Search found 194 matches

by Joanie60
Wed Feb 05, 2014 2:46 pm
Forum: Prescription Medications
Topic: John Hopkins Glutamate Study
Replies: 54
Views: 7022

Re: John Hopkins Glutamate Study

Blessings to YOU, Sue!! I wish I was brave enough to do it, but I just can't maintain working, etc, and go off meds. Thank heavens you are brave enough and willing enough to sacrifice for all of us!! Keep us posted, you are in my heart :-)
by Joanie60
Tue Feb 04, 2014 7:35 pm
Forum: General Topics: RLS/WED
Topic: Achy morning legs
Replies: 13
Views: 2304

Re: Achy morning legs

Update!! I have figured out part of the problem. I have been taking an increased amount of Lexapro for depression. I moved from 30mg to 40mg and finally figured out that might be the problem. I lowered to 30 mg again and BINGO!! The morning symptoms have delayed to lunch time for the most part and I...
by Joanie60
Tue Jan 14, 2014 7:22 pm
Forum: General Topics: RLS/WED
Topic: New New Strategy for Fixing Me
Replies: 172
Views: 13893

Re: New New Strategy for Fixing Me

This stuff better be pretty dang strong or it will totally mess up my work. God bless America, the world, and all its chemists! I sure hope this doesn't last (although I would be mad to want it to end). The reality check is I gotta work and pay the bills! In the meantime though I will sit here and ...
by Joanie60
Mon Jan 13, 2014 5:50 am
Forum: Prescription Medications
Topic: John Hopkins Glutamate Study
Replies: 54
Views: 7022

Re: John Hopkins Glutamate Study

Thanks from me as well. I talked to Tiana at Hopkins about this study but I am just not in a position to go off all meds for 13 days. Being self-employed, I am sure I would end up firing myself, I am quite anxious to hear of your experience!!

Joanie
by Joanie60
Wed Jan 08, 2014 3:42 am
Forum: General Topics: RLS/WED
Topic: Achy morning legs
Replies: 13
Views: 2304

Re: Achy morning legs

Thanks for info on Tramadol, that makes me feel better!!
by Joanie60
Wed Jan 08, 2014 12:15 am
Forum: General Topics: RLS/WED
Topic: Retitled: Phase II, let it begin.
Replies: 151
Views: 16621

Re: Retitled: Phase II, let it begin.

About a week ago - probably on New Year's Eve - I located the 8 doctors in my new insurance plan who are covered and who are hematologists. I discounted the ones that were over 55 - sounds mean, but so many of us have had better luck with younger docs who are more willing. I narrowed it to two and ...
by Joanie60
Tue Jan 07, 2014 5:24 pm
Forum: General Topics: RLS/WED
Topic: after foot surgery
Replies: 22
Views: 3423

Re: after foot surgery

Slightly off-topic but this thread reminded me I had bunion surgery on my right foot with twilight sleep. Two weeks later, with my right foot in a boot, I had my left-foot bunion surgery. I woke up to my legs in battle with each other...the funniest sight of RLS ever... the boot and the newly bandag...
by Joanie60
Tue Jan 07, 2014 5:09 pm
Forum: General Topics: RLS/WED
Topic: New New Strategy for Fixing Me
Replies: 172
Views: 13893

Re: New New Strategy for Fixing Me

Hi EeFall~

I have known quite a few people on buprenorphine for opiate withdrawal. I have never heard of any negative side effects from it!! I hope it works for you :-)

Joanie
by Joanie60
Tue Jan 07, 2014 4:23 pm
Forum: General Topics: RLS/WED
Topic: Achy morning legs
Replies: 13
Views: 2304

Re: Achy morning legs

Beth~ The morning achy symptoms are lasting longer now...even into the evening. My "usual" symptoms of the twitch and jumps begin when I rest for the evening (reading, sleeping (lol), etc). I am a little stumped because I don't know how to treat the aches independantly of the WED. Percocet...
by Joanie60
Thu Jan 02, 2014 8:30 pm
Forum: Prescription Medications
Topic: Requip
Replies: 40
Views: 6492

Re: Requip

Shelby1 Sorry we all seem to be reacting strongly to this. In my case, it is because I have been on the Requip train from hell. I started at one tablet (0.25) per day and ended up at 9-12 per day. At the time, conventional wisdom was 4 mg (16 tablets) was ok for RLS. The problem was, I became a zomb...
by Joanie60
Thu Jan 02, 2014 7:44 pm
Forum: General Topics: RLS/WED
Topic: Achy morning legs
Replies: 13
Views: 2304

Re: Achy morning legs

Ann~ I have the jumpy leg thing (sometimes arms too) in the afternoon and nighttime. I define that as an unrelenting need to move and if I can't, my legs will move themselves. If I have not taken my evening dose of meds, I may fall asleep but have the jumps waking me up. I also have the periodic lim...
by Joanie60
Tue Dec 31, 2013 5:38 pm
Forum: General Topics: RLS/WED
Topic: Achy morning legs
Replies: 13
Views: 2304

Achy morning legs

Hi friends! I have RLS/WED, was diagnosed about 3 years ago. Thanks to some great doctors, it is under control with meds (Percocet, 5mg/ two to three tablets per day). Although I had nighttime symptoms for all three years (every night), I have just started having achy legs in the morning. I mean rea...
by Joanie60
Sun Apr 08, 2012 2:31 pm
Forum: Prescription Medications
Topic: Anyone else tried vicodin?
Replies: 19
Views: 3802

Re: Anyone else tried vicodin?

After doing a clinical trial with Dr. Allen (who works with Dr Earley), Dr. Allen recommended Dr. Salas, who passed me along to Dr. Seema Gulyani. Dr. Gulyani is a PhD nurse practitioner in the Johns Hopkins Sleep Center. On a scale of 1-10, Dr. Guylani gets 1000. She takes so much time with me, ret...
by Joanie60
Sun Apr 08, 2012 2:24 pm
Forum: Prescription Medications
Topic: Lexapro-Is this a problem?
Replies: 17
Views: 2151

Lexapro-Is this a problem?

I have been through the wringer with RLS/WED. I am so grateful to my new docs who got me off Requip (what a nightmare). After trying most of the other meds, I am currently on 10mg of Percocet per day, which gives me 4 or 5 decent nights of sleep per week. I have discovered the hard way that I cannot...

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