

Greetings from the New Gal

Hi there!

34 y/o woman, have had RLS for a long time. A grateful patient of Dr. Buchfuhrer in LA, but now pregnant and miserable.
Will post over in the pregnancy page, if you're interested in my whining.

Julie
by fraujoolie
Sat Oct 23, 2010 5:42 am
Forum: Prescription Medications
Topic: Mirapex and augmentation
Replies: 23
Views: 4005

Mirapex and augmentation

From what I understand, once Mirapex causes augmentation, it's only a matter of time before it causes it again... It can be tricky. In my experience, I went from 0.125 mg of Mirapex 1x day, to 2x a day, to upping to the max dose. This was before I was in L.A., and switched to Dr. Buchfuhrer. He imme...