Restless Legs Syndrome (RLS) Discussion Board

Hello Ann,

your response is really good. Aspirin is such a dangerous such is Paracetamol and Ibuprofen, all available without prescription but still responsible many thousand deaths each year.

Thank you so helpful! What are your thoughts on going to a doctor at a sleep disorder center? There is one close by in the next town over. Have you heard of people getting good treatment there for RLS? Sounds like your best option in that point. If they have neurologist at the sleeping center, they...

What you are experiencing is sadly not uncommon, especially not with opiods who target the kappa receptor. Oxycodone also targets the kappa receptor more than most other opioids and I remember this drug to be quite alerting and stimulating. I don't know Pentazocine as well as other opioids but the p...

Pregnancy in itself can cause and dramatically worsen RLS symptoms. I think you really really need to see someone who knows what he is doing. Can maybe your family support you in finding the right doctor? I really wish you would have mentioned this in the first post because that fact carries some we...

With all that has happened, I don't even know where to start. As you probably all can imagine, I am still dealing emotionally with the Non-24 "situation". Of course I don't know my future but when I see, how other Non-24 patients are doing, it just scares me. Only a small minority is able to life in...

I think you will have a hard time finding such a doctor. Never heard of any patient here in the forum who had a RLS specialist who was doing tele appointments. I hope I am wrong though. Something that could fix your issues until you find a proper doctor is Kratom. You can order it online and it work...

So as others already mentioned, it is most likely not a withdrawal effect. What you describe does regularly happen when sometimes takes short-acting sleeping pills for a long period of time. However, as you describe it, there is certainly some kind of connection and it would interesting to explore t...

I just said that it is unlikely, not that it doesn't work at all.

Based on everything that we know, Melatonin is a well known RLS trigger, especially in higher doses.

That of course does not mean that it may work for some RLS patients.

To complete this: now I know why Melatonin (sometimes) works for me. It is because I do have a 2nd chronic sleep disorder called Non-24-Hour Sleep/Wake Disorder or short Non-24 or simply N24. Melatonin and melatonin receptor agonists are one of the most important treatment options for chronic circad...

I've been told by my doctor that there is no risk in lung damage when a proper medical grade vaporiser is used. The way the device works is that it heats up the flowers between 185°C and 215°C and then goes through a small cooling tower, so that the resulting "smoke" is mild and easy to inhalte. Som...

I do have light therapy glasses now. It is a device called "Luminette". Additionally, I think I will get regular glasses that will filter blue lights so that I can control my exposure to blue light as much as possible. Not every non24 case can be treated successfully. It is a minority where treatmen...

So the exact diagnosis would be: "Non-24-Hour Sleep/Wake Disorder or Non-24 or just N24. It is rare, very rare: only 0,03% of the population are affected by this and the overwhelming majority of these people are blind. Here is some more information: https://www.circadiansleepdisorders.org/docs/N24-Q...

Okay, so in this context, I am pretty optimistic that you will be able to solve those problems and take less Hydromorphone once you have started using some Cannabis. In my experience it is quite remarkable in what ways Cannabis can boost the analgesic properties of opioids.

Okay, I have news. I figured it out and sadly, it is bad. But there also is hope. I am also pretty sure that the information I uncovered will also help a lot of other RLS patients, especially those with ADHD / ADD as a comorbidity. Incorporating minor updates (ICSD-3, 2014),[33] the diagnostic crite...

Do these symptoms you are currently experiencing respond to the Hydromorphone? You know, Hydromorphone was the first opioid I took long-term for more than 6 months. Initially I started with Oxycodone and then switched Hydro because Oxy was so stimulating for me and causing insomnia. I found Hydromor...