Search found 605 matches

by QyX
Thu Dec 26, 2019 8:50 pm
Forum: Non-prescription Medicines, Supplements, Diet
Topic: New Kratom User - when to take
Replies: 49
Views: 1996

Re: New Kratom User - when to take

I've taken kratom for almost seven years, for RLS. It's really all I've taken. And it has worked very well until about a year ago when I started developing issues with tolerance. When I first started taking it, 1/2 tsp. was plenty, and it stayed enough for a couple of years. Now I'm up to 2 tsp. fo...
by QyX
Thu Dec 26, 2019 8:06 pm
Forum: General Topics: RLS/WED
Topic: Riding the Big One (RLS 24/7, Hanging Ten)
Replies: 742
Views: 52544

Re: Riding the Big One (RLS 24/7, Hanging Ten)

Oh wow, Buprenorphine is one of the least problematic opioids on the market. Compared to all the other opioids, it is difficult to abuse, has less potential for abuse and for a healthy adult it is almost impossible to fatally overdose on Buprenorphine. It is one of the safest and tolerable opioids o...
by QyX
Thu Dec 26, 2019 7:54 pm
Forum: Augmentation
Topic: Augmentation tied to stroke ?
Replies: 21
Views: 384

Re: Augmentation tied to stroke ?

Now to convince my neurologist to try tramadol. Even though I live near a large city it is difficult to find another neurologist who will take Medicare. I do like who I have I will just have to present my findings to him . I don’t like the idea of opiads either but if they work and I can take less....
by QyX
Sat Dec 21, 2019 7:40 am
Forum: Augmentation
Topic: Using Neupro 3 months AFTER mirapex augmentation
Replies: 20
Views: 963

Re: Using Neupro 3 months AFTER mirapex augmentation

How did your appointment go?
by QyX
Fri Dec 20, 2019 9:17 pm
Forum: Prescription Medications
Topic: Ropinirole Dose
Replies: 6
Views: 93

Re: Ropinirole Dose

Long ago, some of the experts suggested that dopamine agonists - ropinerole in one of them - be used to "test" to see if people indeed did have RLS. That it does work for virtually everyone and if it doesn't work, then the problem with the limbs is not RLS. They still do ... however - at ...
by QyX
Fri Dec 20, 2019 12:18 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 115
Views: 3823

Re: Cannabis

There is a new (small) study out. Title: More evidence of cannabis efficacy in restless legs syndrome Abstract Restless legs syndrome (RLS) is one of the most disabling and sometimes painful sensorimotor ailment of the nervous system that has only in recent years become more widely accepted as a cli...
by QyX
Fri Dec 20, 2019 11:58 am
Forum: Prescription Medications
Topic: Ropinirole Dose
Replies: 6
Views: 93

Re: Ropinirole Dose

Why do you take a medication for 6 months without it being have any positive effect on you? What did your doctor tell you to do? Sure, maybe a higher dose might work, maybe it doesn't. There is no way to predict what is going to happen. But here are a number of possible outcomes: a) nothing happens,...
by QyX
Wed Dec 18, 2019 8:08 pm
Forum: Everything Else...just no RLS/WED!
Topic: My Doctor says the info from RLS is old - ferritin level not so important
Replies: 6
Views: 308

Re: My Doctor says the info from RLS is old - ferritin level not so important

This is an absolute disaster that many of our physicians don't know about iron treatment or even think it is dangerous. It is way easier to get a prescription for opioids and medical Marijuana than it is to get i.V. iron treatment. The reason for this, I am starting to think more and more is that th...
by QyX
Wed Dec 18, 2019 7:58 am
Forum: Prescription Medications
Topic: ZOLOFT started my RLS and Cymbalta helped some
Replies: 17
Views: 216

Re: ZOLOFT started my RLS and Cymbalta helped some

If Gabapentin works for you, that would be great.
by QyX
Tue Dec 17, 2019 7:57 pm
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 142

Re: How to tolerate ADVERSE effects of tramadol

Also look into Tapentadol, it is similar to Tramadol but still different enough that it might fix your RLS but not cause the problems you are currently having with Tramadol. Tapentadol is a moderate potent opioid, right in the middle between Tramadol and Morphine. You should look into this. Maybe it...
by QyX
Tue Dec 17, 2019 8:58 am
Forum: Prescription Medications
Topic: Does Requip work for RLS?
Replies: 4
Views: 71

Re: Does Requip work for RLS?

While my response to pramipexol was already horrible, the way I reacted to ropinirole was even worse. I augmented on this drug within a day. Ropinirole can work, maybe it does, maybe it does not. In case it should work, it is very important to keep the dose as low as possible and and only ever incre...
by QyX
Tue Dec 17, 2019 8:45 am
Forum: Prescription Medications
Topic: ZOLOFT started my RLS and Cymbalta helped some
Replies: 17
Views: 216

Re: ZOLOFT started my RLS and Cymbalta helped some

When I took Pramipexol (what you call Mirapex) for the first time, I had all kinds of weird sensations in my legs. Within a few minutes, I developed a hyperacusis (=extreme sensitivity to sound) and got all mad and crazy simply because some people were talking in normal voice in a room next to mine....
by QyX
Tue Dec 17, 2019 8:32 am
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 142

Re: How to tolerate ADVERSE effects of tramadol

Good luck to you! You really need to see a specialist because in your case a number of different complicated symptoms intersect. Whatever is going on with your breathing needs to be carefully investigated and treated. It is very uncommon and even a bit bizarre that you react so bad to even really re...
by QyX
Sat Dec 14, 2019 9:41 pm
Forum: Prescription Medications
Topic: Horizant- Delayed time to efficacy?
Replies: 5
Views: 131

Re: Horizant- Delayed time to efficacy?

Ehm, what you are going to try will most likely never work. Here is why: When you really have taken Ambien (Zolpidem, right?) for years, then you can't just replace it with Horizon. If Horizon is really able to help you with your insomnia can only be properly determined if you stop the Ambien proper...
by QyX
Fri Dec 13, 2019 2:47 am
Forum: Prescription Medications
Topic: Methadone sudden failure efficacy
Replies: 4
Views: 210

Re: Methadone sudden failure efficacy

I had tolerance in about 6 months. Now, I know most of us aren't supposed to get it....but there are always outliers - I seem to be one of them! . I think it is not correct that RLS patients are not supposed to develop any tolerance at all. If we would not develop any tolerance effects at all, that...

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