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by QyX
Thu Dec 05, 2019 6:04 pm
Forum: Prescription Medications
Topic: Medication Efficacy
Replies: 4
Views: 112

Re: Medication Efficacy

Opioids are effective for me within 30 to 60 minutes after taking them. However the dose needs to be high enough. I started with 10 mg Oxycodone (5 mg, twice a day) and while I noticed some small benefit, it wasn't enough. In case of Oxycodone, it might make sense to try doses up to 20 - 30 mg per d...
by QyX
Thu Dec 05, 2019 5:49 pm
Forum: Prescription Medications
Topic: Propofol
Replies: 5
Views: 253

Re: Propofol

I apologize, folks -- I see that I didn't come back to the site to check for your responses. I'll check whether another drug besides Porpofol was used in the colonoscopy. Thanks for your replies. You have to understand that Propofol activates the same pathways as Benzodiazepines and Barbiturates, d...
by QyX
Tue Dec 03, 2019 4:03 pm
Forum: Physical Treatments
Topic: Iron Infusion Worked for me
Replies: 17
Views: 684

Re: Iron Infusion Worked for me

I want one, too ... I will also try the crying, fainting and begging strategy. Otherwise doctors just don't seem to get it. Iron infusion is a somewhat simple and straightforward treatment but it seems harder to access than high potent opioids. Why is the potentially most effective treatment for RLS...
by QyX
Mon Dec 02, 2019 9:40 pm
Forum: Prescription Medications
Topic: Naltrexone for RLS?
Replies: 10
Views: 400

Re: Naltrexone for RLS?

It would be very interesting to know if Naltrexone could help in more cases of augmentation.

This is quite an interesting experience you are making.
by QyX
Mon Dec 02, 2019 4:26 am
Forum: General Topics: RLS/WED
Topic: Circadian rhythm disorders ... Who's got one ???
Replies: 13
Views: 309

Re: Circadian rhythm disorders ... Who's got one ???

I flew a few times to the U.S. and even to Hawaii and I noticed that when flying west and the days got longer, my RLS was always dramatically improved for the first 6 to 8 days and only then I got back to baseline. I always loved how easy it was to sleep in the first few days. It feels like that sta...
by QyX
Sun Dec 01, 2019 4:06 pm
Forum: Prescription Medications
Topic: Tramadol vs oxycodone
Replies: 6
Views: 183

Re: Tramadol vs oxycodone

Seems like your doctor is not aware that opioids can have stimulating properties in RLS patients. And he doesn't fully realize how severe your symptoms are. Normally 5 mg of Oxycodone is a good starting dose but when this is not enough, the dose needs to be increased and if Oxycodone is stimulating,...
by QyX
Sun Dec 01, 2019 3:17 am
Forum: Everything Else...just no RLS/WED!
Topic: Got sleep? What's your jam?
Replies: 24
Views: 6261

Re: Got sleep? What's your jam?

I am running a racing simulator with pretty high end equipment ... I would love to race more but when I haven't slept well, it is difficult to perform at the level I am currently competing. It is an exciting hobby. 2 hours of racing and 1 hour of practice makes me feel like I went to the gym for 2 h...
by QyX
Sun Dec 01, 2019 12:34 am
Forum: Prescription Medications
Topic: Tramadol vs oxycodone
Replies: 6
Views: 183

Re: Tramadol vs oxycodone

James, can you be a bit more concerte? You are not getting enough sleep because the Oxycodone is keeping you awake or because the Oxycodone is either (1) not effective enough? or (2) it works but it doesn't work long enough and the symptoms come back? Oxycodone does not need to build up in your syst...
by QyX
Sat Nov 30, 2019 10:25 pm
Forum: General Topics: RLS/WED
Topic: Opioid prescribing "culture"
Replies: 4
Views: 168

Opioid prescribing "culture"

So, I just read this opinion article in the Washington Post by some doctor about opioids and while he makes a few really good points, I think it is exactly the opinions of people like him, that make it so difficult for RLS patients to access opioids. Here is the link: https://www.washingtonpost.com/...
by QyX
Thu Nov 28, 2019 6:34 pm
Forum: Prescription Medications
Topic: Results of Botox injections
Replies: 7
Views: 518

Re: Results of Botox injections

Oh wow, I know this cold feet phenomen really well. This specific symptom mostly disappeared once I started taking opioids but it still can happen occasionally and was something I was experiencing more during the time I was still taking DAs. Worth mentioning is that my feet also can feel super hot i...
by QyX
Wed Nov 27, 2019 7:15 pm
Forum: Just Joined?
Topic: Not Sure if it is RLS
Replies: 10
Views: 137

Re: Not Sure if it is RLS

Oops! I should have mentioned the pain or cramping is often momentary, yet persistent, and not necessarily confined to one area. Rather, it is totally random mostly withing the calf. Thanks again. Those are partly my main RLS symptoms, too. I have a few more, especially in the foot where I tend to ...
by QyX
Wed Nov 27, 2019 6:34 pm
Forum: Prescription Medications
Topic: Attempting to get off Ropinirole - again
Replies: 215
Views: 7134

Re: Attempting to get off Ropinirole - again

Wow, this sounds like your doctor is horribly ill informed. You can try educating your doctor but from what you are saying, it doesn't seem like she is willing to listen. Is there a way to see a doctor who better understands how RLS works? I am currently trying to get an iron infusion, too. If done ...
by QyX
Wed Nov 27, 2019 6:15 pm
Forum: Just Joined?
Topic: 1st post after 24 years of RLS
Replies: 85
Views: 2484

Re: 1st post after 24 years of RLS

Well, one of those doctors needs to grow a pair and prescribe a potent opioid like Oxycodone. For Oxycodone, there is a big study with RLS patients and in some countries it is officially approved for RLS. So there is a lot of literature for RLS and opioids and especially for Oxycodone and RLS. I wou...
by QyX
Wed Nov 27, 2019 11:37 am
Forum: General Topics: RLS/WED
Topic: Circadian rhythm disorders ... Who's got one ???
Replies: 13
Views: 309

Re: Circadian rhythm disorders ... Who's got one ???

Melatonin worked for me for a while but at some point it started triggering RLS symptoms and I had to stop.

Now my treatment option is Cannabis. Most of the time I am able to fall asleep without feeling super tired.

Cannabis is not a perfect solution but it still by far the best solution available.
by QyX
Tue Nov 26, 2019 6:47 pm
Forum: Just Joined?
Topic: Not Sure if it is RLS
Replies: 10
Views: 137

Re: Not Sure if it is RLS

Yep, it sounds like you reached a point where treatment is necessary.

I know that "electrical popping" very well.

At least RLS can be treated and with the help of this forum, you might be able to avoid some of the common problems related to RLS treatment.

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