Search found 1530 matches

by rthom
Wed Sep 11, 2013 4:37 am
Forum: Help for Relationships
Topic: I feel horrible for my husband...
Replies: 45
Views: 21477

Re: I feel horrible for my husband...

I have such a great husband but I know this WED cant be understood by someone who has never had it. I have been staying on couch because I don't want to keep him up. He is a fire fighter and gets very little sleep while at work for his 24 hour shift so I want him to get all the sleep he can while a...
by rthom
Wed Sep 11, 2013 4:30 am
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 54547

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

What do you use instead of gabapentin? Well I decided that I, like everyone here, was not likely to find a magic answer, so that being said I got busy deciding for myself what I would rather deal with, (like the lack of sleep without gabapentin or the side effects from it, etc.) so I don't take any...
by rthom
Tue Sep 10, 2013 5:43 pm
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 54547

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

I don't remember how much of the Gabapentin that you are taking. But remember, if you decided to stop it, you have to wean down with this drug if you are taking it more than once a day. I'm sorry you are having these side affects. For me I just gain weight. I have only taken it I think less than tw...
by rthom
Mon Sep 09, 2013 12:21 am
Forum: General Topics: RLS
Topic: Best time for Support Group meeting?
Replies: 38
Views: 5184

Re: Best time for Support Group meeting?

I know people that won't set foot in a church for any reason--this could be a problem too. Around here I've heard they charge for the use of their rooms now, unless you are a member--no matter what you need it for. That's now what I thought helping others was supposed to be about, but it's the new s...
by rthom
Mon Sep 09, 2013 12:16 am
Forum: Prescription Medications
Topic: Changing Drugs
Replies: 34
Views: 3893

Re: Changing Drugs

ViewsAskew wrote: you may need to take opioids for longer. Tolerance does occur, so it's good to stop them periodically - say every month for a week, or every weekend.



Interesting idea :idea: :)
by rthom
Sun Sep 08, 2013 11:54 pm
Forum: Just Joined?
Topic: Nice to find you. I have had RLS for forty five yrs
Replies: 69
Views: 11794

Re: Nice to find you. I have had RLS for forty five yrs

Often I have thought that I should rig the house up with cameras for when things are going bad and I am pacing all night, falling asleep on my feet, and walking into walls. Maybe a YouTube video of that would put a little light on RLS/WED. I have had the same thoughts, and gone so far as to acquire...
by rthom
Fri Sep 06, 2013 6:24 am
Forum: General Topics: RLS
Topic: Close Minded Doctor
Replies: 8
Views: 1133

Re: Close Minded Doctor

:thumbup: :thumbup: :thumbup: :clap: :clap: :clap:
by rthom
Fri Sep 06, 2013 6:21 am
Forum: General Topics: RLS
Topic: What did I do?
Replies: 12
Views: 1783

Re: What did I do?

I ha it explained to me once and they said the receptors (or cilli like things in the L intestines--can't remember the name of them) lay down against the walls when gluten is present and this makes it much harder for the important nutrients, etc. to be absorbed as the surface area is much diminished...
by rthom
Wed Sep 04, 2013 8:46 am
Forum: General Topics: RLS
Topic: Best time for Support Group meeting?
Replies: 38
Views: 5184

Re: Best time for Support Group meeting?

So it seems you are likely to need to decide who your target audience is and go from there. One comment about Ann's idea---I agree with everything except if you ask those who show up they are likely to tell you that the time you are already using is best (based on the fact that they showed up), so i...
by rthom
Wed Sep 04, 2013 8:38 am
Forum: General Topics: RLS
Topic: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru
Replies: 528
Views: 54547

Re: A Statagy for Fixing Me - My Visit to a RLS/Apnea Guru

Has it been since you started the gabapentin? My attitude sucked at one time but I was on gabapentin and other meds--don't know which was the prob as I stopped them all at once.
by rthom
Wed Sep 04, 2013 8:31 am
Forum: Just Joined?
Topic: Just joined...
Replies: 24
Views: 3861

Re: Just joined...

aveerik wrote:As far as my low bp and heart rate my doctor ordered a heart monitor so see what is up with that.


Has this been new since you have been taking the Mirapex (my hear rate went nuts on it )?
by rthom
Wed Sep 04, 2013 8:28 am
Forum: Just Joined?
Topic: Need Support
Replies: 139
Views: 19491

Re: Need Support

Oceanwalker, I only have a minute (am busy canning), anyway, everyone has their own path and abilities to cope--this means it doesn't matter at all who has worse symptoms, we all suffer and for each of us it is affecting our lives in a negative manner or we wouldn't be on here. Please for you and al...
by rthom
Tue Sep 03, 2013 7:48 pm
Forum: General Topics: RLS
Topic: What did I do?
Replies: 12
Views: 1783

Re: What did I do?

That makes sense to me because of what people that say gluten makes it worse goes through. Sounds like the same process with the guts, inner wall stuff.
by rthom
Mon Sep 02, 2013 2:23 am
Forum: Everything Else...just no RLS!
Topic: Having Hip Surgery
Replies: 64
Views: 10115

Re: Having Hip Surgery

:clap: :clap: :clap: :thumbup: