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by EeFall
Tue Mar 27, 2018 4:16 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

I haven't used St John's Wort but have read about it from time to time and am aware that it can cause various interactions with other medications. I dare say you have found these interactions as you have investigated it's use. Please be careful. I will be careful. It may not even do anything but th...
by EeFall
Sun Mar 25, 2018 6:54 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

I investigated the interactions more on web and it says it may lesson strength of Suboxone. I’m going to get some though as I am taking only 75% of my prescription now, so I could take the other 25% if it weakens it. If it takes more than that then I will stop taking St John’s Wort (by the way it ha...
by EeFall
Sun Mar 25, 2018 3:40 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

How about St Johns Wort for depression? I searched on St Johns Wort on here and it does come up a few times but then few people take Suboxone like I do for RLS. Difficult to find anything on web about interactions. I am going to take it unless anyone has some negative feedback on using it. Thanks in...
by EeFall
Sat Mar 24, 2018 7:18 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

Not possible to see doc sooner unfortunately.

Interesting thought about which reality is real.

Exercise does help me and have not done much lately, maybe I will work on it lol.

Seems many of us RLS people have depression too, not surprising, take care.
by EeFall
Thu Mar 22, 2018 7:54 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

Hey thanks everyone. I am going to a new general practitioner doctor in about a month. Our insurance has changed and so all are doctors are changing. Although I am going to my old sleep doctor, found out yesterday it will be $250 to see him once a year to continue getting Suboxone, not bad. Actually...
by EeFall
Thu Mar 22, 2018 4:49 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

Several months have gone by since coming here. I have had a lot on my mind. Extremely sad. Some ways I am really healthy but other ways I feel defeated. Nothing will really get better and I just have to try to live with it. I try to hide out by reading and or listening to audio books. Movies too but...
by EeFall
Sat Jan 06, 2018 8:56 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

We have an Amazon Echo and alarms are set for my meds but even then I shut off alarm sometimes and get distracted. Later I find out the hard way I haven’t taken them lol. I seem to be doing well. I have lost 45 pounds and in 34 waist pants and medium shirts which has not happened in this century :D ...
by EeFall
Sun Dec 17, 2017 7:04 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

I have had vertigo on and off for about 15 years. The first time was the worst - woke up feeling a bit off, rolled over and then fell out of bed from the extreme dizziness. Vomited in the elevator - in a high rise and was trying to get to the hospital - and in the cab (the whole ride). Good heavens...
by EeFall
Mon Dec 11, 2017 6:48 pm
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

Could it be inner ear ? Don’t know but I’m okay today. Weirdest physical thing to ever happen to me, thought I must be dying when it happened. Hopefully it will never happen again. Online it mentions crystals moving around within inner ear but have no idea, could have many causes. It was just so fa...
by EeFall
Mon Dec 11, 2017 12:59 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

A new horror happened last night. Laying in bed in a hotel room I turned over and had vertigo like I didn't think would even be possible. It was like I was in a plane going down out of control. I actually started screaming and my wife turned on light. Finally I turned over slowly and while it didn't...
by EeFall
Mon Dec 11, 2017 12:45 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

Polar Bear wrote:Thank you Ann.

Yes, sounds like a very caring brother. Amazing really considering all the threads on here where no one ever seems to listen about RLS. He should get an award or something.
by EeFall
Mon Dec 11, 2017 12:34 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 33
Views: 5740

Re: Is it Only Me ?

EeFall, so beautiful where you are. We made brief inroads into Washington State and along the Columbia Gorge when going to the Maryhill Museum of Art. In an afternoon travelling through lush greenery and then having our picnic in near desert conditions in Washington (and noting the watch out for sn...
by EeFall
Wed Dec 06, 2017 4:26 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 33
Views: 5740

Re: Is it Only Me ?

Eefall, I have visited the Pacific Northwest twice, specifically Portland Oregon. It is so beautiful. Especially the Columbia Gorge and Canon Beach. It is beautiful. We can see mount Rainier from here and live a few miles from Puget Sound water, it would be a lovely place to visit but we are stuck ...
by EeFall
Sat Dec 02, 2017 3:02 am
Forum: General Topics: RLS/WED
Topic: What Severe RLS is Like
Replies: 331
Views: 30177

Re: What Severe RLS is Like

How amazing. I don't think you've mentioned your artistic bent on here before. So many things we lose when the disease is raging. Probably didn't mention art because I was working and couldn't spend much time pursuing it. Now that I am retired I will be able to spend time at it. At one point when I...
by EeFall
Sat Dec 02, 2017 2:29 am
Forum: Everything Else...just no RLS/WED!
Topic: Is it Only Me ?
Replies: 33
Views: 5740

Re: Is it Only Me ?

I love the Pacific Northwest...but all that rain would be too much for me. Ann - I'm in N. Ireland and yes we often have rain, day after day. I guess that why we have The Forty Shades of Green :D I live in the Pacific Northwest USA and was raised in Southern California until I was 9 years old, also...

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