Search found 194 matches

by Joanie60
Mon Apr 21, 2014 12:49 am
Forum: Everything Else...just no RLS/WED!
Topic: Having a bad week
Replies: 26
Views: 4738

Re: Having a bad week

Actually, Ive been doing the oncology run-around!! It has been a mess. My melanoma margins are clear (yay!!) but second oncologist and radiologist disagreed on what type of breast biopsy to do (ultrasound or MRI). So after a lot of miscommunication (which has been tracked, I believe, to a secretary ...
by Joanie60
Tue Apr 08, 2014 12:14 am
Forum: Everything Else...just no RLS/WED!
Topic: Having a bad week
Replies: 26
Views: 4738

Re: Having a bad week

Made it through second melanoma surgery today! I'll find out if margins are clear by Friday or early next week. Breast Consult this Wednesday. Feeling a little better now, my husband and I had a great carefree weekend and I think that put me in a good place mentally for this week :-) Had a terrible ...
by Joanie60
Sat Apr 05, 2014 1:26 pm
Forum: Everything Else...just no RLS/WED!
Topic: Having a bad week
Replies: 26
Views: 4738

Re: Having a bad week

I rely a lot on meditation. Thanks for the link, I will check it out!!

Joanie
by Joanie60
Fri Apr 04, 2014 9:52 pm
Forum: Everything Else...just no RLS/WED!
Topic: Having a bad week
Replies: 26
Views: 4738

Re: Having a bad week

The last path report took one week (to find out they did not get the margins clear). So I expect I will hear April 14 or thereabouts. My oncologist does not call you with results. He schedules a follow up (take out stitches, etc) and gives them to you then. I like that system. By the 14th, I am sure...
by Joanie60
Fri Apr 04, 2014 8:28 pm
Forum: Everything Else...just no RLS/WED!
Topic: Having a bad week
Replies: 26
Views: 4738

Re: Having a bad week

Thank you thank you thank you.

Melanoma surgery Monday. Meeting with breast surgeon next Wednesday. That will take my mind off the melanoma path results I'll be awaiting haha

One thing I'll say for RLS sufferers, we are a hardy and loving bunch!! Thanks so much Polar Bear :-)
by Joanie60
Fri Apr 04, 2014 11:38 am
Forum: Everything Else...just no RLS/WED!
Topic: Having a bad week
Replies: 26
Views: 4738

Re: Having a bad week

That's what I am talking about Ann!! Your post made me giggle. I will keep you posted~thanks for caring :-)
by Joanie60
Fri Apr 04, 2014 5:55 am
Forum: Prescription Medications
Topic: anti-depressant
Replies: 17
Views: 2154

Re: anti-depressant

I am on Lexapro (30mg). When I was on 40mg, my symptoms were much worse, so cutting back to 30mg was sweet spot. My RLS doc wanted me on Wellbutrin instead (apparently does not cause extra RLS symptoms) but because I have a history of anorexia, I cannot take Wellbutrin ever. Seems bizarre to me (som...
by Joanie60
Fri Apr 04, 2014 5:40 am
Forum: Prescription Medications
Topic: Pain meds really work
Replies: 5
Views: 993

Re: Pain meds really work

They (opiates) have improved the quality of my life immensely. I tried everything else first!! Thank heavens I have a doctor who believes in them. And I wouldn't dream of abusing them because if I lost the ability to use them as prescribed, I would be sentencing myself to sleepless-hell.
by Joanie60
Fri Apr 04, 2014 5:28 am
Forum: Everything Else...just no RLS/WED!
Topic: Having a bad week
Replies: 26
Views: 4738

Having a bad week

Hi guys, I always know I am in good company when I cannot sleep!! I wish I could blame my sleeplessness on RLS/WED. And of course, that is what GOT me out of bed. But what is keeping me out of bed is my battle with cancer. I just feel like whining and I know how patient all of you are. At the end of...
by Joanie60
Tue Feb 18, 2014 9:46 pm
Forum: General Topics: RLS/WED
Topic: Achy morning legs
Replies: 13
Views: 2304

Re: Achy morning legs

Thanks Beth, it sure is a relief. And as time has gone on, no bad effects from lowering the Lexapro either :-)
by Joanie60
Fri Feb 14, 2014 1:06 am
Forum: Prescription Medications
Topic: John Hopkins Glutamate Study
Replies: 54
Views: 7023

Re: John Hopkins Glutamate Study

Sue~ I'm weighing in on the iron infusion!! My ferritan (sp?) levels were about 12 when I started this journey. Got them up to about 23 with oral iron supplements. Had the IV iron infusion using an excellent fairly new protocol per Hopkins (can message you Doc name, but again, he is in the Baltimore...
by Joanie60
Thu Feb 13, 2014 8:29 pm
Forum: Prescription Medications
Topic: John Hopkins Glutamate Study
Replies: 54
Views: 7023

Re: John Hopkins Glutamate Study

Congrats! Glad you made it before the storm. I participated in the SIT test and had to take them at their word...just do it until you can't. The techs are so understanding. I, unfortunately, did not have a good experience with Neurontin. I gained one pound a day for the eight days I was on it. Worth...
by Joanie60
Tue Feb 11, 2014 1:13 am
Forum: Prescription Medications
Topic: John Hopkins Glutamate Study
Replies: 54
Views: 7023

Re: John Hopkins Glutamate Study

Ditto from me! I am from the Baltimore area, currently in Charlotte, NC taking care of my mom. Watching the storm for two locations!! What a mess we may have on our hands on the East Coast. Please let us know, Sue, when you are safely in Baltimore. Hugs!
by Joanie60
Wed Feb 05, 2014 4:01 pm
Forum: Prescription Medications
Topic: John Hopkins Glutamate Study
Replies: 54
Views: 7023

Re: John Hopkins Glutamate Study

Sue, I have the worst kind of employer. Myself. hahahahah. My employees would stage a walk out. Between WED and the on-set of hot flashes, I am a red hot mess often enough as it is. Just remember, this too shall pass. And have hope, the JHU crew solved what I thought was unsolvable. And their compas...
by Joanie60
Wed Feb 05, 2014 3:08 pm
Forum: Prescription Medications
Topic: John Hopkins Glutamate Study
Replies: 54
Views: 7023

Re: John Hopkins Glutamate Study

I found Dr Allen through a clinical trial at Hopkins (the nasty nasty SIT test) (nothing like what you are going thru!!!). Best thing that ever happened to me. You are going to be in such good hands!!

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