Restless Legs Syndrome (RLS) Discussion Board

Opioids are effective for me within 30 to 60 minutes after taking them. However the dose needs to be high enough. I started with 10 mg Oxycodone (5 mg, twice a day) and while I noticed some small benefit, it wasn't enough. In case of Oxycodone, it might make sense to try doses up to 20 - 30 mg per d...

I apologize, folks -- I see that I didn't come back to the site to check for your responses. I'll check whether another drug besides Porpofol was used in the colonoscopy. Thanks for your replies. You have to understand that Propofol activates the same pathways as Benzodiazepines and Barbiturates, d...

I want one, too ... I will also try the crying, fainting and begging strategy. Otherwise doctors just don't seem to get it. Iron infusion is a somewhat simple and straightforward treatment but it seems harder to access than high potent opioids. Why is the potentially most effective treatment for RLS...

It would be very interesting to know if Naltrexone could help in more cases of augmentation.

This is quite an interesting experience you are making.

I flew a few times to the U.S. and even to Hawaii and I noticed that when flying west and the days got longer, my RLS was always dramatically improved for the first 6 to 8 days and only then I got back to baseline. I always loved how easy it was to sleep in the first few days. It feels like that sta...

Seems like your doctor is not aware that opioids can have stimulating properties in RLS patients. And he doesn't fully realize how severe your symptoms are. Normally 5 mg of Oxycodone is a good starting dose but when this is not enough, the dose needs to be increased and if Oxycodone is stimulating,...

I am running a racing simulator with pretty high end equipment ... I would love to race more but when I haven't slept well, it is difficult to perform at the level I am currently competing. It is an exciting hobby. 2 hours of racing and 1 hour of practice makes me feel like I went to the gym for 2 h...

James, can you be a bit more concerte? You are not getting enough sleep because the Oxycodone is keeping you awake or because the Oxycodone is either (1) not effective enough? or (2) it works but it doesn't work long enough and the symptoms come back? Oxycodone does not need to build up in your syst...

So, I just read this opinion article in the Washington Post by some doctor about opioids and while he makes a few really good points, I think it is exactly the opinions of people like him, that make it so difficult for RLS patients to access opioids. Here is the link: https://www.washingtonpost.com/...

Oh wow, I know this cold feet phenomen really well. This specific symptom mostly disappeared once I started taking opioids but it still can happen occasionally and was something I was experiencing more during the time I was still taking DAs. Worth mentioning is that my feet also can feel super hot i...

Oops! I should have mentioned the pain or cramping is often momentary, yet persistent, and not necessarily confined to one area. Rather, it is totally random mostly withing the calf. Thanks again. Those are partly my main RLS symptoms, too. I have a few more, especially in the foot where I tend to ...

Wow, this sounds like your doctor is horribly ill informed. You can try educating your doctor but from what you are saying, it doesn't seem like she is willing to listen. Is there a way to see a doctor who better understands how RLS works? I am currently trying to get an iron infusion, too. If done ...

Well, one of those doctors needs to grow a pair and prescribe a potent opioid like Oxycodone. For Oxycodone, there is a big study with RLS patients and in some countries it is officially approved for RLS. So there is a lot of literature for RLS and opioids and especially for Oxycodone and RLS. I wou...

Melatonin worked for me for a while but at some point it started triggering RLS symptoms and I had to stop.

Now my treatment option is Cannabis. Most of the time I am able to fall asleep without feeling super tired.

Cannabis is not a perfect solution but it still by far the best solution available.

Yep, it sounds like you reached a point where treatment is necessary.

I know that "electrical popping" very well.

At least RLS can be treated and with the help of this forum, you might be able to avoid some of the common problems related to RLS treatment.