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by QyX
Sat Dec 21, 2019 7:40 am
Forum: Augmentation
Topic: Using Neupro 3 months AFTER mirapex augmentation
Replies: 20
Views: 1002

Re: Using Neupro 3 months AFTER mirapex augmentation

How did your appointment go?
by QyX
Fri Dec 20, 2019 9:17 pm
Forum: Prescription Medications
Topic: Ropinirole Dose
Replies: 6
Views: 106

Re: Ropinirole Dose

Long ago, some of the experts suggested that dopamine agonists - ropinerole in one of them - be used to "test" to see if people indeed did have RLS. That it does work for virtually everyone and if it doesn't work, then the problem with the limbs is not RLS. They still do ... however - at ...
by QyX
Fri Dec 20, 2019 12:18 pm
Forum: Prescription Medications
Topic: Cannabis
Replies: 115
Views: 3973

Re: Cannabis

There is a new (small) study out. Title: More evidence of cannabis efficacy in restless legs syndrome Abstract Restless legs syndrome (RLS) is one of the most disabling and sometimes painful sensorimotor ailment of the nervous system that has only in recent years become more widely accepted as a cli...
by QyX
Fri Dec 20, 2019 11:58 am
Forum: Prescription Medications
Topic: Ropinirole Dose
Replies: 6
Views: 106

Re: Ropinirole Dose

Why do you take a medication for 6 months without it being have any positive effect on you? What did your doctor tell you to do? Sure, maybe a higher dose might work, maybe it doesn't. There is no way to predict what is going to happen. But here are a number of possible outcomes: a) nothing happens,...
by QyX
Wed Dec 18, 2019 8:08 pm
Forum: Everything Else...just no RLS/WED!
Topic: My Doctor says the info from RLS is old - ferritin level not so important
Replies: 6
Views: 326

Re: My Doctor says the info from RLS is old - ferritin level not so important

This is an absolute disaster that many of our physicians don't know about iron treatment or even think it is dangerous. It is way easier to get a prescription for opioids and medical Marijuana than it is to get i.V. iron treatment. The reason for this, I am starting to think more and more is that th...
by QyX
Wed Dec 18, 2019 7:58 am
Forum: Prescription Medications
Topic: ZOLOFT started my RLS and Cymbalta helped some
Replies: 17
Views: 237

Re: ZOLOFT started my RLS and Cymbalta helped some

If Gabapentin works for you, that would be great.
by QyX
Tue Dec 17, 2019 7:57 pm
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 165

Re: How to tolerate ADVERSE effects of tramadol

Also look into Tapentadol, it is similar to Tramadol but still different enough that it might fix your RLS but not cause the problems you are currently having with Tramadol. Tapentadol is a moderate potent opioid, right in the middle between Tramadol and Morphine. You should look into this. Maybe it...
by QyX
Tue Dec 17, 2019 8:58 am
Forum: Prescription Medications
Topic: Does Requip work for RLS?
Replies: 4
Views: 86

Re: Does Requip work for RLS?

While my response to pramipexol was already horrible, the way I reacted to ropinirole was even worse. I augmented on this drug within a day. Ropinirole can work, maybe it does, maybe it does not. In case it should work, it is very important to keep the dose as low as possible and and only ever incre...
by QyX
Tue Dec 17, 2019 8:45 am
Forum: Prescription Medications
Topic: ZOLOFT started my RLS and Cymbalta helped some
Replies: 17
Views: 237

Re: ZOLOFT started my RLS and Cymbalta helped some

When I took Pramipexol (what you call Mirapex) for the first time, I had all kinds of weird sensations in my legs. Within a few minutes, I developed a hyperacusis (=extreme sensitivity to sound) and got all mad and crazy simply because some people were talking in normal voice in a room next to mine....
by QyX
Tue Dec 17, 2019 8:32 am
Forum: Prescription Medications
Topic: How to tolerate ADVERSE effects of tramadol
Replies: 7
Views: 165

Re: How to tolerate ADVERSE effects of tramadol

Good luck to you! You really need to see a specialist because in your case a number of different complicated symptoms intersect. Whatever is going on with your breathing needs to be carefully investigated and treated. It is very uncommon and even a bit bizarre that you react so bad to even really re...
by QyX
Sat Dec 14, 2019 9:41 pm
Forum: Prescription Medications
Topic: Horizant- Delayed time to efficacy?
Replies: 5
Views: 160

Re: Horizant- Delayed time to efficacy?

Ehm, what you are going to try will most likely never work. Here is why: When you really have taken Ambien (Zolpidem, right?) for years, then you can't just replace it with Horizon. If Horizon is really able to help you with your insomnia can only be properly determined if you stop the Ambien proper...
by QyX
Fri Dec 13, 2019 2:47 am
Forum: Prescription Medications
Topic: Methadone sudden failure efficacy
Replies: 4
Views: 230

Re: Methadone sudden failure efficacy

I had tolerance in about 6 months. Now, I know most of us aren't supposed to get it....but there are always outliers - I seem to be one of them! . I think it is not correct that RLS patients are not supposed to develop any tolerance at all. If we would not develop any tolerance effects at all, that...
by QyX
Wed Dec 11, 2019 6:18 pm
Forum: Prescription Medications
Topic: Methadone sudden failure efficacy
Replies: 4
Views: 230

Re: Methadone sudden failure efficacy

It is probably tolerance ... 5 mg of Methadone is a relatively low dose for RLS, especially when given over 5 months without any changes in dose.
by QyX
Tue Dec 10, 2019 1:09 am
Forum: Prescription Medications
Topic: ZOLOFT started my RLS and Cymbalta helped some
Replies: 17
Views: 237

Re: ZOLOFT started my RLS and Cymbalta helped some

Well, if you can get a prescription for Codeine or even better: Dihydrocodeine ... that certainly would be the best option for the moment. Opioids are great for RLS. That you were able to get 5-6 hours of sleep with Codeine also makes me think that your insomnia is more related to RLS than to Cymbal...
by QyX
Tue Dec 10, 2019 1:04 am
Forum: Prescription Medications
Topic: methadone-gabapentin conundrum
Replies: 2
Views: 74

Re: methadone-gabapentin conundrum

I am sorry, what do you mean with "hs"? I tried to google it but couldn't come up with anything useful. The issues you are having right now sound similar to the ones I was having for multiple years, just not being able to stay at sleep and being unable to sleep at certain hours altogether....

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