Restless Legs Syndrome (RLS) Discussion Board

I personally keep a home file of every test result. Saves complications and waiting if seeing a new doctor. And I can't tell you how many times I've discovered by reading over my copy details that really mattered that the doctor hadn't mentioned. Also, usually when we get lots of info from a test co...

What kind of details did your sleep study report say about your limb movements?

Hi. Just wondering, though you were sleepy during the day, I'm surprised you didn't mention any of the hallmark symptoms of RLS/EKD so I'm wondering how they diagnosed you. Daytime sleepiness alone isn't enough. There is a movement disorder called PLMD (Periodic Limb Movement Disorder) that can dist...

I had not seen this thread before so I'm glad it has resurfaced. Looks like I've got some reading to catch up on. Most of my side effects would pretty much mirror what others have reported, but one I've not heard mentioned before, so thinking it's not likely to be in the previous pages, I'll list it...

Welcome Julie. Hopefully you'll find discussions here that will help you as you seek to improve your RLS control. Do communicate closely with your doctors about what's working and what is not.

Doety, the doctor's response is encouraging, especially since even though current in his training, he acknowledges that understanding of this topic is still emerging. That's honest, and doctors who are eager to stay current are a valuable resource to a patient with a complex problem. He sounds reali...

RubySlippers, I can relate to having sleep disordered breathing and RLS. I also have PLMD. What I've found most frustrating is the difficulty discerning which is the culprit when sleep is poor. We can think the med is not working, or the CPAP treatment is not working, but it's hard to know which nee...

Like Julie, I developed symptoms in my arms while on Mirapex, however, the arms issues went away when I weaned off the med. In my video about half way through my arms get involved, but that's the PLMD, not the RLS.

While I can't speak to your specific needs, I have had pretty good results with using a TENS Unit before bedtime. I went off the med that was becoming problematic for me and have gotten better sleep like this than with the meds except for the brief periods when I started a new med and it worked good...

Doety, when taking in a lot of unfamiliar information, it is good to do as you are doing and bounce it off others to help sort through some things. I don't know if I can address a lot of it, but some things stood out to me. Surgery to open the airways is to address obstructive sleep apnea, not centr...

It is hard for those who haven't experienced something to fully comprehend just by description. A friend helped me with that once. I was trying to reason with her about a decision she was making based on my understanding, when she looked me in the eye and told me, "The things we don't share you...

In regards to pain, neither the RLS nor the PLMD itself caused me pain. It was what the PLMD did to me that caused the pain. As you can see in the video, the wild flailing caused my joints to be in sudden strained positions. My knees have been as abused as... well, a soccer player comes to mind. The...

So much is still not clear about RLS and depression, like whether RLS causes bad sleep that results in depression, or if meds for depression cause RLS which in turn affects sleep and compounds the problems. Sure hope science picks up the pace in finding answers. One question in my mind is since the ...

I used to have a bed with a railing across the bottom with just enough room to tuck my toes under it and try to brace them from moving. My legs showed me who's boss!

ViewsAskew - I guess I should have asked how many Methadone users have had a sleep study to be sure it hasn't caused central apnea? I mean, if someone still feels like crap, maybe that's a contributor, and in those cases, increasing the dose thinking the RLS is the issue would perpetuate the problem...