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by jul2873
Fri Jan 11, 2013 7:27 pm
Forum: Physical Treatments
Topic: Traveling over the holidays
Replies: 19
Views: 4421

Re: Traveling over the holidays

Chipmunk, I'm sorry, but I just saw your question about what the "climbing" technique is. It's when you stand on the balls of your feel and first lower one heel and then the other, without ever letting your heel touch the ground. I need to hold on to a counter or something while I do it. I...
by jul2873
Fri Jan 11, 2013 6:12 pm
Forum: General Topics: RLS/WED
Topic: Hyperalertness - Research Study
Replies: 107
Views: 16575

Re: Hyperalertness - Research Study

Okay, more research. Again, keep in mind that I have no scientific background at all. Article on caffeine and glutamate and adenosine: http://www.sciencentral.com/articles/view.php3?article_id=218392537 "The research team showed that under normal "awake" conditions these arousal cente...
by jul2873
Tue Jan 08, 2013 1:08 am
Forum: General Topics: RLS/WED
Topic: Work, wakefullness, and other pitfalls
Replies: 62
Views: 9069

Re: Work, wakefullness, and other pitfalls

Ann, I think I'd get a letter from my doctor as well, explaining that you have WED and these medications are necessary for you to function. Taking medication for a diagnosed disease is covered under the Americans with Disabilities Act. For example, an employer may not decide a diabetic cannot take i...
by jul2873
Mon Jan 07, 2013 12:37 pm
Forum: General Topics: RLS/WED
Topic: Hyperalertness - Research Study
Replies: 107
Views: 16575

Re: Hyperalertness - Research Study

I wish I understood chemistry well enough to read these studies intelligently. At any rate, from my less-than-stellar understanding, I think I'm seeing that one way to get adenosine levels up is to eat brewers yeast which, of course, is full of B vitamins. So perhaps the amino acid supplements helpe...
by jul2873
Mon Jan 07, 2013 3:06 am
Forum: General Topics: RLS/WED
Topic: Hyperalertness - Research Study
Replies: 107
Views: 16575

Re: Hyperalertness - Research Study

I did have an intake interview for the study. They aren't really ready yet; should be a couple of months. Meanwhile they're sending me paperwork etc. Anyway, I'm wondering. My understanding of the study is that it is to see if our brains are somehow producing too much glutamate. I know there are peo...
by jul2873
Wed Dec 26, 2012 7:42 pm
Forum: General Topics: RLS/WED
Topic: Hyperalertness - Research Study
Replies: 107
Views: 16575

Re: Hyperalertness - Research Study

It looks like I might do the study. I've never taken meds but am probably approaching the ceiling of living without them (i.e. at least one--often two or three episode a night plus difficulty in the evenings, in planes etc.). I'm set up to talk with the study organizers next week. If I end up doing ...
by jul2873
Fri Dec 14, 2012 12:14 am
Forum: Prescription Medications
Topic: Narcotics and rls
Replies: 46
Views: 7713

Re: Narcotics and rls

I have been dealing with RLS for years without taking medication, but it has gotten worse in the last couple of years and I find I really need something every so often (when I fly, long car rides etc.). If you go to Amazon.com and scroll down to the very bottom of the page, you'll see a link to the ...
by jul2873
Wed Dec 12, 2012 12:55 am
Forum: General Topics: RLS/WED
Topic: Falling Asleep at Wheel Solutions
Replies: 11
Views: 1403

Re: Falling Asleep at Wheel Solutions

It does sound like a neat piece of equipment. I'll just add that I had a real problem with getting drowsy while driving. For years two or three times a week I'd have to stop at a Mall or other safe place and take a ten minute nap. Then my doctor told me I was very low in vitamin D. As soon as I got ...
by jul2873
Tue Nov 20, 2012 3:06 pm
Forum: Physical Treatments
Topic: Traveling over the holidays
Replies: 19
Views: 4421

Re: Traveling over the holidays

Again, thanks to everyone. The flight was better than I expected. When I got uncomfortable, I got up in stood in the long restroom line (love those long lines!) and used the technique of "climbing" described by Ajt0. It worked really well for me, and I was fine the last three hours of the ...
by jul2873
Tue Nov 20, 2012 3:02 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: Peace at Last
Replies: 5
Views: 3417

Re: Peace at Last

Ajto, thank you very much for your suggestion about " climbing." I tried it on a cross-country flight yesterday, and it made the last 3 hours of the flight comfortable. Then I tried it last night during my first wake-up and, magic!, I could go right back to bed and I slept the rest of the ...
by jul2873
Mon Nov 19, 2012 3:11 pm
Forum: Physical Treatments
Topic: Traveling over the holidays
Replies: 19
Views: 4421

Re: Traveling over the holidays

Thanks so much to everyone for the replies, esp. the info. on the valium. It was the neurologist who specializes in RLS who gave it to me, and I was wondering about it. Actually, I've wondered about that doctor as he was ready to put me on the Neupro at the first visit, before any tests at all. I ha...
by jul2873
Sun Nov 18, 2012 8:16 pm
Forum: Physical Treatments
Topic: Traveling over the holidays
Replies: 19
Views: 4421

Traveling over the holidays

Hi Everyone, I'm flying to the West Coast tomorrow--a six hour, later afternoon/evening flight. I know, I know, terrible time, but we're meeting our daughter in L.A. who is coming in from Honolulu, so it was the only way we could work it. I'm trying to be ready, and it's my hope that perhaps if we a...
by jul2873
Sun Nov 18, 2012 1:16 am
Forum: Just Joined?
Topic: Should I go on medication?
Replies: 7
Views: 939

Re: Should I go on medication?

A really good point, about quality of life decreasing. I will definitely keep it in mind. Thanks so much.
by jul2873
Fri Nov 16, 2012 2:13 pm
Forum: Physical Treatments
Topic: Audio Books as sleep aids
Replies: 5
Views: 1680

Audio Books as sleep aids

I've been using audio books to fall asleep with for about ten years. I download them to my iPod, have soft ear buds that I'll put in just one ear (the side I'm not lying on), turn them on low, and, usually, just drift off. I find that, for me, books that are gently humorous, and have characters I li...
by jul2873
Fri Nov 16, 2012 3:45 am
Forum: Just Joined?
Topic: Should I go on medication?
Replies: 7
Views: 939

Re: Should I go on medication?

Thanks. That is pretty much what I've been thinking but it is very nice to hear someone who has been there agree with me. I think I'll wait a bit.

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